list of treatments by some doctor that knows about this??

Therapeutic Efforts Doctors & Therapists
#1

hi all. i am very sorry as i know this information been posted somewhere else or if it is in a sticky or anything. the reason i say that is because last time i was on this forum, i started to have a panic attack reading all this stuff and i couldn’t even think straight or anything, so i don’t want to read anything on this forum because i dont want to have another panic attack.

but i remember reading somewhere on here that there was some doctor that had like a list of things that he did, like he would do one treatment, then another treatment, and then another, until something worked for his patients and they felt normal again. can someone please link me to this thread from here?

the reason is because i’m going to the doctor on friday for the first time to talk about this and i wanted to see if there were any options.

PLEASE don’t post any negative things in here because i really don’t want to have another panic attack or know my immediate doom or anything like that… thanks so much everyone… please stay strong.

#2

bryce,

I’m not sure what list you’re referring to, but many guys that recently came off of the drug try using Clomid as a means to jump start a possible breakdown with the HPTA axis.

You can also bring in a list of hormones that are recommended to be tested. You easily navigate and find this list from the main page. Take some advice from a veteran of the “Post Propecia world”, Most doctors don’t take to well to their patients coming in on the first visit with a long scripted list of how they should treat their patients.

Start with the as conclusive a blood test as possible. Post the results here for everyone to see and we can let you know what looks bad. If you have really high Estrogen, it may make sense to go with the Clomid treatment. However, there is no one size fits all way of treating things.

Best of luck.

#3

Hi Boston:

Thank you for your reply. I have actually done a lot more research since this post and have found out a lot of information. I was initally scared to browse the website because I thought I had zero hope and like I said I had a not so lovely panic attack lol. But since browsing, I have decided to take a similar route that JN has taken in his journal by doing more research into the thyroid similar type of condition that has been going on with other people.

If anyone is reading this, be sure to check out JNs journal for what he is doing because it sounds very promising. A lot about the HPTA axis, fixing hormones… etc.

#4

Really not sure what to tell you Bryce since you PM’ed me and said this condition is “mostly in our heads”.

I really don’t know what to say to that…

#5

Hi Boston, this is the initial message that I received from you via PM:

Sadly, there is no cure right now and clomid only works rarely. You need to get to Dr. Jacobs. He is on the cutting edge for alot of new PFS research. Hands down the man you need to see.

This was my reply:

[i]Hi thank you for your reply. However, I did ask that I please not receive any negativity regarding the condition. That attitude will make me feel horrible and I am pursuing different treatment options at the moment. By saying things like that, it will make people not hopeful and much of this problem is in our head. Not all the way, but it has a factor. This will be the final message I send to you because I will refrain from reading any more messages that you send.

Good day to you.[/i]

I’m sorry you misunderstood what I was saying and as I re read, I can see how it was interpreted this way. By no means do I believe that this condition is mostly in my head because I have been feeling this same way for a very long time and I do know that it is not in my head. When I said in my head, I was regarding the portion of my mental sanity when I said that I have had a panic attack from reading this forum.

One of the reasons I had a panic attack was from reading messages that were very similar to yours where people will say I have no hope, nothing will work, etc etc. I am trying to get myself better and it really doesn’t help me or anyone else by your message implying little to no hope for people.

I was also thinking “in our heads” in a literal sense because I have been reading a thyroid forum all day today and it seems a lot of problems have to do with certain neurotransmitters not doing their job. I am new to understanding the treatments that are available, but please understand that the negativity will only make me feel depressed and sad and that is not where I need to be.

I am also very tired from reading all day :stuck_out_tongue:

#6

I think what you’re alluding to in your first post is the series of standard protocols - clomid, TRT/hcg, etc. that some docs who attempt to treat PFS follow.

I’m not saying “there is no hope” at all. I think there is alot of reason for hope and overall things look much better for us than nearly a year ago when I landed here. I was speaking of clomid treatment in particular. But, when one of us makes some remark anything at all like this being “in our heads” that scares me. Its difficult enough to get people on the outside of this looking in to take us seriously…

#7

Hi, yes, completely understandable. When I talk to my mom about it, she says it happens to everyone and even she doesn’t truly believe there is a problem! So I know! Sorry I got very defensive because the panic attack was probably the lowest moment I have ever had post fin and it was a very scary place to be in! Now that I am doing research and trying to be as productive as I can, I am more able to maintain my state and well being! I understand you were just trying to help and I thank you for the doctor recommendation.

The post I was looking for orginally, I had found. It was from Dr. Chrisler and how he said he has the HPTA restablizer or whatever he calls it. I am going to get lab work done and see where I can go from there.

I know we will get better! It would be a crazy thought to think that it wasn’t! Many diseases have been cured! And all the internet users have done so much like Mew off the top of my head. I’m sorry I don’t know more users on this website as I am new. Well not really, I lost my old password, but I had an account on here when I first started experiencing the side effects back in 2008.

But I have not taken action until now. Sorry this is turning into a speech. LOL. But yes, to make a long story short, I know it is NOT in our heads. All we can do is keep our positivity up and don’t stop working.

I have been reading all day yesterday and I have been reading all day today trying to educate myself. That is why I think my message came off like this because I am very tired lol.

See ya around!

#8

Yea, I know its tough to deal with your family. Sometimes people have no clue. When this first happened to me my father told me this is “what I get for being vain”.

I agree with the rest of your post. I hope you find a doctor you’re happy with and a successful treatment.

#9

Damn, that’s harsh. I doubt that’s what people say to a women when a hairdresser botches their dye job and leaves a chemical burn on their scalp. Or the girl who died of skin cancer from visiting a solarium.

#10

very true. but i can see it from their side because it really doesn’t seem like a big deal until it happens to you and you are unaware on how many aspects of your life it truly effects instead of just not having good “drive”.

#11

gotta agree with you on the negative comments and panic attacks.
Although Ive been suffering from this for almost two years, I’ve always had a positive outlook on it, believing that one day, hopefully soon, I’ll be all better.
The day I first discovered this forum and started reading comments like “theres no hope,” i almost had a nervous breakdown. Still going to ignore those, though.