isn't it a pity?

General Discussion Media & Awareness
#1

it truly is a terrible shame

we are stuck in what we all know is just an awful, awful situation, and we all know exactly what caused this situation … our use of finasteride

the troubling thing is, it seems we do more bitching at one another than banding together, which of course will accomplish absolutely nothing … this is unfortunate, because there are a lot of very intelligent people here

there is bickering over many things, mostly theories as to “why” we have these permanent finasteride issues … for example, some people grow angry when things like digestion are discussed, and others grow angry that someone would question this in the first place … personally, i do not believe that digestion or candida etc. are the ROOT causes to our issues, however, i do believe that treating our bodies as if we do have these issues may actually make certain aspects of our problem a bit better (i.e. having an extremely healthy diet and avoiding sugar and processed junk food etc.)

we argue about a lot of things really, and i am certainly not perfect either. in fact, a member recently suggested our issues were caused by “stress”, which pissed me off beyond words for obvious reasons

but here is the thing … what does this ever accomplish? the reality is, all we have is each other … it is us against the world for now

my brothers, there is just too much fucking division between everyone, and if we cannot get on the same page, WE WILL FAIL !!!

you guys, we must pull together and head towards the light at the end of the tunnel … we must stop fighting about theories, or making claims as if we know what the ROOT cause of our issues are, because to be honest, that is just foolish … we need more order tot he way we do things (i.e. instead of telling people to try things and theorizing why it might be working, or why it may bring benefits down the road, we should just stick to the absolute FACTS, as in … i took this, i used this much, i took it for this long, it gave me these benefits) … lets just stick to the FACTS

the reality is, doctors do look at this site, and when they see people claiming candida or stress, for example, are causing our issues, they think we are a joke, or head cases … we all know this is real, but they do not, and many of the posts here just do not look good for our cause in general

look, maybe it is not my place to be saying this, and i am sure someone will blast me for opening my mouth about this stuff … BUT GUYS, we must get organized!!! there are too many good things happening for our cause, but if we do not stick together and stay organized, it is going to be very, very difficult to maintain the momentum … the foundation, for example, needs our support, and even if some do not agree with the exact theories being proposed by the teams of scientists, it is still nothing but a very, very good thing that research is being done … because it WILL yield results, and from there, we can keep going deeper until we find out what we need to know

guys, please, we have to stick together, stay organized, direct our anger properly, and to stop fighting each other … again, all we really have in this situation is each other, and we need to support each other and not fight, or we will lose … fight the enemy, but not each other

i am sorry to ramble, but i truly feel we need to pull together, all of us, like we never have before, i love you guys and you are my brothers … please guys, our time is now, if we want it to be

#2

very well said lennon. the last thirteen months of my life have been the struggle of a lifetime. without this website and all its members and different ideas expressed - i would have completely lost hope a long time ago.

i always just keep my eye on the fact that one day this struggle will end. and i will be an inspiration to others for having survived something so difficult. and i’ll be filthy rich from suing the fuck out of merck. and everything will be ok.

but given that every single day i struggle and have to make a concentrated effort to keep going - and knowing that virtually everyone else on this website is experiencing the same exact thing - we NEED to be supportive of each other. not shoot down anything anyone says.

as it stands right now we have NO IDEA what is wrong… so we might as well entertain different ideas while we wait for research to advance.

i thank all of you i’ve spoken to who are kind to me. keep fighting.

#3

Actually, in case you haven’t been up to date with the research updates, doctors/scientists do have an idea what is going on. And they probably know more than what we have been informed of at this point.

#4

YouBet with iodine
Tryingnottoworry with spinach diet
IHatePropecia702 with Probiotics and Nystatin
Solonjk with Prostate Massages

No one knows what the true motivations are for the “I figured it out!” people but they’ve had a huge impact on this community. Maybe it’s an ego thing. Holding a PFS fundraiser with a carwash would be more productive than aruging over the validity of these “recoveries.”

#5

true. however even if they have an idea of what’s going on - they certainly haven’t devised a cure!! so - alternative remedies should still be welcome at this point.

i don’t necessarily disagree with you. but members claiming they have the “cure” brought you to where you are right now SA. we certainly shouldn’t argue over the validity of such claims - instead we should welcome them because at this point in time (without a definitive cure) they are the only thing that offers promise to some of us. what should we do instead - shut down the conversation until a smoking-gun cure is discovered!? please.