I think I’m getting the sleep the whole night but still feel tired afterwards thing
I have started a workout routine over the last week or two. But right now I’m in a really bad spot: I have being having brainfog: it can best be described as the feeling you get when you are really tired either because you haven’t had enough sleep or you’ve just finished intense physical exercise except it’s all the time.
Libido seems stable and improving a little, and I have the urge to masturbate. But ED is still there in full force, I can get a soft erection going without much trouble and a somewhat hard one with help of porn and touching. But the brainfog is really bothering me and I’m really scared it’s going to get worse.
It seems really difficult to maintain a good sleep cycle, and that’s the thing I’m primarily working on atm.
Update:
Sexual
[ x] Loss of Libido / Sex Drive
[x ] Erectile Dysfunction
[ ] Complete Impotence
[ ] Loss of Morning Erections
[ ] Loss of Spontaneous Erections
[x] Loss of Nocturnal Erections
[x] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility
Mental
[x] Emotional Blunting / Emotionally Flat
[x] Difficulty Focusing / Concentrating
[ ] Confusion
[x] Memory Loss / Forgetfullness
[x] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Depression / Melancholy
Physical
[x] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[x] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[x] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes
Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[x] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature
[ ] Other (please explain)
I’m very very nervous now, especially concerning my mental sides since I was one of those who developed it after coming off the drug. It’s not crippling for every day life but it probably is going to impair me professionally. If it doesn’t go away this really screws me over for life. Anyone can offer any insight on the mental sides developed after coming off drug?
The thing that recovered the most seems to be: ironically: libido, so now sometimes I’m just horny with ED 
Sleep have gone back to normal, I also get spontaneous (but soft) erections, same with morning erections: I get them pretty often but nowhere as close to the rock-hard I used to get.
Fuck Fin, such a bright future I had at 22: girls, professional success, but now might have all gone down the drain…
I can’t believe I was perfectly healthy just a year ago…
Hey taca,
Think about GHB against your Brainfog?! This all is very sad, I know…
But the good thing is, you see some improvements, just when its Libido and with ED its a bad combination. Sleep is very very important. Dont lose hope!!!
From what I understand guys seem to be taking GHB for bad sleep, but I have no sleep problem since the first week after my crash. So I’m not sure how much it would help.
Also, it seems like GHB has severe Neurotoxicity effects, I’m not sure if that’s something I want to risk, did other people have big improvements due to GHB?
And thanks for the encouragement
Hi,
yes, GHB might help for sleep but it also seems to help some people with brainfog. just have a look in the forum.
Sorry about this man.
I took it for 5 weeks in 2008 and since then i got worse. I started with just lost of libido mostly and some digestion problems.
Anyway I got worse.
Only short term recoveries were on anti estrogens and oone time on test.
What are you suffering from now, and did you crash?
Now I am taking ohormones.
My symptoms happens while I was on the drug. After a few weeks. I then persisted taking it for a coupole of weeks.
Right now if I am not on any hormones here are my main symptoms.
- 0 libido
- Bad morning woods
- Have to wake up and go to the toilet what comes out is not formed like before.
- Teetth have become sensitive to cold.
- I started developing bad acne on my back and butt.
- When I developed the acne I also developed bad anxiety.
- I would get serious fatigue from doing something small like going to the shops.
- I have love handles that I never had before fin.
- Started developing twitches when taking DHEA and they have not really gone away.
- My gums are receeding.
Hmmmm, it doesn’t sound too bad except for the fatigue compare to me to be honest.
Have you tried going to the gym/light exercise as a way of improving?
I think you should remain hopeful, it seems to me people with lighter symptoms tend to have better chance of recovery.
Yes I can exercise ok usually. The fatigue is fixed on TRT as is the acne. But it seems after a week on TRT i get total loss of appetite and a feeling like my stomach is totally full.
I am trying to work out if this is simply e2 as it occurs after about a week.
Got some aromasin on the way. I will do some before and after blood tests with that.
I actually don’t know if it’s a good idea for you to take TRT or other hormone adjusters.
I mean it seems like those things could mess you up when your condition isn’t too bad in the first place. Or do you disagree with that?
Well I think…
0 libido, axiety were you can not see your friends and the feeling of exaustion after going to the shop is pretty bad. My digestion is also screwed. What comes out is not formed. It is pretty bad for me anyway. It has been 4 years and I got worse. I was hoping to get better in time. My gums are receeding too. That started after about 2 years. So doing nothing seemed to make me worse. Fucking really sux. My old life was perfect.
My condition have crashed, I keep getting worse and worse, I just took a nap and woke up with full on testicular shrinkage, fucking 9 month off the drug. My penile shrinkage have gotten extremely bad too. Memory is bad as fuck and reading comprehension is too. I thought the worst was over and I could slowly recover, but it looks like PFS wants to take me to hell slowly over the years. I bet muscle wastage and man tits are just month away too. I’m not even worried about recovery now, how do I not get worse?
I have no idea what to do, is it even worth visiting my doctor for my testicular shrinkage? Fuck I want kids some day and just 5 weeks of propecia might have taken it away, 5 weeks of propecia have taken away my entire life.
It’s strange to think when I made my first post, I didn’t have it so bad.
I’ve came to terms with my sides, but every single time I do new ones pop up, it’s a complete hell, everything is going to be gone soon, maybe I should just **** Merck headquarters or something to draw attention to our cause.
Where are your blood tests?
Brainfog is caused by thyroid / cortisol issues. In my optinion.
I do not think u can find anyone here with normal thyroid / cortisol / rt3.
My current theory is that cortisol must be downreguated due to low andabolic hormones.
Too high cortisol with too low anabolic hormones would cause our body to eat itself.
So I think our body will reduce cortisol when anabolic hormones are low.
Why are anabolic hormones low? Not sure but I recovered a few times reducing estrogen or increasing test but never lasts. Boosting test fails about a week in when blood levels are stable so I guess high free e2.
I tested siliva e2 when on injectable T - Blood levels were in range. Siliva e2 was over range. All symptoms pointent to high e2 too.
You done any siliva tests? Do siliva cortisol all estrogens and test and progesterone too.
Update:
My libido is really strong these days, I have no idea if it’s 100% or not back. But lately I need to pleasure myself 2-3 times a day to keep myself calm. I feel the constant need for sexual relief. I also feel this tingly feeling in my penis/balls whenever I’m horny which I havn’t felt in a long time.
I think I still have some short-term memory problem, and have no idea if I have recovered mentally 100%. But my career/academics have improved since even pre-fin since when I last posted, so I don’t think it’s THAT a big deal to my life.
the thing that is still a big deal is of course ED, no idea what to do about that but at least outside of sex I’m living a normal life.
That is good to hear. When did you start improving?
I don’t know, Libido largely recovered within a year, I don’t think mentally it was ever that bad.
If my ED goes away somehow, barring some dramatic downturn 3 years off, I might be able to live normally in all areas.
In some ways I guess it could have being much worse, now it’s just down to ED.
I’m scared about my fertility though, but I know some PFS victims remained fertile so I’m hopeful.
Your fertility will be fine
I’ve managed to Father two kid miraculously after I took the poison, yet they may be left Fatherless if I see no improvements
Thank yourself lucky you only have PFS ED