It never got better for me.

About 7 years ago I quit taking Propecia and Dutagen (in combo then in isolation) to save my hair line. However its lasting effects have crippled my life.

Mainly the penile shrinkage has just crushed me, crushed my life and confidence. I don’t know how to recover from this - 7 years on and nothing has changed. I am so angry that these drugs have done this and here in the UK, it is just not recognised or talked about.

My penile shrinkage is the most crippling. The severe anxiety I have learnt to manage through pacing and resting but I mourn for me cock.

Anyone else been left suicidal? I am just broken by this.

7 years you’ve had shrunken penis and nothing has changed? Did your testicles shrink as well? What other side effects do you have?

I’m five and a half years in and things have only gotten worse for me. Year after year I get worse and the side effects grow more debilitating. Every thing that makes me a man is slowly day by day being taken away from me. My penis has gotten smaller and tighter as time has gone on. When I get an erection it is so tight that my penis actually retracts not grows. I’ve just recently fallen so low the suicidal thoughts are difficult to resist. My will is strong, but my mind has had it’s limit of pain and torture, its starting to quit. I’m not one of those people looking for sympathy by saying how bad it is, I’m just really scared. My penis and testicles have shrunken so much and it feels so tight that I’m in constant pain to the point of tears. I’m now at a 1.5 out of ten.

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Jesus mother fucking christ. What am I waiting for. Going buy a firearm today. My pattern is the same at 2 years off. Fucking hopeless non relenting situation. What is this the fucking twilight zone?

I am very sorry to hear about your story. You need to understand that there are scientists actively researching PFS at two major medical institutions. You can play a direct part in advancing this research by applying for the studies. You can also support the foundation in other ways, for example by donating money. Do not give up now. The research studies are on track to publish results. And there are another two studies in the pipeline. This is a time for concerted action and hope.

If you are capable, i strongly advice you to partipicate baylor study, money will be provided by foundation. Its the only chance for solution or treatment…

Please, please don’t let my experiences scare you. There are people in our lives who love us deeply and we need to keep going not for us but for them. The last thing I want is for my pain and fear to spread to others.

If you want to learn something from my experience learn this. All the additional setbacks I’ve had over the years have been because of things I’ve used to try and fix myself. After my initial crash I was an 8 out of 10. I’ve come onto this board over the years and tried things I’ve read on here. All they have ever done is consistently have the opposite effect intended. Creatine, maca, etc all these things I’ve added to the mix out of desperation from this board have consistently made me permanently worse.

It makes me mad and concerned when I see people on this board who have been here for a mere few months coming on here proclaiming to people they found the cure and recommend to everyone to start taking this or that. They say things like “why not try it we’ve got nothing to loose”. Yes you do have something to loose, you have no idea the depths that are there.

Start eating right going for walks in the sun. Quit alcohol, caffeine, masturbation any stimulants or drugs. Guys here feel the need to take this and try that out of desperation to get better. I’ve been there and trust me that’s not the path to healing. Our bodies are overwhelmed and struggle to maintain basic healthy functions. Adding things to our already overworked systems will fuck you up.

5 1/2 yrs. 7 yrs. 10 yrs. I recently read about 14 yrs. Im at 2 yrs and worsening. You cannot deny the simple conclusion to draw from this. No hope. Time to go fellas.

I am the same as OP, scared, and westside. Two years out and no improvements (Celexa helps my mental sides).

There are undoubtedly many more suffers that don’t post here regularly with the same problem: little to no improvements over the years and possibly even getting worse.

Maybe some of you can control this problem with exercise and cycling T boosters, or whatever new vegetable eating regimen is currently in vogue, but there are many of us who aren’t getting better NO MATTER WHAT WE TRY.

If you are feeling much better within a couple years of stopping, congrats! Your body seems to be capable of fixing some or all of the damage that has occurred. Unfortunately some of us seem to be past the “point of no return” where our bodies aren’t fixing themselves. We need specific scientific intervention, if we can be fixed at all.

Go ahead and call me a “naysayer” or whatever word makes you feel powerful, but you don’t know what has happened to me. You can’t tell me that what has worked for you will work for me. Obviously, not all things we put in our bodies affect people the same; otherwise, we wouldn’t even be here.

