Let the battle begin

Member Stories
#1

  1. Where are you from (country)?
    United States

  2. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
    HairLossTalk.com

  3. What is your current age, height, weight?
    26 6`1” 165

  4. Do you excercise regularly? If so, what type of excercise?
    Yes. Running, occasional weight lifting

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?
    Meat eater

  6. Why did you take Finasteride (hair loss, BPH, other)?
    Hair loss

  7. For how long did you take Finasteride (weeks/months/years)?
    1.5 months

  8. How old were you, and WHEN (date) did you start Finasteride?
    26 08/22/14

  9. How old were you when you quit, and WHEN (date) did you quit?
    26 10/7/14

  10. How did you quit (cold turkey or taper off)?
    Cold turkey

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?
    Propecia

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
    .25 mg ED

  13. How long into your use of Finasteride did you notice the onset of side effects?
    Brain fog, memory loss and anxiety at first, subsided after persisting. Only after quitting did I have ED

  14. What side effects did you experience while on the drug that have yet to resolve since discontinuation?
    Anxiety/brain fog

Put an X beside all that apply:

Sexual
[x ] Loss of Libido / Sex Drive
[x ] Erectile Dysfunction
[ ] Complete Impotence
[x ] Loss of Morning Erections
[x ] Loss of Spontaneous Erections
[x] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[x ] Emotional Blunting / Emotionally Flat
[x ] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfullness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[x ] Lack of Motivation / Feeling Passive / Complacency
[x ] Extreme Anxiety / Panic Attacks
[x ] Severe Depression / Melancholy
[x ] Suicidal Thoughts

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[x ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[x] Persistent Fatigue / Exhaustion
[x ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[x ] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ ] Frequent urination
[x ] Lowered body temperature

[ ] Other (please explain)

  1. What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
    None

  2. If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?
    Getting them done next week

  3. Anything not listed in the above questions you’d like to share about your experience with Finasteride?

  4. Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.
    When I first started Propecia, I immediately felt weird (brain fog). I also became very lethargic. I thought that was probably due to the depression of starting to lose my hair at a young age. I had read that a lot of symptoms subside with continued use, so I stayed on it. After a while, the symptoms disappeared and I felt completely normal on the drug. No ED or libido issues, although I was constantly worried about them and checking them. After a month and a half, my shedding had increased substantially and I began to worry about the long term effects of the drug. I decided that I wanted to quit. Oddly enough, as the days passed that I had been off the drug, the worse I felt. By day seven, which should be the day DHT returned to normal, I could no longer get an erection no matter what I did. That is when the depression/ anxiety set in. I began having suicidal thoughts and felt that my life was over. This site gave me hope that I could battle, but I still feel like my chances are pretty low. Even doctors who are treating this won’t even give patients hope that they’ll be normal again. Hopefully one of these protocols will work for me and I can regain at least some normal function.

#2

Good luck. Possibly the effects will resolve themselves. You weren’t on it as long as many here.

#3

Time on drug means nothing. We have guys fucked for years from just 1 dose. Get your facts right. No numbness, vision problems, or insomnia. That would be a good sign.

#4

There’s also guys here who took the drug for a hell of a long time and recovered. Try and maintain hope OP.

#5

Who, Chi and Cdnuts. Good luck! Our lives are destroyed. Period! All you guys think grass eating is going to fix it. If awor and mew are right, dead AR. We are all fucked for life. Stop being so foolish. If TRT doesn’t help neither are a bunch of Tboosters from GNC.

#6

Chi, cdnuts, 12345, mitch. Then there’s Blunted, English, bizzbee, towm8er, myself, finatruth and notna who’re all going down variations of that route and seeing improvements. Its slow going but hey, who gives a fuck anymore, we can’t get out of this situation so we try and improve it.

I’ve spoken to cdnuts at length btw, frequent another forum he uses too. He was fucked and now he’s better and he was kind enough to come back and tell us how he did it.
Try it or not, doesn’t bother me, just quit scaring other people out of trying. Misery loves company.

