Just quit accutane: Mario

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)? USA

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)

What is your current age, height, weight? 26, 170cm, 70kg

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)? Isotretinoin

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? 100mg/day

What condition was being treated with the drug? Acne

For how long did you take the drug 5 months first round, 2.5 months second round (weeks/months/years)?

How old were you, and WHEN (date) did you start the drug? 26, Oct 2021

How old were you when you quit, and WHEN (date) did you quit? 26, Dec 2021

How did you quit (cold turkey or taper off)? Cold turkey

How long into your usage did you notice the onset of side effects? 2 months

What side effects did you experience that have yet to resolve since discontinuation?

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
Loss of Libido / Sex Drive
Erectile Dysfunction
Complete Impotence
Loss of Morning Erections
Loss of Spontaneous Erections
Loss of Nocturnal Erections
Watery Ejaculate
Reduced Ejaculate
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility

Mental
Emotional Blunting / Emotionally Flat
Difficulty Focusing / Concentrating
Confusion
Memory Loss / Forgetfulness
Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
Suicidal Thoughts

Physical
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Pain
Testicular Shrinkage / Loss of Fullness
Genital numbness / sensitivity decrease
Weight Gain
Gynecomastia (male breasts)
Muscle Wastage
Muscle Weakness
Joint Pain
Dry / Dark Circles under eyes

Misc
Prostate pain
Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Hearing loss
Increased hair loss
Frequent urination
Lowered body temperature

Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? None yet, going to try maca powder in next week

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)? I tested testosterone before using isotretinoin. Planning to test again soon

Anything not listed in the above questions you’d like to share about your experience?

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

I was on a second round of isotretinoin for 2.5 months. I had done it before for 5 months so thought it would be ok. About 2 weeks ago I noticed a complete loss of libido and immediately quit the drug. Now searching for solutions.

Hello!
Was your testosterone normal before isotretinoin treatment? If you’re going to have another blood test could you please tell us about the result? I’m going to have another test pretty soon toom it would be interesting to compare.
For me severe sides started on the 3rd round of isotretinoin. During the second round I experienced an episode of sexual dysfunction which resolved on its own in a week or two. So there’s a chance you could recover with time without any treatment.

Thank you! I know a lot of people have been dealing with this for quite some time. Hope we can find a solution soon.

And yes, I don’t have the numbers off hand but the first test was normal. I plan to get another test next week and will update you all.

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