It is a want advice

Member Stories
#1

  1. Where are you from (country)?
    Jp

  2. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
    Google search

  3. What is your current age, height, weight?
    35

  4. Do you excercise regularly? If so, what type of excercise?
    No

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?

  6. Why did you take Finasteride (hair loss, BPH, other)?
    Hair loss

  7. For how long did you take Finasteride (weeks/months/years)?
    3 months

  8. How old were you, and WHEN (date) did you start Finasteride?
    33

  9. How old were you when you quit, and WHEN (date) did you quit?
    33

  10. How did you quit (cold turkey or taper off)?
    Cold turkey

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?
    Other generic

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
    1 mg

  13. How long into your use of Finasteride did you notice the onset of side effects?
    1 months

  14. What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
[x] Loss of Libido / Sex Drive
[x] Erectile Dysfunction
[ ] Complete Impotence
[x] Loss of Morning Erections
[x] Loss of Spontaneous Erections
[x] Loss of Nocturnal Erections
[x] Watery Ejaculate
[x] Reduced Ejaculate
[x] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[x] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfullness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[x] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[x] Suicidal Thoughts

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[x] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
(X ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[x] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[x ] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

  1. What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

  2. If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?

  3. Anything not listed in the above questions you’d like to share about your experience with Finasteride?

  4. Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

I’m sorry

I do not know much English.

So I am using the translation function.

I think it has become the language of the Potomac.

I want advice.

Thank you in simple words.

#2

I am in Japan.

There is no information of side effects in Japan.

Japanese doctors do not know about side effects

I quit finasteride two years ago.

#3

Hope Want,

I’m sorry to hear you are suffering from this poison as well. Currently, there is not a consensus on how to treat this syndrome.

The United States has two studies that are currently being recruited for. Hopefully, when these studies are complete, there will be a clearer idea on how to treat us.

If you can, please sign up for them. Here is a link to the PFS Foundation website describing the studies:

http://www.pfsfoundation.org/news/doctors-recruiting-pfs-patients-research-studies/

Contact for BWH:

Allen Papazian
apapazian1@partners.org
(617) 525-9197

Good luck Hope Want,

Matt

#4

I was two years.

No side effects are improved.

I wonder should blood test?

However, there is no cure this disease.

I’m wondering what to do

Please advice

Thank you

#5

I suffer from insomnia.

Wake up from sleep many times.

The side effect of this wonder improve.

#6

Only reason why I am awake right now is because of this stupid drug. You have not seen sleep improvements in 2 years? Have you been using sleep medication? Some have been able to improve their sleep with Ambien or Remeron. Have you had any improvements in the last 2 years?

#7

Hope Want,

In Sweden and Europe, Finasteride/Propecia now has official warning in medicine label: causes sexual problems. This is all real, you are correct and it is not your imagination.

Here in this forum, we all know it causes many more problems, including insomnia.

Do not lose hope, do not give up!

Most doctors cannot help but there are many forgotten tools like Acupuncture or Water Fasting that may help you. I know it sounds crazy but this has helped me.

To help insomnia:

  1. Do not drink eat or drink
    *alcohol or animal milk
    *breads
    *grains other than rice
    *any sugar, eat fruits or honey instead.
    *soy or tofu if possible.

Read ingredients of foods in market. If it has any of bad food I said, do not buy it.

Make your own food if you cannot find food products. Eat pure real food. This has helped many here in PropeciaHelp.

  1. Order and try any of these from jp.Iherb.com. Take 1 pill before sleep.

http://jp.iherb.com/Bluebonnet-Nutrition-Chelated-Magnesium-120-Vcaps/21160
http://jp.iherb.com/Now-Foods-L-Tryptophan-500-mg-120-Veggie-Caps/13859
http://jp.iherb.com/Now-Foods-Melatonin-3-mg-180-Capsules/328
http://jp.iherb.com/Now-Foods-GABA-500-mg-100-Capsules/605

Do not use melatonin or GABA every night. Be careful of JP customs if using Iherb.

  1. If these do not work, try this but do not take every night. Take 1 pill before sleep or when weak.

http://jp.iherb.com/Thorne-Research-Adrenal-Cortex-60-Veggie-Caps/18706

  1. If this does not help, you can try ask a doctor for Ambien or Remeron.
  2. If nothing helps, try to do a Water fasting to fix insomnia and other problems as well. It has similar idea as Muslim Ramadan: you do not eat but only drink water, until after many weeks your hunger appears again! There is a lot of books about it and information in English about Fasting.
  3. Acupuncture might help symptoms as well.

If you want blood test to prove doctors, you need to test at least hormones LH and FSH. Almost everyone here has problems with these.
http://ja.wikipedia.org/wiki/%E5%8D%B5%E8%83%9E%E5%88%BA%E6%BF%80%E3%83%9B%E3%83%AB%E3%83%A2%E3%83%B3
http://ja.wikipedia.org/wiki/%E9%BB%84%E4%BD%93%E5%BD%A2%E6%88%90%E3%83%9B%E3%83%AB%E3%83%A2%E3%83%B3

I hope this helps you, my friend from JP. It must be lonely!

There must be other finasteride victims in JP, find and talk with them. They might know something that helps.

You can find much more information about treatments if you know english, the language of the Potomac. English is not my first language either.

Good luck!

#8

Advice Thank you.

I was a water fasting three days.

Is not enough in three days?

I can sleep 5 hours.

I might have improved a little.

However, I do not improve at all sexual side effects.

Side effects I wonder be improved a little over time.

I feel that has deteriorated to the sexual side effects

I am anxious

#9

I did not sleep yesterday.

I became a depression.

I’m always tired.

Not fun.

#10

Does this side effect will become worse over time?