@LazarusRy and I (very much mainly him, I have done very little) have been in contact with the MHRA here in the UK.
The conversation yielded one very important nugget of information.
People are not reporting their symptoms.
As far as the MHRA are concerned, the warning you receive with your drug tells you of a risk of erectile dysfunction and that is the end of the story, because they do not have enough reports of other symptoms to justify further investigation.
If you want PFS to be recognised, people need to know about it. And they need to know about the side effects that aren’t erectile dysfunction.
This is a very simple 5 minute job. Report your symptoms, especially if you want people to know that PFS represents more than a drop in libido.
Here is the link you need to get started. There is info here for country’s around the world.
If yours isn’t listed, please take that as a sign that you have some work to do and please look into that for yourself, for us here and for anyone who signs up later on.