Guys this is one truly devestating disease. No one outside of this forum understands or even has an idea or clue of what we go through around the clock. Nothing / no part of our lives is left untouched. You lose you! Your physicality, your looks, whatever it was that made u/me is gone! We’re a mess, life destroyed, trying to navigate some sort of fucked up existence, where were denied, even ridiculed medically. So you look to your family and loved ones for hope as a last resort and expected sanctuary / unconditional love but this also turns out to be a false dawn the final insult/ breaking point in this true modern day horror story. So where do you/we go from here!!! I was at this same point approx 3 years ago. Have I improved. No!, Have I got worse. Yes!!! Am I stronger, Yes!!! I’ve left work, lost my marriage, my friends you name it!!! It’s all gone but I get out of bed each day, I exist I cry I feel sick I count my losses but I know I’m still alive and push forward in the hope that I’ll wake up one day and feel windows of improvement and with that I’ll be reborn nothing in this world would ever topple me again / come close to Pfs I’d be something else with this behind me/us, life would be a blessing a dream I’d have so much to give, to cherish to live for to feel. For these reasons alone it’s worth fighting on and living with this as best as we can. Something tells me even at my lowest points which are many, deep in my heart that we will come through this and will have the best years of our lives ahead of us because of this hellish experience. God bless us. Keep faith and above all believe you will have a future ahead of you.
