Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.
Where are you from (country)?
How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
Google search, post finasteride syndrome
What is your current age, height, weight?
26 years old, 6’1, 82kg
What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?
What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
Various dose titrations 1mg, 1mg every other day, 0.5mg eod, 0.25mg daily
What condition was being treated with the drug?
For how long did you take the drug (weeks/months/years)?
5 months with 1 3 week break after 3 months
How old were you, and WHEN (date) did you start the drug?
25yo, started on 16th April 2021
How old were you when you quit, and WHEN (date) did you quit?
26yo, stopped on 22nd September 2021
How did you quit (cold turkey or taper off)?
How long into your usage did you notice the onset of side effects?
at first only breast tenderness, noticed within first 2 weeks. Most side effects only started post crash upon discontinuation.
What side effects did you experience that have yet to resolve since discontinuation?
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.
Loss of Libido / Sex Drive
Loss of Morning Erections
Loss of Spontaneous Erections
Loss of Nocturnal Erections
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility
Emotional Blunting / Emotionally Flat
Difficulty Focusing / Concentrating
Memory Loss / Forgetfulness
Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Shrinkage / Loss of Fullness
Genital numbness / sensitivity decrease
Gynecomastia (male breasts)
Dry / Dark Circles under eyes
Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Increased hair loss
Lowered body temperature
Other (please explain)
Insomnia, waking up after 2-3 hours every single night, can only achieve zomby sleep for the rest of the night
Premature ejacultion despite very little sensitivity and numbness
Possible fibrosis or hard flaccid syndrome, need confirmation from urologist
Complete loss of Sebum production, dry skin, ear wax production, mucus production (no bogies) and dry mouth (particularly at night)
dental problems, receded gums, tartar build up, sensitive teeth
Thinning body hair and lightened body hair. particularly noticable in beard
What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
Short term promathazine and zopiclone for sleep. neither helped much.
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?
Pre and 7 days off blood tests reveal lowered total and free testosterone, raised oestrogen, lowered LH and FSH (in bottom end of range) have not done further tests yet.
Anything not listed in the above questions you’d like to share about your experience?
Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
Hello everyone, after lurking on this forum an awful lot I decided it was time to make myself heard as I am coming to the realistaion that I am likely in this for the long haul. after nearly 4 months since I stopped Finasteride, my condition has only progressively worsened.
I believe I am a severe case of PFS, I seem to have developed nearly every symptom I read about on here, new symptoms keep developing and nothing has improved at all. I have gradually descended in to a completely non functional human, to the point where every minor task is a struggle.
The first most severe symptom I experienced since I crashed is the Insomnia. I can only manage 1-3 hours every single night for 4 months, no matter what I do. for the rest of the night I can only get that extremely light zomby sleep which sometimes include very vivid dreams. I’ve been on 10 mile hikes, Heavy gym workouts, I can be absolutey exhausted to my bones, but will still wake up after 2-3 hours every single night. I have integrated sleep hygiene measures as well, but I believe severe sleep disorder is completely behind anything sleep hygeine can solve. I’ve tried promethazine and Zopiclione. Promethazine didn’t work at all, and zopiclone only gives me an extra hour or 2 and I feel physically more exhausted and depressed the next day. I use magnesium glycinate, I’ve tried valerian root, L-theanine and chamomile tea. All have had very little effect. L-theanine does work to soothe my anxiety somewhat though.
I think the thing that is preventing any recovery for me is by far the mental/neurolgical effects. Complete anhedonia, absolutely zero enjoyment from anyhting I used to enjoy, I feel like I’m losing my personality. I am in a constant state of anxiety, mainly from the sheer terror that all this could be permanent. I have zero drive/motivation to do anything at all, even for leaving my bed to take a piss. on a good day I can force myself to go for a walk, light workout at home or in the gym, go to the shop and cook myslef some food. However I feel zero reward from any of this and on the worst days I will struggle to get out of bed at all. I know anti depressants are dangerous, but there must be something safe I can use that will help me to get to a place where I can form helathier habits.
I have all the sexual symptoms. zero libido, veiny fibrotic penis, shrinkage, even reduced pubic hair growth. I am not completely impotent, but erections are much harder to achieve, are weaker and I have prematue ejaculation during sex (never had this problem in my entire life). reduced, watery ejaculate, reduced orgasm and bad numbness. I am lucky to have a supportive girlfriend, although as long as I am in this mess, I’m not sure how much more of all of my hopeless despair she she can endure.
for the first 3 months I followed the advice of wait it out, I didn’t want to intervene medically and was hoping for some natural improvement, however everything has progressively gotten worse. I need some sort of intervention, at least for the sleep and this debilitaing, despairing depression. It seams like for every post I read on here of something helping, there is someone else who got worse from it. There is such an abundance of information on here that I found myslef totally overwhelmed every time I search for treatment options. I am just really struggling to decipher what is a good idea and what is not.
After 4 months, should I still wait for natural improvement? Is implementing protocols like CDnuts a bad idea? Should I be pursuing HRT, TRT? I just don’t know where to start. I feel like I don’t have the strength to implement all these diet changes, prepare all the food, stick to the workouts. I have been a passionate gym goer for years, heavy barbell lifts, full body workouts 3x times per week and consistent. Now I am only getting weaker after every workout, I can’t recover from heavy lifting anymore and have lost so much muscle.
I am truly amazed at the strength of some of the members here who can keep going despite this debilating disease and continue the fight.
Please someone help me, I need to work out what things are safe for sleep and depression as a prority. At least if I can improve these somewhat it might become easier to tackle the other things.
I’m afraid I don’t have much to offer here in terms of theories or ideas, just a desperate young man asking for advice.