living a nightmare only guys can help me only 19 years old

  1. Where are you from (country)? …

  2. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?) Google- Propecia Side Effects

  3. What is your current age, height, 19!!, 6’2 72kg

  4. Do you excercise regularly? basketball 3-4 times plus GYM once every week

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)? Balanced

  6. Why did you take Finasteride (hair loss, BPH, other)? Hair Loss

  7. For how long did you take Finasteride (weeks/months/years)? 4.5 Months

  8. How old were you, and WHEN (date) did you start Finasteride? oct 2010

  9. How old were you when you quit, and WHEN (date) did you quit? 22, mar 2011

  10. How did you quit (cold turkey or taper off)? Cold Turkey

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic? propecia

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? 1mg Daily

  13. How long into your use of Finasteride did you notice the onset of side effects? 1 or 2 months

  14. What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
[ ] Loss of Libido / Sex Drive
[ ] Erectile Dysfunction
[ ] Complete Impotence
[X] Loss of Morning Erections
[ ] Loss of Spontaneous Erections
[ ] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[X] Reduced Sperm Count / Motility

Mental
[X] Emotional Blunting / Emotionally Flat
[X] Difficulty Focusing / Concentrating
[X] Confusion
[X] Memory Loss / Forgetfullness
[X] Stumbling over Words / Losing Train of Thought
[X] Slurring of Speech
[X] Lack of Motivation / Feeling Passive / Complacency
[X] Extreme Anxiety / Panic Attacks
[X] Depression / Melancholy

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[X] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[X] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[X] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

  1. What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? None

  2. If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?

  3. Anything not listed in the above questions you’d like to share about your experience with Finasteride?

  4. Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

i will appreciate ay advice given from the members here, i’m sorry for my English its not my first language.

Started to notice that im balding a bit in the crown area in 12 grade… as a young guy i didn’t want this to happen so soon so i went to a dermatologist who advised me to take propecia but wait until i turn 18 which means to wait another half a year, asked him if there are any dangers and why should i wait and he explained that there is a link wish some minor sexual dysfunction in like 1% of the users, so for a young guy like me who was terrified at first to lose his hair i thought that it can only help me, so i started taking the drug a month before i turned 18.

after a month or so i started to feel ‘‘weird’’ didn’t quit understand what is happening but smth started to change in me it took me another 2 month to search and realize that this feeling was caused by propecia, i panicked and stopped cold turkey, the feeling that i’m talking about is developed later into a brain fog, i was broken, a human with no sole in him, from a funny self confident individual i turned into this anxious guy, couldn’t even speak with my parents regularly’ i was disconnected from my body, conversation was something that took an effort more than playing a basketball game because i didn’t really concentrated on what the guy in front of me was speaking but where is he looking how should i speak, look move my hands and so on, stuff that i’m not to be aware of even blinking was smth i did consciously… in other word lost my sway

so i stopped and things started to get better had some mood swing but generally speaking i was improving…

a bit about my personal life, my dream was studying medicine and becoming an ophthalmologist like my dad, i was a straight A student top of the class at school but where i live grades aren’t enough to make you get accepted there is also a 4 hours personality interview, which you get graded by, only about 20% of the nominees get accepted, this interview was in mid june last year and as i mentioned i was getting better after quitting so i can say that at the time of the interview i was 80% myself A LOT less anxious feeling comfortable with myself much more almost my old personality was back but sadly that wasn’t enough, i needed only 2 points to get accepted :S
so i decided to start studying biology, i was feeling great at that time cause i was back my old self 100%, all the symptoms of brain fog disappeared magically, i didn’t try any treatments but i could tell that basketball and exercising where a major factor in my progress.

BUT since starting university in oct it was all downhill for me till fast forwarding for this point today, where i feel as i am back on propecia, brain fog as bad as it was, i’m anxious with everyone, even my friends and family, i cant concentrate in a conversation and i’m DEPRESSED, almost like back in a day when i was taking this drug, i cant describe the feeling but its like i’m in a movie, i feel like an actor like i’m not real… and i know only you guys can help me here, plus there us smth fucked up with my vision and my eyes are dry as hell

i’m also writing this cause my symptoms get much worse after a heavy night of drinking which buy the way doesn’t need to be heavy at all to get me drunk and wake up not knowing the the hell happened the night before, a thing that started after taking propeica.

now the deal is that i have an interview in june and i’m applying again for medical school, i know that 5-6 month ago i was back to my old self, i know it but what happened, why did it hit me back again, and what should i do, guys i’m only 19 my whole life is ahead of me but i can’t freaking enjoy it i just cant, not this way, but as a person i’m stubborn i won’t quit on myself, i WANT to get better
and i swear i would do anything to make up for it.

life seems a thing that i cannot enjoy like normal people, i have everything i want except my self, supportive and loving family and friends, money cars i even avereged 98 on my first semester which surprised me cause i felt like my IQ points also dropped but i managed to ace difficult courses without that much studying .

so the thing is now what should i do, is there anything i can take that can help me, i don’t want to tell my parents and family they wouldn’t understand me and they might think that i’m just a wacko… i look back at myself 2 years ago even last summer when i felt normal again and it seems like someone else was living, i don’t know what happened from a scientific point of view and i didn’t want to read cause it makes me more aware and anxious about my symptoms, if someone could summaries it to me i’ll be grateful, and the last thing is a there a way of getting my sole back?

i’ll do whatever it takes

No one is exactly sure what finasteride does to us unlucky men who experience PFS symptoms. It is strongly suspected though that that drug does something to “switch off” an important androgen receptor gene. The result of this is that the body doesn’t respond to testosterone and other important male hormones the way it should.

Some PFS sufferers have normal hormone levels but still have severe symptoms. Others have out of whack hormones but less severe symptoms. The interesting thing about PFS is that guys who have gone longer without treatment seem to respond better to treatment than those who go into treatment shortly after they start suffering symptoms. This fact seems to back up the idea that PFS is an androgen insensitivity issue because maybe sensitivity is regained over the years.

I wish I could offer more advice but all I can say is that we have to band together and do what we can. We need to get the word out and inform every friend and family member of the dangers of this medication and what it has done to us. While we are looking for a cure the least we can do is keep a few men from joining our fate.

okey so what now, i don’t want to sit still and wait for a miracle to happen.
how can i fight those symptoms, is there been anything effective against those mental sides??

Fish oil, exercise, healthy diet (try a raw diet, or at least a paleo). There is no magic cure, but mental sides seem to be easier to overcome than the sexual ones.

Needless to say, avoid anti-depressants, no matter how much a doctor wants to shove them down your throat.

Unfortunately, nobody knows the cause of the problem so far.
You could contact Dr. Irwig (George Washington University) who is conducting a study about permanent side effects caused by finasteride.
I have consulted Dr. Alan Jacobs (neuroendocrinologist, New York). He has seen many patients suffering from PFS.

Is Irwig still conducting the study? I thought he had already conducted it and the results were being discussed on here.

He is doing a second study with semen and blood samples. I think he has not finished it yet.