Letter from the Foundation

[Mark2012]

Just got this letter. Its good to hear that the research will be released this year.

I think 2014 may be a turning point for PFS.

Dear PFS Patient and Family Members:

In the coming year and beyond, as the clinical research being funded by the Post-Finasteride Syndrome Foundation is completed and published, it’s likely that members of the media from around the globe will be contacting us to inquire about interviews with PFS patients.

As such, we are reaching out to PFS patients and their families to inquire if they would like to participate in media interviews if/when such requests arise. Please note that the foundation respects the privacy of all PFS patients, and will never pass their names along to anyone without written consent. So if you have no interest in participating in media interviews, simply ignore this correspondence.

If, however, you would like to help generate awareness of PFS, please:

1: Click here to download our PFS Questionnaire

2: Fill out the questionnaire, and be sure to save all the information first before closing

3: Return the questionnaire to us as soon as possible via email. The best way to do that is to reply to this email with the questionnaire as an attachment. You may also send it to us as an attachment to a new email at media@pfsfoundation.org

Also note that, in most all cases, the media will request that victims be interviewed under their real names. At the same time, the media is sensitive to the fact that, given the nature of PFS symptoms, many patients prefer to remain anonymous. In such cases, media outlets may consider interviewing patients under an alias (i.e., the patient’s case and experiences will be real, but his name will not).

Thank you in advance for your attention to this issue. Raising awareness of PFS is important on many fronts, as it promises to: ·

Create interest among the best and brightest medical researchers, who in turn may apply their talents to future clinical PFS studies.

Save men who might be susceptible to PFS but have not yet begun finasteride therapy from developing the condition. ·

Educate doctors and other medical professionals on the existence and prevalence of PFS, along with its array of symptoms.

Alert the general public that any man who takes finasteride could potentially develop PFS. ·

Spur donations to the PFS Foundation, which in turn will be used to conduct additional medical research on the condition.

Sincerely,

Dr. John Santmann

[matys83]

Hey. That good news.

[PR123]

I would agree that this bodes well for the clinical research – even if those reports do take a year to get published. After all, we all know that PFS is a real (and really horrifying condition).

So it’s only a matter of time before medical science puts its finger on the root cause(s).

Let’s just know no more PFS victims take their own lives before that happens.

[nopecia]

[Size=4]Whoever reads this and HASN’T completed the questionnaire needs to do so![/size]

Please especially do this if you’re outside of the USA. If a Spanish, Brazilian, Japanese, Indian, Polish… etc. newspaper wants a native contact, the foundation needs to have one, or how does that look?

I have a copy of the questionnaire if anyone needs it or just contact the foundation.

[Gelhead]

This is only good news if people apply to become part of the studies. If this doesn’t happen then nothing is going to change.

[matys83]

Questionnaire:
pfsfoundation.us5.list-manage.co … 37686e9620

[PR123]

Thanks for the link. I am going to pass along to some PFS victims in China and Japan I’ve been in touch with. They are really shocked in Asia that such a condition exists. And one victim mentioned that his national health agency has been in touch with Merck to ask what the hell is going on.

[PR123]

Also, for what it’s worth:

dannyroddy.com/06-14

[daveydc82]

The “coming year” sounds like next year (2015) to me. I hope I’m wrong and at least something will be published this year.