Important Announcement: Two Community-Led Research Projects - Please Participate

General Discussion
#122

Yes, I’m wondering how many 23andMe datasets have been uploaded?

#123

Assume not enough and that when a useful number have been uploaded that an announcement will be made. Axolotl is currently working on another extremely important project so best to leave him to that at this time.

Fyi, I don’t know how many uploads there have been either.

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#124

Greek is right. It will never be „enough“ or too many. Just look at some GWAS on Pubmed. Some have sample sizes of 100k+. Since we are a small community, every contribution counts.

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#125

Sure, but just as the surveys had ‘goals’ and a moving total, it may at least be useful to periodically update the community as to how many have been submitted. A web graphic isn’t even important but just a sense of how many we have and how many we would need before a meaningful inference could be made.

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#126

is there any consideration to create “campaigns” that speed up the participation in these projects and surveys?

some sort of monetary compensation like $100 gift card prize in a raffle system?

Maybe partner with other orgs to reduce costs if thats an issue?

i mean we can think of a lot of different things that might work if these are options. it would greatly accelerate these surveys.

imagine mods of a facebook PSS and PAS group blasting everyone with “participate in this survey and enter a raffle for XYZ, selecting 5 winners” etc

i imagine there would be 10x participation and it would save us time.

a lot of people are struggling with just ordinary bills and whatnot, it doesnt even have to be that expensive.

#127

The problem with a monetary incentive is that it will make the data suspect. Many might sign up and participate only because of the payout, not because they have PFS.

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#128

are there really no legitimate medical surveys done with monetary incentives?

what about this

doesnt say anything about suspect data

#129

Was the project finished? Can I still do this?

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#130

You already took the survey bro

That’s what I was talking about

#131

Any updates on results ?

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#132

Also interested in how this is progressing.

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#133

A forum member notified us of a researcher interested in analyzing and publishing the data. I am attempting to establish communication with him at the moment. Regardless of the outcome, one of our staff members has volunteered to begin generating reports of different aspects of the data in the next couple months.

Participation in the survey remains an impactful contribution from those members who have yet to complete it.

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#134

Is the 23andme data collection still ongoing?

I’d be ready to spend the money and upload my data, but want to know if the project is ongoing or dead first.

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#135

Any updates?

#136

We have finished the 23andme project, sorry for the slow reply. It unfortunately didn’t yield anything of significance.

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#137

I have wgs data…if There will be any other study involving Whole Genome I am ready to participate…

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#138

i remember there being 2 options to study the gene data

an expensive one and an inexpensive one

did we use the expensive option?

#139

I don’t recall to be honest as I wasn’t heavily involved with the team at that time. The problem isn’t in the analysis technique though, it’s that 23andme is just genotyping, not sequencing, so it only studies a very small part of your DNA. It was always a bit of a shot in the dark, but an inexpensive and relatively quick one.

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#140

ah yes thats what i had remembered as well.

thanks

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