Seems pretty quite here lately. Unfortunately, I’m losing hope. Can’t blame me when something has gone on this long.
Question for the foundation. Are there any updates that can be shared? Did I miss something recently?
Thanks
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Never lose hope. Focus on things that make you feel better. For me it’s swimming, being in the water seems to soothe me. There is a flux with PFS and I think we all roll with it, but there is lots of joy to be had and a good life to live. Try to make your life simpler and be kinder to yourself is my advice.
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There will be news from PFS Network in the beginning of 2027. At least one new important study coming. Another one for late 2027 (hopefully).
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I must have missed that update but thaanks man. Curious where you came across that info?
Most updates now take place on the official Reddit page. Members can also register for periodic webinars, which are promoted on the subreddit. Not much is happening on Propeciahelp these days.
The latest update is that the current epigenetic study has produced promising results. However, the details won’t be shared before publication. The researchers are hoping to submit the manuscript for peer review by the end of the year, with publication expected three to six months afterward.
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Thanks Alvin! Guess I will go there for now on.
They just released an update who knows if they post it here but basically didn’t say anything but the same ol same ol…More research needed.
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yeah they’ll say the same shit 10 years from now too
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Well atleast they are saying something unlike baylor that went on for 8 years and nobody had a clue what was happening…Its hard to draw any conclusions from what he said other than the study turned up something and will probably be published next spring…
There was also another project in the works he mentioned of pfs patients detailing their experiences to an institution in Berlin…
And so the next studies are not even designed yet so its a ways off before they would even be close to launching etc…
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I don’t know how that would be more comprehensive than the thousands of member stories here.
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Alright, I see the research updates were communicated via email to the pfs community. In it they highlighted where the foundation is headed and what they’ve been up to. Thanks to Mitch and the foundation.
Here members can remain anonymous, the Berlin study is on the record.
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Its a shame they cant be more specific…I know nadine hornig was creating a hypothesis of what had happened to our androgen receptor protein that she believed it was the cause and was working towards thst…
The interview was conducted 3 years ago with her it would be nice to hear her thoughts now and the results of these various experiments like the tampre study and the mentioning of hitting cells with dht over and over again to simulate the effects of coming off the medication…
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