I’m just wondering if it is really permanent or only lasts 7 - 10 years?
I’m pretty much were I was 6.5 years ago
My brother and myself (we both have PFS) have made 0 progress for 4 years. Even though that was not your question (you asked for 7+ years), we are convinced that we wont be making any progress when it comes to PFS in the future (unless treatment is found by real scientists). Of course we are open to positive surprises.
I crashed in 2007 and still have PFS. The last couple of years have been fairly decent considering the condition, much better than after the initial crash although far away from normal. Unfortunately, for some reason I had somewhat of a crash a week ago and depression is back. I hope it will subside…
I’m where I was about 8-10 years ago.
Just passed the 13 year mark. I have made progress, although none sexually.
I hit 10 years this year (2018) . I’ve gotten worse after the 5th year.
I am 10 years in PFS
i crashed 2007,at the minute ive been experimenting with trt,testosterone gels,without the trt I don’t have much energy and get tired easily,the gels give me loads of energy but I feel a bit erratic…
In 12th year, have not recovered sex drive and still have ED. Most other symptoms have recovered though.
I’m about to hit my 8th year with PFS. Definitely not in the same shape as when I first crashed but still have all the sides just less. Sides persisting are: insomnia/bad sleep (its better but I don’t think I’ll ever wake up again feeling completely rested like I used to prepfs), no/low libido (weed and extreme exercise sometimes makes me horny though), rare spontaneous and night time erections - occasional morning erections, ed around new women not during masturbation but they are often weak, small ejaculations, occasional dull orgasms, tinnitus although becoming less noticeable, brain fog especially after drinking, rare muscle twitching, rare alopecia areata in beard, occasional anisocoria, bad night vision, joint cracking, long healing times (takes months for a cut to fully heal), occasional cold dick and balls especially after exercise, frequent penile shrinkage/ball discoloration, frequent rashes on inner thighs and buttocks (believe its fungal related), can-dida on tongue which causes bad breath and won’t go away with numerous diets and nystatin, gum loss, and what I’m becoming more worried about is frequent heart palpitations, pain in what seems my heart but is a condition known as chondritis (found out after going to the ER thinking I was having a heart attack - got a lovely $6,000 bill for a simple chest xray and ekg that took 10min to do but they made me wait 6 hours for it). Then there’s the permanent emotional side effect of feeling everything less - never feel too depressed or happy - just zombie like as people refer to it here. No sense of place - aura of a place is lost. I could be hiking mount Everest or siting in my office and it would feel about the same.
Imho I don’t think anyone’s recovered from this disease - those who claim they do either weren’t as severely hit as the rest and get used to their sides with time. I’m getting really tired of worrying about if I just live like a saint for 2 years only eating raw or some weird diet, I’ll get better. I’ve been trying to do that more or less but we all need social lives which requires drinking alcohol or eating bad. I want to try cdnuts protocol (and I’ve been doing a less strict version of it for years) but I’ve followed cdnuts when he was first on here and he really never admitted to having all the serious side effects we had. I don’t think he’s a fraud - just don’t think he had the disease like I did where I literally felt like I was dying for 3 months with 0 hours of sleep when I first crashed.
Very little progress in 8 years
It’s been almost 6.5 years for me, and as far as libido is concerned, there has been no progress.
Habe you tried any protocol? Prog / Ru protocol?