I have the same but this is not a disorder. It can be fixed.
Before you take anything, check your hormones! You wouldn’t want to take DHT cream if you DHT is out of range high, also check really good how the other meds, you are being offered to try, are affecting the body as you might have really low E2 which results in join issues and the medicine you tend to take lowers the E2 further, which can fuck you up further, but you wouldn’t know it if you don’t run the tests for that…
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Thank you. I was just about to ask about needing prior bloodwork to messing with exogenous hormones. Androsterone is also a potent aromatase inhibitor so wouldn’t that potentially cause serious worsening of joint pain?
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If you have really low E2, you might end up like QuantumFaight, RIP. Messing around with the hormones, especially when you already have PFS, could put you in the grave. Be careful what are you doing and do your research prior taking anything, or consult with a doctor who knows what is about, more or less. Don’t take any advice on this forum as granted because a lot of people here think they know what is about but they don’t know shit about this condition if you ask me! So, yeah, run your tests before taking anything and God bless you!
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Wanna keep this thread alive to ask how people are managing their joint pain besides taking exogenous hormones.
Lots of things seem off the table for us. Thinking of trying glucosamine out. Is collagen at low doses tolerable for us?
I’m currently on collagen peptides and it does appear to be helping. I had a persistent knee ache from a previous injury and it feels better. My achy elbows are also less troublesome. That said, collagen seems produce temporary nervousness, depression, and soft frequent bowel movements. I looked it up and it turns out it does so via blocking tryptophan conversion to Serotonin. Lower doses (sub 5g) seem to do the the trick.
There’re other potential causes for joints pain including low estrogen and increased inflammation. G’luck @Mercked
Thanks. There’s no way for me to check my estrogen levels at the moment. Maybe it’s inflammation secondary to low androgens in the tissue. I developed intense shooting pain in my knee from squatting with really light weights. Seems like my joints can’t take on any weight at all.
Are you taking this one? I am curious about taking collagen, but stories of people having gotten worse or permanently worse from taking collagen supplements have me scared. @Ozeph, @Dknighten, @LazarusRy
I use vital protein collagen on Amazon, which is of similar price and ingredient list to the one you linked. Collagen peptides and gelatine are both collagen products but it’s said that collagen peptides are the more digestion-friendly form. I consumed bone broth for a while but stopped due to its high lead content (there’re studies done). Didn’t want to risk lead toxicity.
If you scrutinize the typical amino acid profile on the back, you’ll notice there’s zero tryptophan (precursor to Serotonin). About 70% of Serotonin is made in the gut and with low levels, one would feel depressed/anxious. Like I said, I can tolerate doses of 1-5g/d. Any higher and I feel like crap. I’m also using it becauee glutamine, proline and I think threonine are necessary for repairing gut lining.
@Mercked
@Mercked I was taking collagen daily approx 3 years ago and I was pretty good physically. Unfortunately if i try it now I get stomach issues, a brief uplift in muscle tone and wellbeing which is then followed by what I deem as a mini crash. I’ve lost a significant amount of collagen in the last year and can only assume my receptors have become very sensitive to it. It may help you give it a try sparingly. If you haven’t suffered collagen loss you may be ok. Just my take on it from personal experience. Good luck
Very sorry to hear that. Where have you lost collagen? How would you describe your mini crash and did you make a full recovery from it?
IMO, don"t take collagen, especially collagen peptides which is really too pure (like sugar is to carbs). With it,some people have gone worst to the point of ending it. Those things like collagen peptides, BHB peptides, butyrate salts, they don’t exists in nature. They’re too concentrated.
You seem in pretty bad shape and in my opinion, you would need an all natural diet before even taking bone broth or gelatin (both are milder forms of collagen)
However, if you can manage to become ketogenic, it’s really very good for the joints, the digestion and the brain. I know, I know. I keep repeating myself but it got me rid of most of my symptoms.
@Mercked it’s similar to a full blown crash but I they lasts days then I return to my shitty baseline. Unfortunately I get these quite often from food alone
I never had any lasting negative effects from taking collagen or bone broth. Around a year ago, i did have a strong reaction to the hydrolyzed collagen by Great Lakes and I have no tried it since. Brain fog/derealiation skyrocketed, anxiety, dilated pupils, trembling, and digestive instability. It resolved back to “PFS baseline” shortly after.
I developed a pain in my left heel. Can’t walk much. Doctors are clueless. My friend told me it could be osteoporosis
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Ive got exactly the same I get bone pain everywhere the heel being the latest part. Menepausal women get this, it’s also causing our skin, collagen issues and linked to estrogen. Osteoporosis being one of the many consequential conditions
Have you considered getting a DEXA scan? I too had terrible pain after my crash from accutane.
I decided to get a DEXA scan and my Z-Scores were terrible for my age (early 20’s). Osteopenia in both femoral necks.
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Yeah, no more pain really. I haven’t got a DEXA scan in about 5 years, but last time I checked my Z-Scores had minor improvements.
I suspect I’ve had some more minor improvements in these last 5 years.
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That’s good to hear man. Slight upward trend
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@09eric09 No I didn’t ask, and even if I ask my GP won’t do it for me. They referred me to physio which is time wasting. But thanks for giving me this idea. I will provably go privately for that scan