Key observations and hope

Over the course of the last week I noticed a slight reduction in the severity of symptoms in terms of urine frequency and colour, food intolerance, skin dryness, weakness, pains, brittle bones, cognition, toilet habits, eye sight, gum pain, my dorsal muscle started to refill, sporadic strength and more As each day passed things got slightly better I even started to feel less let down by those around me and wasn’t afraid of socialising as much. I thought things had bottomed out and I was actually on the way to finally improving after too many years of complete torture then last night it came back like a hammer. Symptoms are hellish once again. What caused this! Well, I had my 2nd vaccine exactly a week ago. Whats does this tell me, lower the immune system and the symptoms become less severe. This is definitely the way forward as a treatment, there have been many opinions on this over the years but my own observations back this up. I used to be on AI drugs for my RA which probably stemmed the tide for a long time. After this recent bout of activity its even more upsetting that I got knocked back for the trial of a Jak inhibitor. However this gives hope/options of a potential treatment/a way out of this. Its worth noting that the immune system got a mention in the Baylor paper. If this disease had proper recognition I expect AI drugs would be trialled on sufferers. @Bigpoppa10040

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Stuff like this makes me believe this condition is not permanent. Also, @LazarusRy I hope you felt a touch of peace from the relentless onslaught you’ve been going through

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Thanks man I agree I felt a rare glimmer of hope but back in hell. The game is not over. We fight on

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Autoimmune drugs? Has anybody tried any over the years???

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Yes u can search this forum and other forums and people have had various responses. Problem with blind texting is some autoimmune conditions require the correct drug, correct dosage, and some require an extremely high dosage or combination of various drugs

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