So, if you still want to say PFS is “easy” or “not that bad” then you can eat a fat dick. For many of us, this is a significant struggle that has lowered our quality of life so much we consider suicide daily. And fuck you if you think these guys aren’t “trying enough” or are “lazy.” Might as well go spit in a quadriplegics face and tell them they can walk if they try hard enough. In short: stop judging others.

Thank you, however, to those who are actively supporting the studies and to those who are positively supporting others in efforts to improve the symptoms of this fucking horrible condition.

My digestion is horrible. I shit my pants this morning at work. Humiliated I ran to a bathroom and had to remove my underwear and clean myself. I had no warning. Im 25 living like a fuckin geriatric with a horny healthy roommmate who tries to drag me to hooters to look at tits. Im telling you im done with this life boys. When you live in misery every minute youre awake its not worth it anymore. My family will understand my pain.

I’m with you, but we have to wait for the studies. Hopefully we can at least get enough data to create a plausible treatment protocol.

you’re only 25 man,you’ve got time on your side,chances are a treatment will be sorted out before you hit 30,thats many years of lusty sex ahead of you,it would be crazy to end it now when a treatment could be within touching distance,i was 32 when i crashed and im now 39,all those years lost,but i never lose hope that one day ill be back to normal,you’ve just got to make the best if it for the time being,im not trying to make light of it,believe me ive been hit very hard by pfs…

I can relate to your post Rogue.

I’ve also felt broken by what has happened. Mentally I’m now much better than I was, although still difficult to redefine my life with this unexpected and unwanted deck of cards. Although I can’t advocate anti-depressants for anyone else as they have their own side effects, they have helped with managing my own anxiety, and my obsessive preoccupation, anger, and sadness with what has happened isn’t like it was and is much more contained - kind of boxed to an extent rather than preoccupying every moment. You are grieving what’s happened to you and what this drug has done. This to me seems a pretty natural response to something so unfair, unnatural and unexpected. Some guys have reported improvements with regards to their penis size. I try not to dwell on what has happened to my own penis - it’s as if it’s a different dick - but it definitely has a fundamentally detrimental effect on your confidence and this new life we find ourselves not leading as we’d want. This fucking sucks, but managing my anxiety to an extent has helped as it can really eat you up.

Still your fellow Brit,

Scotsman

As Scotsman says, things will be easier if you can try to find a way to get any anxiety under control. I agree that it’s like a grieving process. But if you can hang onto the hope that there is research being done, and there are more studies in the pipeline. This isn’t the time for giving up.

Thanks for the replies and sharing. I didn’t realise what my weird life symptoms were linked to until I literally read something online before posting.

I lost track of my history when I posted and I actually started retaking in 2009 and then quit again. This chronic, debilitating anxiety came from left field and I kept wondering what was causing it. My doctor said I had GAD (Generalised Anxiety Disorder) and that was it. I had some antidepressants for a while but then they made me fat and I felt worse.

I just cant believe that I did this to me!!! My own stupidity! I leapt to take these drugs because I feared for my hairline and it cost me ALOT more. Don’t get me wrong I love having hair but these other side effects have crippled the rest of my life and my chance to even have sex and enjoy a relationship.

I think everyone on this forum has probably blamed themselves - but the fact is it is not our fault we are in this position. This is due to the greed of pharmaceutical companies and a flawed system which allows them to sell unsafe products which have not been properly tested.

It’s hard not to feel isolated and helpless, but we should take solace in the fact that we are not alone and huge progress is being made in understanding this condition. The research is incredibly important (it was great to read a post from Awor earlier this year about the significance of one of the Italian studies). I think the research will pave the way for treatments in the future, but this clearly won’t happen overnight.

Anyway, I just wanted to post this as a rallying cry for everyone to support the research and - just as importantly - not to blame themselves.

Davey

please, try my diet protocol. it will help. diet forum. may be a couple of months.

The Ultimate diet its coming soon.

Water fast for a few days, while taking a tea spoon of coconut oil or oregano oil and probiotics every day. Keep the probiotics after breakfast.

have anything to lose?

Did you also experience loss of libido and loss of erection. If it is only penile shrinkage, i am envious.

I have all the symptoms above and i have been searching for cure for 2 weeks, this is the closest forum to find a cure. It is hard but please continue to be patient, i am only 27 and i know there are people much younger than me here.