Idk why it seems like I have not been making efforts. I have tried time and time again in this same thread to convey that I have been trying to get in toich with people.
I have met the head of endocrinology of AIIMS in India, the absolute best hospital in the country. I have tried to get in touch with the director of endocrinology in NIMHANS, the top institute for neuroscience and mental health. I have contacted people on Fb groups. I have pursued online consultations. I have talked to doctors my orthopedist uncle found out. Nothing has worked out. I have met so many doctors, 20 minimum off the top of my broken head . If I had been able to make progress I would have posted that instead.
All I want is for US to come together, contact a research team and proactively diagnose, eliminate and zero down onto all possibilities slowly so.we can lay off the same speculations that people have had no choice to but to repeat over the last 2 decades.
If we are able to get a team together. Everybody here can participate instead of feeling despair and feeling useless.
In every thread, Im sure you ll have seen, people post â we need to do a proper study on thisâ. Its always been â we need to doâ or â there needs to beâ.
Lets do the needful. Lets get it done now, instead of waiting. Im not talking to a single person here. Im talking to everyone who is reading this. Lets come forward now guys please.
We dont have passive visibility like cancer or aids.
Nobody gives a fuck about us. We need to make active efforts to get people to pay attention to us.
Please try and find someone who will listen or someone who can tell us someone who will listen. If every person here gets up and tries to get a research team or a doctor or anybody who can help us, I am sure we will be able to find one.
Please donât think someone else whoâs reading this message will do it. Its been decades and no one hasnt.