Let's start become real people

Do it in Italian. We could subtitle it into English as well.

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Cheers but I’m essentially a zombie so I can’t appreciate compliments much :woman_shrugging:t3:

Cool idea! I took lexapro but I think it’s a great way to get it out there. Have definitely thought about putting something out there at times!

Just letting you know you’re all braver than me. Much much respect, and btw you’re all gorgeous! Sheesh…

Sawproblemo you’re probably gorgeous too.

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Great thread for those who feel able to share, and do note our youtube project.

Agree with @jinstewart - Gorgeous and, importantly, very valuable people. Don’t let anybody make any of you feel you’re not - truth is on our side :slight_smile:

Also…crikey that wolf tho :smiling_face_with_three_hearts:

(More animal pics pls)

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Jin you can be brave too! We arn’t the ones that should be ashamed. All the professionals and family that didn’t believe should be ashamed! We need to be seen and heard, not embarrassed. Hopefully you will join us gorgeous people one day. :star_struck:

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Your memories break my heart I have so many moments looking back like this. I also feel like a self confessed crack addict when I look in the mirror. Sad thing is they have it way better. You totally look like a friend of mine.

haha crikey for sure. Ok I’ll swap for your share axo :star_struck:

@Greek
I do not participate in the project because, honestly, I consider most of the administrators of the hypocrites. I don’t feel part of a community. I already know that I will die, but I don’t want to become a martyr for PH.

If someone’s career were to be put at risk and they don’t deem the potential benefit worth risking it over when they’ve got dependents to support, I don’t think it’s right for us to judge them for picking the people they love (such as their kids, spouses, etc.) over themselves and other people suffering. It’s a complicated situation for some I guess.

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Well, I’m sorry to hear of your low opinion of the admins, and I assume the moderators.

Everyone here is the same, all struck down with something they didn’t deserve and we’re all just trying our best.

If you want to help, we’d love to have you help.

Bunny, just a quick response to you, have you ever tried magic mushrooms? Some guy here said he got his emotions back with using it. You might want to do a research on Psilocybin mushrooms and dopamine relation. Your story broke my heart, hope you find a way to get your emotions back.

https://www.ncbi.nlm.nih.gov/m/pubmed/25342005/

Thanks Cooper, but increasing dopamine actually harms me. So does decreasing it. There’s a problem at the receptor that mirrors the way PFS has effected the androgen receptors. Like same mechanism different receptor. I’ve had 10 years experience of my brain responding incorrectly, enough to know what I should be staying well away from.

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Why do you feel this way?

Holy shit, I am so sorry to hear that. Are there others like you on the PSSD forums? Is it a form of PSSD or is there even terminology to classify your affliction? That is just so wild and heartbreaking. My deepest sympathies.

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I started on an antidepressant withdrawal forum where I found one person but her reaction wasn’t as bad, she got better after year. The PSSD forums annoyed me they were all over the place. Here is the only place I found an explanation that made sense with all the fucked up stuff that had happened to me, this forum was way ahead with the science. This may seem like a reach but I guess if the PFS people could find out the problem mine would be the same, just different receptor. I know maybe I’m reaching, but I need hope. I know I’m rare, too rare to start my own foundation or for anyone to listen. I honestly think I’m the only person stupid enough to keep taking a drug that was causing them so much violent mental and physical pain just because their doctor said they had to.

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Hi Bunny I’m very sorry you are in this situation. I wish that didn’t happened to you or to anyone really.
Anyway I am just writing you now because I want to let you know I really don’t think you are stupid or an isolated case in your experience, infact I also took another 2 months of the drug that caused me a bad bad avverse reaction( after 2 hours my body was a complete battleground) just cause my doc said so. I think as a psy patient you are always in the mindset that someone else knows better than you. Also the pain was so unimaginable for me and probably for you too that I can totally see why you wanted to be supported by the doc in hope that it would stop and do not forget you were under the influence of the drug also.

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Wow, thanks Sara thats super comforting…its pretty horrible having to blame yourself constantly. Nice to know I’m not alone. I had only experienced one panic attack so I wouldn’t have even called myself a psy patient, I was only 20 and I thought doctors were like god. They knew everything. I was so trusting. I went in there saying I wasn’t going to take another pill no way in goddamn hell. Then I let him persuade me it would all go away. All I had to do was listen to myself and I’d be alive to tell the tale.

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It was just a mistake :frowning: I really don’t think it’s our fault and you are listening to yourself now!
Who knows maybe someday we will figure it out, I really hope we will be happy again someday somehow
:heart:

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Just want to drop a message here to say it isn’t your fault.

I’ve noticed from my numerous interactions with medical professionals that most of them have an excess of confidence and act the way they do because society has placed them on a pedestal. It’s almost as if it’s taboo to question a doctor’s competence right now. Once I had a doctor straight up tell me that I would never get better if I didn’t have faith in his treatments, and that’s when I realized how primitive medicine really is at the moment (in certain fields, namely psychiatry). While we’ve come a long way from the days when the best physicians in the world used to drain blood as a treatment for everything, including hemophilia, we’re still in the early stages of effectively treating many diseases. I think if professionals recognized the aforementioned fact, rather than overselling certain “treatments”, fewer people would be harmed.

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Thanks Borax!!
I’ve definitely noticed this over the years, in fact I’ve adapted a special kind distaste for them. Especially the oldies that graduated back in the 60’s and haven’t leant anything new since. Plus like you said all those years of feeling so important has made them feel like they know better, not open to question. Like they are the ones that are allowed to dictate what is and isn’t possible, with no updated information or experience what so ever. Like them not coming across it in their practice means it just doesn’t exist. Being blamed for googling when you have more information than them on anything. Just because it’s not written on the insert doesn’t mean it didn’t happen. So smart but so ignorant it all goes to waste. If only I had the blessing of having my blood drained.