ICD 11 use for rare diseases. (pfs, pssd have still no entry, so no doctor can give the diagnose.)

The procedure to get an ICD 11 entry for rare diseases. Without, we can’t get pfs directly diagnosed from any doctor. The webinar is over, but the links are actuall.

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How do we get included in the ICD?

Rocky Road to Dublin (A hymn on the way to a free America 150 years ago)

While in the merry month of May, now from me home, I started
Left, the girls of Tuam were nearly broken-hearted
Saluted father dear, kissed me darling mother
Drank a pint of beer, me grief and tears to smother
Then off to reap the corn, and leave where I was born
Cut a stout, black thorn to banish ghosts and goblins
A brand-new pair of brogues to rattle over the bogs
And frighten all the dogs on the rocky road to Dublin
A-one, two, three, four, five
Hunt the hare, and turn her down the rocky road
And all the ways to Dublin, whack-follol-de-dah

I think with the results of Kiel and Tampere we could have a chance.

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