Merry Christmas

General Discussion
#1

I know Christmas may not be very merry for some of you this year. At the moment I could include myself in that category, but I still want to say that I am thinking of all of you, even if I do not know you personally. I would like to advise all of you to keep your heads up this upcoming year. Despite how bad some days look, we still do not know what the future holds. Even on my very depressed days, I feel as though our condition can definitely be made more manageable. If I felt like absolute death every day of my life I would maybe say otherwise, but fluctuations give me hope. Two years removed from the poison and I still fluctuate. A good sign I will say. I just had one of the best weeks that I have had in the last year recently, and I live for those good stretches of days. For those of you who feel completely stagnant, I would like to recommend a few things (most of which should be common knowledge around here by now).

-If you masturbate a lot, cut back… it does wonders for my depression and listlessness
-Work out (don’t go crazy) on a routine basis (some weights/some cardio… if you do not wish to hit a gym, buy some dumbbells, buy a door gym, do some push-ups). If you don’t feel like you have any good way of getting cardio in, ride a bike. Biking around gives me a sense of accomplishment, even if it is not much.
-If your brain is wired anything like mine, thought-stopping and positive thinking is very difficult, but devote every ounce of your being to keeping negative thoughts and the things that are beyond your control out of your head. They truly have no place. Yes dwelling on them is only natural given our situation, but remind yourself that it gets you nowhere.
-I am not totally sold on eliminating sugar from my diet. Sometimes a big chocolate shake gives me a nice boost of dopamine and makes me feel better. I guess play it by ear… or mouth. Listen to your body. Wtf? That’s way too many senses relating to food consumption.

The holidays are for being with family, and this is my way of reaching out to my extended family (we are all brothers, in a sense). If nothing else, I hope this thread will be a way for others to post some encouragement and spread good vibes on this forum for the upcoming year. Hang in there guys, I believe there will be better days in store for us.

-Ben

#2

you said it brother, better days are sure to come, thank you ben, happy holidays

#3

Thanks for the heads up donkeyboy. This my 7th Christmas while having PFS. I had it since 2006. I know that we are passing through the hardest time in our life, but trust me every human has his/her share of misery and affliction. I often compare myself to people who lost an arm or a leg or became quadriplegic in a car accident, or to someone who lost his eye sight. I know that our syndrome has taken away the meaning of life with the anhedonia, apathy, and lack of any feelings extending beyond just mere sexual dysfunction. I do however believe that our condition is reversible based on my brief yet complete recovery on cipro and cortef in 2007. That brief and complete recovery that I had for a week in 2007 is the only reason that gives me hope. I also did genetic tetsting and my androgen receptors were fine. I spent tens of thousands of dollars until now. I’m trying to get the best medical insurance in the state to get a full prostate exam including biopsy, a full examination of blood flow through the perineum and also an examination of nerve conduction. I have an inflammed vein in the deep perineum that may be linked to the hemorrhoids that I had before Fina-fucking-steride. The colonscopy cost me 2900 dollars and there is no way to get the necessary tests, procedures and possibly surgery without having a very good health insurance. We are fighters, and we will keep fighting to get our lives back. We will remember what happened to us with great pride. We already learnt a big lesson the hard way, that you can not have everything in life. We played with our health because we were insecure about out looks, and the game was sponsored by the FDA and the corrupt doctors. I don’t trust anything now. I do not drink consume aspartame, or processed food, or junk food. I hope by next Christmas we will have solved the puzzle, and got our lives back. Peace to everyone in the form.

#4

Good post genetix… I hope the same for all of us here… we have all suffered horribly from this curse and the world needs to recognize pfs as a real condition…

#5

Great posts. It’s nice to see some optimism and support for a change. These forums can be pretty depressing at times. But it helps to read some positive messages and see that others have had, at least momentary gains.

Here’s to a happy and healthy 2013.