Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.
Where are you from (country)?
How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
What is your current age, height, weight?
**28, 5’10", 164lbs **
What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?
Oral Finasteride, 1mg
What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
1mg daily, missed doses
What condition was being treated with the drug?
hair loss, smh
For how long did you take the drug (weeks/months/years)?
about 2 weeks
How old were you, and WHEN (date) did you start the drug?
How old were you when you quit, and WHEN (date) did you quit?
How did you quit (cold turkey or taper off)?
cold turkey after missing a few doses, so I guess inadvertently tapered
How long into your usage did you notice the onset of side effects?
about two weeks, noticed symptoms after a few missed doses
What side effects did you experience that have yet to resolve since discontinuation?
pelvic floor, perennial, flank pain. Then AFTER discontinuation: loss of nocturnal/morning erections, difficulty getting an erection, weak pelvic floor muscles, lowered libido
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.
[x ] Loss of Libido / Sex Drive
[x ] Erectile Dysfunction
[ ] Complete Impotence
[x] Loss of Morning Erections
[x] Loss of Spontaneous Erections
[x] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[x] Reduced Ejaculate
[ ] Inability or Difficulty to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility
[ ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfulness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[x] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[x] Severe Depression / Melancholy
[x] Suicidal Thoughts
[x] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[x] Penis curvature / rotation on axis
[x] Testicular Pain
[x] Testicular Shrinkage / Loss of Fullness
[x] Genital numbness / sensitivity decrease
[x] Weight Gain
[ ] Gynecomastia (male breasts)
[x] Muscle Wastage
[x] Muscle Weakness
[x] Joint Pain
[x] Dry / Dark Circles under eyes
[x] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[x] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature
[ ] Other (please explain)
What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
Initially I used Advil to reduce pain. Primary Doc put me on 10 days of antibiotics (Bactrim DS 1 tablet twice a day times 10 days). Kind of helped actually. Since then things have worsened, starting Cialis 5mg daily soon.
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?
No pre-drug blood tests so idk. Everything in normal range in post-drug tests. Will post in blood tests section.
Anything not listed in the above questions you’d like to share about your experience?
Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
Took Finasteride Sept 6-17ish (missed some days here and there, but I think about 10 days total). First noticed right-sided groin/scrotal pain around 9/21 (had already missed a couple doses so I just never went back on). Saw testicular pain was mentioned as a side effect so discontinued.
Dull ache, came on slowly not suddenly. No sharp pains or swelling. Improved over the next week. There was mild right testicular tenderness accompanied by pelvic pain (i.e. perennial pain, pain behind and in inner thighs). Had an ultrasound. Only thing that came up was mild bilateral varicocele which my urologist said is not concerning. Have no idea if it was there previously.
Pain has been intermittent from Oct 1 to now. Though it has shifted. Where it had been mainly scrotal/flank, is now almost exclusively perennial/penile pain. I’ve had weeks where the pain is barely noticeable (0-2) and weeks where the pain flares up badly (8-9). Stress/anxiety which contributes to tension plays some role here.
Initially, erection quality was not impacted. Morning/nocturnal erections and daily erections were normal for a while, like for a month. However, erection quality has declined, time/stimulation required to achieve an erection has lengthened, and refractory period ebbs and flows, and erections are lost more easily. Anxiety/stress are factors, as I feel I am frequently “testing” myself and analyzing symptoms.
Like 2.5 months post cessation everything was steadily improving. Morning erections were mostly normal, they went away for a bit and then came back for the first 2 weeks of December. Around Christmas I had a couple days where I felt like I could not get an erection at all and my libido took a sharp dive, I guess maybe this was my crash. I was able to achieve daily erections for the first 3 months post cessation, but for the last month there have been days with no erection at all which is obviously extremely abnormal for me.
When de-stressed I’m able to have sex, but it takes a lot of stimulation and my libido ebbs and flows a lot. Visual/thought libido has largely deteriorated. I have barely masturbated in the last 3 months. I used to 1-3 times a day and still have sex.
Morning erections since the new year (2022) have returned some but are way weaker than normal (ranging from ~30% usual hardness to ~90% but rarely 100% w/o stimulation). I noticed seriously low ejaculate volume and watery sperm the week I quit, but now seems to have stabilized tho occasionally less forceful and mildly lower volume. Penile sensitivity seems to have been only mildly impacted, but I’ve noticed less pleasurable orgasms the last week.
I’ve had the ‘hourglass’ affect when flaccid. Which I’d describe more as a narrowing of the base of the penis. Seems to correlate with the pain and stress, but not exclusively. Also, sometimes it seems like it is engorged and actually larger than normal when flaccid. I guess this is like hard flaccid, but I’m not really sure. Seems to correlate with days when I am able to have sex multiple times (on these days my penis feels a lot better).
Have noticed suspected vein changes to penis, as well as possible mild curvature but cannot 100% confirm if this was present to begin with, but it is consistent with other members’ stories. This, like others have mentioned, seems more like a blood flow issue than peyronies.
I’m starting pelvic floor PT per my urologists recommendation. Stretching improved things for a while, but idk if it’s helping anymore. Maybe slightly with the pain but not much with erections. Also helps with PE and orgasms I guess, but I haven’t experienced too much of that yet.
Also, I definitely relate to the not “feeling” erections like usual. Like they’re kinda hollow feeling and they don’t “throb” I guess like they used to.
I would say generally speaking, no cognitive issues per se. But definitely a lot of stress, anxiety, depression, fog due to the sexual symptoms. Like I’m just down about it all and feeling so stupid for the lack of research I did when I tried fin. I wasn’t even that stressed about my hair. I’m getting married next year and I thought “my hair’s getting kinda thin maybe I should try this Keeps stuff.” All I googled was “is Finasteride safe”, read two things that said yes. And barely read the info on Keeps. Suicide has crossed my mind, but I don’t think I could ever act on it for the sake of the people around me.
Idk if anyone has any advice. But I figured I’d just do this after months of lurking. Can’t believe this is where I’m at now. Donated to PFS Network. I hope this either resolves itself, or research moves quickly.