I have been emailing lots of mental health charities that do research lately asking them to include side effects including Post-SSRI Sexual Dysfunction. They all said no to including side effects full stop.
I documented this a bit on a medium article. I then ran a twitter poll over christmas that lasted 5 days of which the results are included in that article and then forwarded the feedback free of charge to Mind the mental health charity. They still say no.
I might start a petition on change.org and go in public (like speakers corner every weekend) to garner signatures, to pile pressure/bad PR on Mind.
I really want to spread a PSSD prevelance survey to find out the prevelance in clinic waiting rooms ideally, but all the mental health charities won’t even create or put their name to a survey. Is there a way that I can use the PSSD survey or an adapted version you have made here at the PFS foundation to discover PSSD prevelance and that may pass the criteria of an NHS ethics so I can approvingly place them in clinic waiting rooms?
Maybe it would be have to unsuggestive of topic and include a control group of people that have never taken antidepressants or isotretnion or finasteride and have still questions on if they have developed sexual dysfunction.
Do you think this is possible? Any suggestions on how I could make all this happen or should give up on the idea are welcome.
Thank you very much