i have to disagree here. the average person cannot grasp all the scientific details. if you mean create awareness among the medical community then i agree getting the technical stuff right is correct.
but when it comes to the average joe, it makes almost zero practical difference. the simpler the better almost always.
and to your point on awor and axo’s speculation on hdac inhibitors, i clearly remember a post started by awor making a list of hdac inhibitors.
No, it really does make a difference. Because again, mischaracterising the disease creates a culture where it’s ok to continually do that in the absence of research, which is one of our biggest challenges. It’s like someone creating a video about cancer and saying “cancer is caused by walnuts and can potentially be treated with pixie dust”. That’s just nonsense and serves no purpose for real progress on the issue. We’ve had “awareness” for 15 years, and it currently amounts to:
That has not moved the needle one bit on this issue for 15 years. Doing things for the sake of doing them does not mean they are of quality.
And you’re right, awor and axo did make a list of HDAC inhibitors as substances that could potentially have an effect on symptoms. They did not say it would be a positive effect, as evidenced by two patients recent experiences with sodium butyrate. So again, your statement is inaccurate.
we’re going to have to agree to disagree on the awareness. you are speaking in ideal situations, but that doesn’t happen practically.
the guy in the video articulated the following:
a couple of bad points after wards does not erase what he just did for us. no one watches the video, thinks “oh my god PFS is real”, and then thinks “wellbuterin? HDAC inhibitors? man this guy is full of shit about PFS being real”
no, in fact his audience is now aware that it is in fact real, when they previously were not…
as for the awor and hdac topic, i used the term “speculate” above when comparing them to the guy in the video with his speculation.
I agree with this.
When i heard permanent epigenetic changes such as cell death in the penis i was a bit skeptical. Maybe im biased because that is literally the worst case scenario and i was pretty saddened to hear that from Leo especially since i follow him alot
BUT if one is able to get normal nocturnal and morning erections… its hard to imagine that ED side effects are “permenant”.
An insane world when a random YouTuber can tell us more about the syndrome than the majority of doctors.
I was taking Wellbutrin as well, and continued to take it for almost a year and a half after PFS.
Hey to all the guys in this discussion:
All the Videos from hairloss, bodybuilding supplement freaks (and randoms like @Papasmurf described) are like to much AR in the target tissues and you are oversignaled an there is no adequate reaction more in the target cell.
Like @Sugarhouse said getting awareness to our disease, we need the victims to be seen on videos, we need serious doctors and scientist videos and TV reportages. And not the creazy freaks mixture on videos, because for this our lives are damaged to much. I think even a pietatfull video to the 89 +++ unknown suicide victims would give the awareness we need.
PFS is a horror disease wich destroyed so many lives, including my own
!!!as accepted pharma collateral damages!!!
But so many sufferers need theory’s and the hope for supplements efforts to survive.
And now it’s ten a clock and I try to stand up
Whats baffling to me is that leo himself takes finasteride daily not even for hairloss, but just so that in the future he won’t get BPH. He doesn’t even know if he will and bph may come in decades time. I dont understand. He even acknowledges pfs as a condition and yet takes fin for that stupid reason.
Have you seen any benefits? If you are no longer taking it, what made you quit?
Wow. I think if he truly acknowledged the potential multi-systemic nature of the disease, and how thoroughly devastating it can be, he wouldn’t go near any 5ARI. The fact that he acknowledges PFS and therefore is providing informed consent to the potential risks of developing it, because he doesn’t want to develop BPH, is baffling.
Exactly it makes no sense why he would bother taking it. He’s very fortunate to not have side effects from it, at least for now…
Many of these guys think all the research and books they’ve read will prepare them to reverse the side effects if they do happen but they’ll be in for quite a surprise when they realize nothing works for this condition.
Guys, he made a video, he has a large following. He says that yes, PFS is absolutely real, his opinion is largely based on the Baylor study and gave what he THINKS may be of help. What the F is the problem? HCG helps a lot of sufferers including myself. Diet alone has cured people. You don’t want to take sodium valproate, then eats lots of cruciferous vegetables, citrus, berries, etc…natural hdac inhibitors.
Theres absolutely no way Leo didnt get any sides. He def fucked up his 5ar activity with Fin.
But as he mentioned in the video and other videos beforehand… he mitigated the by using an absurd amount of different drugs and chemicals.
Go look at his two videos on “extreme sex drive” and “rock hard erections”. He mentions these really relatively unknown absurd experimental compounds that he says will work. Most likely he is using those to mitigate his Fin sides.
While it appears on the surface to be useful, I’ve already adequately addressed why this kind of “awareness” is problematic.
I’ve spent the last 3 months recording an upcoming podcast series, and spoken to over 10 guests now. It was absolutely heartbreaking and disgusting to hear the mothers of patients who have committed suicide talking about how they found “healing treatments” or “hormone protocols” from gurus like this guy, rather than finding accurate information about the symptomatology of the disease, the current state of scientific consensus, how they could contribute to research and real progress, etc. It is absolutely insane this is still occurring and the culture has to change.
About to next week