Just to really mess with your head. If the AR receptor theory is correct, then why do people experience temporary recoveries? Mew had a couple if I recall?

#7

Mew had some slight improvements. These temp recoveries, From what? These reports are to vague. The list of symptoms is long. Justquitdut said his protocol fully reversed this. Why don’t you jump on his protocol?

#8

The condition can be reversed, it’s s nightmare but don’t give up hope, I have found a way through my own knowledge and experience and help from dr Jacobs (a specialist in this field). First you get estrogen under control and then replace testosterone, but it must be testosterone propionate as it is the least aromatizing. Our problem is we convert most of our test to estrogen and don’t produce enough dht which regulates estrogen. It can be reversed, and in that protocol it induces your own dht and you will in time recover by stimulation of your damaged 5ar system. If it doesn’t work, dht replacement does when estrogen is under control. This condition caused estrogen dominance, hang in there. Follow my protocol if you wish to try to reverse it when you are ready.

#9

You’re so selfish. A new guy posts here who seems positive and you greet him with this shit.

Stop trying to suck everyone into your black hole of misery.

#10

Dude it ain’t my fault your here. The statics are not in your favor. That’s just a fact. Sorry

#11

I give up, you are a loser. Don’t listen to him. I now am horny and huge desire for women. Granted it took 2 years+ I have random. Nightime, and am wood everyday again. Dizzyness, blurry vision, bone pain, twitches all gone. Have faith, it gets better overtime naturally. In fact, everyday I think back to the first year or two and remember how aweful it was and how happy I’ve become.

#12

Finatruth, what a mountain of shit you type.

‘It gets better overtime naturally.’

What kind of ludicrous blanket statement is this? People are going round in massive fucking loops here. They start on whatever “protocol” is fashionable at the moment. Then they go off it. Then they start on something else. Then they go off it. Despite years and years of collected experience, no consistently effective treatments have been found. If you can even call even describe the efforts of these armchair-scientists as “treatments”. There has been plenty of guess-work. And the results have been hugely ineffective. The grass-eating mob on here have a long history of claiming ‘it will get better over time’. And yet we are all still here.

‘How awful it was and how happy I’ve become’

What kind of rubbish is this you are talking about now? Is this how a cured person would actually talk? ‘How happy I’ve become?’ Really? This sounds more like the talk of someone who has convinced himself that his ludicrous ideas are right. Look, I know that you are desperate to believe in your “protocols” and all the wild-herb nonsense that does the rounds on these boards. I know that, deep down, you really are so fucking desperate to believe that you can solve it yourself. But the truth is painful: you are still here, and the success rate for any of that bullshit is minimal, and is possibly the result of people convincing themselves that they’ve become better, in their mind.

In the meantime, the best course of action remains the same: participate in the studies; put money towards the PFS Foundation; support the work that is going on at the PFS Foundation.

#13

My question to all of you that have just responded negatively saying we are all just screwed, you ask what others are still doing here? What are you still doing here? If the PFS Foundation finds a cure, you will definitely hear about it. So what is your motivation for remaining here? To blast others who are hopeful of recovery? Then I pity you, because this drug has really taken its tole on you. I believe that people have recovered. I know that if I did, I would definitely come back here to help others. Yes the AR permanent damage theory scares me, but why would guys recover for three weeks, just to crash again? Why would your system stop responding right as you get off the medication, instead of progressively while you are on it (as in my case)? Why are some people okay for years on it only to have symptoms after stopping? How do you explain people who only took several doses, or even one, that now have problems? I didn’t come to this forum to argue, I came here to try to find a solution to a common problem. You say the success rate is low, but supposedly so are the amount of sufferers. I don’t want to fight with anyone, I just want to help work toward an answer.

Thank you to everyone who was optimistic and replied with helpful information. It is appreciated.

