Lost my life...

  1. Where are you from (country)?
    Switzerland

  2. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
    Google search

  3. What is your current age, height, weight?
    37 / 178cm / 76kg

  4. Do you excercise regularly? If so, what type of exercise?
    No change to exercise because of “energy crashes” after exercise…only walking is possible for some time

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?
    Gluten-free, no milk, almost no carbohydrates

  6. Why did you take Finasteride (hair loss, BPH, other)?
    Hair loss

  7. For how long did you take Finasteride (weeks/months/years)?
    14 years…but sometimes with breaks of 2 years

  8. How old were you, and WHEN (date) did you start Finasteride?
    22 yrs old

  9. How old were you when you quit, and WHEN (date) did you quit?
    36 yrs old

  10. How did you quit (cold turkey or taper off)?
    cold turkey

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?
    Propecia and generics

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
    1 mg/day

  13. How long into your use of Finasteride did you notice the onset of side effects?

  • experienced short episodes of brain fog since beginning (but thought of another cause)
  • muscle weakness started 5 months before stopping & Crash
  1. What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
Loss of Libido / Sex Drive
Erectile Dysfunction
Complete Impotence
Loss of Morning Erections
Loss of Spontaneous Erections
Loss of Nocturnal Erections
Watery Ejaculate
Reduced Ejaculate
Inability to Ejaculate / Orgasm
Reduced Sperm Count / Motility

Mental
Emotional Blunting / Emotionally Flat
Difficulty Focusing / Concentrating
Confusion
Memory Loss / Forgetfullness
Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
Suicidal Thoughts

Physical
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Pain
Testicular Shrinkage / Loss of Fullness
Genital numbness / sensitivity decrease
Weight Gain
Gynecomastia (male breasts)
Muscle Wastage
Muscle Weakness
Joint Pain
Dry / Dark Circles under eyes

Misc
Prostate pain
Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Increased hair loss
Frequent urination
Lowered body temperature

Other (please explain)
Extreme brain fog, Muscle twitches / weakness, pressure in head, “Energy crashes” after activity (like chronic fatigue syndrome patients)

  1. What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
    1000 Supplements, Kreatin, Ribose, Proteins, Herbal Medication, Acupunctre, Shiatsu, TCM, Physiotherapy, Pre-Hormones (Pregnenolone, DHEA), Antidepressants, “Gut restoration”

  2. If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?
    pre Finasteride: elevated liver enzymes & LDH
    post finasteride: low/normal T, low DHT, high FSH, high LH, high Prolactin

  3. Anything not listed in the above questions you’d like to share about your experience with Finasteride?

  4. Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.
    Use of Fin since 22yrs old because of hair loss. Experiencing episodes of brain fog and tiredness since 22yrs old (but thought was because of EBV-infection). With age 32 experienced fast exhaustion doing sports (but thought it was because of deconditioning). With 36 had brain fog for about 3 months day & night…then suddenly new symptoms: muscle weakness, exhaustion, twitching of eyelids, numbness in some parts of the face. Then stopped fin what caused a major crash with muscle twitches all over my body (day&night), muscle weakness & sometimes inability to walk, brain fog / ataxia-like sensations. Finally was admitted to hospital with suspicion to have neuromuscular disease. 3 weeks of hospital stay in miserable state of health (needed wheelchair), but nobody found the problem. Back home started lots of different therapies as I mentioned above but nothing really helped so far. It’s now 2 years in horrible state of health, can’t do nothing what I used to do before in my “healthy life”…what ever will help, I am ready to try but so far I didn’t find things that really help. Hope to find some good advice reading trough some of all the posts here…

1 Like

Really sorry about your story mate!

Hope we can find something to help.

Interesting connection with EBV. I HIGHLY recommend reading the book “The medical Medium”-Full of very interesting takes and SOLUTIONS for EBV and MYSTERY Illnesses, which I think everyone on this website can agree- this is a MYSTERY Illness.

Wish i could hear an update from u …