Member Story: My Story

NEW MEMBERS, PLEASE FILL IN THE FOLLOWING TEMPLATE. This is so that we can more easily track symptoms and hopefully find patterns in our syndrome. This will also help others understand your background and situation.

  1. Where are you from (country)?
    Germany

  2. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
    Google

  3. What is your current age, height, weight?
    33, 184cm, 84kg

  4. Do you excercise regularly? If so, what type of excercise?
    No. I don’t excercise.

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?
    Vegetarian.

  6. Why did you take Finasteride (hair loss, BPH, other)?
    Hair Loss.

  7. For how long did you take Finasteride (weeks/months/years)?
    24 days.

  8. How old were you, and WHEN (date) did you start Finasteride?
    33, 12.07.2018

  9. How old were you when you quit, and WHEN (date) did you quit?
    33, 05.08.2018

  10. How did you quit (cold turkey or taper off)?
    Cold Turkey

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?
    Generic.

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
    1mg/day

  13. How long into your use of Finasteride did you notice the onset of side effects?
    24-48hours

  14. What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
[X] Loss of Libido / Sex Drive
[X ] Erectile Dysfunction
[ ] Complete Impotence
[X ] Loss of Morning Erections
[X ] Loss of Spontaneous Erections
[X ] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[X ] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[X ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[X ] Memory Loss / Forgetfullness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[X ] Suicidal Thoughts

Physical
[X ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[? ] Testicular Shrinkage / Loss of Fullness
[X!!! ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[X (had them before)] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[X ] Other (please explain)
Feeling of emptiness.

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

Not any treatment yet.

If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?

Haven’t.

Anything not listed in the above questions you’d like to share about your experience with Finasteride?

Worked good for hair. Please remove it from market.

Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.
Storytime. I took Finasteride. Notice immeadiately, that the elasticity of my ballsack increased. Suddenly my balls were hanging lower than my dick. Also noticed numbness. Didn’t know what it was, but I remember that I often played with my dick, to see if it still functions, because the feeling of numbness was so weird. I noticed that I couldn’t feel anything but could get it up, if I thought about some hardcore fetishes, while playing with my dick.

Today I googled “Penis Numbness”. Then I found out that it could be caused by low T. flash of insight. Then I googled “Penis Numbness Finasteride”. Ding ding ding. Bingo, I found out that PFS exists which describes my symptoms very good. Then I read and read and read and find out that it is “permanent”? WTF? No treatment? What?

Now I don’t know what to do, because the word that describes the implication of a permanent castration isn’t in my vocabulary yet. It’s a feeling of futileness, loss of manhoodness and what about the 4-5 kids I want to make with three different women? Fuck this shit. I didn’t even take aspirine my whole life, because I didn’t trust chemicals. But I risked it once for hair loss prevention. It’s like never having fucked until you are 30 and the first women you trust and sleep with, gives you Aids, in a time where treatment wasn’t invented for Aids. It’s like a sad sad unfunny joke. This shouldn’t happen with a drug that is so many years on the market.

So sorry to hear your situation, FuckMyLife. We understand what you are going through. Know that you are are not going through this alone. Be careful with yourself in the coming weeks and months. Look after yourself closely. This problem is not your fault, and research is happening.

Hey pete.

Somebody told me, that there are some people where the symptoms don’t happen. And there are some where the symtpoms disappear after ceasing the pill. Is this correct?

Yeah, thats right. But you dont know in advance.
So, make some blood test on fin. It could help understanding what changed in your body chemistry. I suggest doing a 23andmw test AS well a hair mineral test.
Before deciding anything, write to different people and get different information.