it seems to depend on who you ask around here. my symptoms don’t really fluctuate and haven’t at all over the last thirteen months. the only difference between now and 13 months ago is that the panic attacks went away and the brain fog got worse.
some say they fluctuate… others don’t.
what do you mean don’t really? So they do the slightest or they don’t at all? Don’t at all would obvioulsy be the same sexual, physical, mental status each day. Zero change etc.
Many feel better and then worse. this might be due to many reasons.
please talk about anti bodies.
So if I am going to order these tests through labcorp, Is there a specific test grouping that I can order…like all the tests in one group, or do I have to add each individual test to the cart? thanks
I tested positive to EBV, i am slight above the range. Doctors didn’t say anything about it
if i am feeling good the sides get better,if i am feeling in the shitter then the sides get far worse,at the minute im right in the shitter,chronic fatigue has returned,depression,anxiety,sexual problems worse etc etc,all because i havent been exercising for a few month,for me exercise makes all the difference,soon be back on it with a vengance at the start of february,2014 is my recovery year i can just know it… 
Anyone else had these tested yet just for comparison?
I got these results in my latest round of blood tests:
Borrelia IgG 6.8 (N) UA/mL ( < 10)
Borrelia IgM 0.55 (N) indice ( < 0.9)
Borrelia is a bacteria associated with Lyme disease. My doctor’s comment about the results was “not totally reassuring” - although the results were within the normal range, he felt they still indicated some exposure to the bacteria, which could have had some long term effect.
I really wish more people would get these labs done. So far every person that has, has had high levels. At this point in my PFS-life, this is the only labs that is consistently coming back high…and I’ve probably had over 300 different individual labs done.
Check out the screen shot.
Get cured mycoplasma and lyme - check for coexisting Lyme diseases. Best
This is very interesting. HSV1 may be the problem
I got my hands on some valtrex and it absolutely slayed my brain fog and emotional blunting. I got so emotionally attached to actors in tv shows I was literally yelling at the TV set
Unfortunately I had to quit because my colitis went bonkers
So what causes PFS? Does it weaken the immunity system and allow HSV1 to take over?
Scientists are saying now that altzheimers may be caused by HSV1 and maybe chronic fatigue syndrome as well
How do you go about testing for these viruses
I would like to test for them
Look what I found
http://simmaronresearch.com/2014/11/drug-combo-pridgen-antiviral-fibromyalgia-trial-identified-results-available/
Some doctors have successfully treated chronic fatigue syndrome and fibromyalgia with a cocktail of antivirals and anti-inflammatory drugs
Since pfs and chronic fatigue syndrome/fibromyalgia have some things in common maybe this “cocktail” of drugs could work for us?
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I initially went to my Dr for the following.
• Valtrex 1g 4x a day, for 12 months = EBV, HHS-1, VZV
• Valcyte 450mg 3x a day for 12 month (1 daily for 3 days, then 2 in AM, 1 in PM) = CMV & EBV
• Azithromycin 250mg daily for 2 months = Chlamydia pneumonia, Mycoplasma
However she was being difficult, so I ended up just doing the following…
Colloidal Silver
Monolaurin
Coffee Enemas
Probiotics
Enzymes
Diatamaceous Earth
Tree of Life Purify (This purged parasites, but has 5ar inhibitors in it, so towards the end I was feeling bad and happy to go off)
Mimosa Piduca
Binders (Psyllium, Activated Charcoal, Benonite)
Lemon Water
Epson Salt Baths
Sauna
I added these in slowly and ramped up each slowly due to major Herx reactions.
I have purged out crazy amounts of parasites I never thought I had. Candida, Ascaris, Flukes, Tapeworm segments, biofilms, and who knows what else. Its slowed down a bit lately after a few months but I am still getting things out. Mimosa Piduca right now is getting a lot of biofilm out.
I have not retested my antibodies, but I know for a fact they are decreasing because my symptoms are improving and I have not had a cold sore tingle since I started this protocol. Prior I was getting the feeling of one every other week.
Resources you will want to read:
https://www.holtorfmed.com/download/chronic-fatigue-syndrome-and-fibromyalgia/Infectious_Causes_of_Chronic_Fatigue_Syndrome_and_Fibromyalgia.pdf
http://www.treatmentcenterforcfs.com/documents/MECFSTreatmentResourceGuideforPractitioners.pdf
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Habe you recovered from EBV? High Dose Ozon Therapy is very good.
In what areas do you feel better/habe you progressed while having parasites eradication?
I don’t know that I have recovered from EBV, I’d have to run antibodies test. My energy has increased substantially. I can tell that my adrenals are not overloaded anymore so my cortisol is stabalizing. Ive been able to lower thyroid dose without going cold. My erections are much better when taking Viagra now. I am recovering from exercise much faster without feeling burned out the next day. My strength from working out is actually increasing for the first time in years. It took IHP year on a simlar program to feel close to recovered, so I’d say I have a ways to go. Its only been 8-9 weeks for me so far.
THX for the reply! I have had EBV AS well. Very high level. Got better. Mytochondrial dysfunction as well.
What treatment helped you re ED progress? Killing pathogens? With the things mentioned above?
If it was hsv1 going crazy wouldn’t you break out with blisters a lot?
Let’s all get this test, this seems very promising. Any other thoughts?
I got HSV a little before I took FIN.
80 percent of the population has hsv1 do you have 1 or 2?