ANH

#14

Stay positive. Your gonna need it. Life with this condition is terrible. You should start out by eliminating c andida. Also fast as much as possible. Food will just feed your gut parasites. Try wormwood. Get lots of blood work. T , free T, DHT, E2, vit d, t3, t4. Post it here so we can all look at it and speculate endlessly. Try dht cream, it might help. Buy lots of high quality fish oil and green tea. It’s so relaxing. Be ready to loose most of your muscles. You didn’t need it anyway. If you can sleep your very lucky. If not there is an endless number of sleep aids to make your life more miserable. If you don’t have really bad dry eyes and mouth try Remeron first. Maybe GHB aka xyrem if you can get ahold of it. There is an allo spray that might help. Stay away from SSRI’s. Everyone is going to think your crazy. They will likely try to force this type of medication on you. Avoid it at all costs. It will mess you up even more, no doubt. Try androhard and workout. Buy all the natural test boosters you can for PCT. Alternatively jump on TRT or HCG. It might work. If not you join the broken AR group. Go to Baylor so they can close out the study. Eat lots of broccoli, asparagus, and fish. Stay away from sugar, gluten, processed foods. Eat a cave man diet. After starving yourself for at least a week or more (fast). Stay away from caffeine and alcohol. Stem cell therapy doesn’t help. Try an alpha stem. Buy the book a headache in the pelvis if you have pain there. Avoid stress. Do not jerk off. Pain meds don’t help avoid them. Try Chinese herbs, acupuncture, and koi gong.

#15

Anewhope- nice post!!! I basically come here to help others because no one was here telling me 2.5 years ago that I would be almost recovered, that the numbness and lack of libido would be reversed. I was devastated back the and my heart goes out to many of you. To go from zero sex drive for years to to wanting to have sex all the time feels amazing!! You keep wanting to push yourself when you feel closer and closer. So I want to bring hope. You see, this looser mcbioth is the type of looser who will just be negative and angry, then when he feels better be will disappear from the forum and won’t share anything, won’t really add anything. So keep fighting buddy! Look at my posts from 2012 and 2013, I felt there was zero hope but I remained positive. What’s funny is morons like gelhead want to tell you that your not getting better lol. I don’t get it, maybe he thinks I am from Merck lol. Good luck, you want to talk I am always willing to tell my story and help others.

1 Like
#16

Anewhope- yes you are right by the way, the ups and downs, going from numbness to sensation in the penis, and stories of recovery all LOGICAL evidence that it’s reversible. Why people don’t like or follow logic I will never know.

#17

If logic applied, you wouldn’t be here. The medication is not supposed to do this. Many that don’t come back here are not better.

#18

I made a promise a few years ago if I ever got Better I would stay here and help others. Two years ago when I was crying everyday and would see some posts that seem to demonstrate recovery, I would wonder why they would just disappear and not remain helping others. Now I see why, I am loosing my interest in doing the same as well. I listened to many like Proscarred, cdnuts, chi, john Coleman recoveries and wondered could they really be true? While I dont think they had any idea why they got better one thing stood true, over time they got better. The stayed positive and got better. I love waking up at night with rock hard erections and sexual thoughts. It’s like new found super powers that I thought could never be. So, consider myself the dark knight. As long as their are assholes like you spreading negativity and derailing people’s attempts to get better, live heathier, or even theorize, I’ll be here to stop you.

#19

Finatruth could you give to us the details about the asparagus cooking, if you eat raw, if you eat with the liquid, dry etc.
Also is being very difficult to me to write you a PM or an E-Mail because I’ve never got an answer so please if you could contact me (joocarlos924@yahoo.com.br) or (joocar2 skype).

The science behind your recovery, at least the things I’m reading is showing, is that you got an increase or reactivate your androgen receptors with the protodioscin and when we do that the androgens will bind to the receptors and we will feel good again, also if we increase androgens in this time our body will produce more AR (Cdnuts said that when PP guy said it to him and there’s science behind it) to be used.

People who got Deca Dick have the same symptoms that we have, woman with birth control pills too, so there’s a cure guys. We will get there trust in all recoveries you’re reading and forget about people who are saying that there’s no cure, we already saw many.

#20

I gave asparagus a try until I was sick of eating it and it had no effect. Has anyone else tried it with success?