Interesting Article re. Chronic Fatigue from the Atlantic

General Discussion
#1

I thought this was generally some good reporting from the Atlantic on Chronic Fatigue Syndrome. High-level takeaways:

  • There are very few clinical specialists who are knowledgeable about managing an increasingly common condition.

  • This is a patient community who is frequently gaslit because medical professionals aren’t well educated on the condition.

  • COVID, and in particular the symtomology of long covid, is helping shift the paradigm on ME/CFS in a positive way

Because CFS has similarities to PFS both in its symtomology and patient community (i.e. getting gaslit, not well understood) I thought this was a good example of how the narrative around obscure conditions & diseases is starting to shift in our favor.

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#2

It’s good to encourage debate and to share interesting articles, but perhaps you ought to say something as well as give the link.

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#3

Had such shifts already occurred, the medical profession might have had more to offer COVID long-haulers beyond bewilderment and dismissal.

Yeah where’s the false hope and quackery.

ME/CFS specialists are working to disseminate their hard-won knowledge.

Ah, there it is.

#4

sure, sorry I updated the topic with some of my thoughts on the article and why I thought some might find it relevant to our community. generally speaking, I thought it was a positive and well-written article.

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#5

Sorry for being snippy with you, I think we all get so much information pushed at us that we need to make it as easy as possible for people to get to the info that we want them to look at and will benefit from.

I agree that the article is worth a look, I also think that a number of conditions will eventually be found to be overlapping in some way, as well as the way they are regarded at by the world, so it’s good to keep tabs on other big picture stories that may or may not seem immediately relevant to us.

Thanks for updating your post.

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#6

Have they come up with any new treatments for CFS ?

#7

They don’t really discuss that in this article. they just say there are ways of managing the condition, through lifestyle changes and some “simple, inexpensive interventions that can be done through primary care.” But that adequate care relies on finding a specialist who knows what they’re doing, of which there are very few.

I know in the U.S., some healthcare systems have begun to establish different clinical protocols for treating long-covid-associated fatigue. But idk what the success rates are like for that.

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