I think now I understand why urologist don't believe in PFS

For people who lose a career, it is important to recognize it so that people get put on disability for PFS and not just depression ( still the case here but things change)…
I am very cautious as far as research is concerned…
We are still in the Middle Ages of PFS and our condition is scarce…
So many celebrities on it so hopefully someone famous will be concerned and raise awareness or offer generous amount of money to the foundation…

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Supposedly there are already celebrities who are suffering with this.

Whats crazy is that the sum of money we’d need to make a serious and significant dent in the research could be funded by a single A-lister. Though I wouldn’t wish this on anyone, with some luck someone will come forward with both a serious profile and a willingness to front some research.

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If proof is spread and made clear to fin users, there is a post finasteride « market »…
There are definitely celebrities since most of them pop it like candy…
I read somewhere that Arsène Wenger was not happy that his players are on it…
Dunno if true but…
You need the genetic lottery if I might say so…

But for now the fin advocates still are pushing their theories…
It is easier to end on a pro fin video rather than immediately get a Paul Innes story, which should be shown to any potential fin users…
THAT would make a huge difference…

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Who are the celebs suffering with PFS?

No idea.

It is 100%. Every single person who takes finasteride will develop penile tissue damage to various degrees, sooner or later. It is a biological inevitability.

Ashton Kutcher was on dut/fin but stopped and said something to the effect that his hormones were messed up for a year after he stopped.

Wayne Rooney is said to be on it.

Elon Musk must be on it, since he got a hair transplant, although Elon is smart so maybe he said no.

Brad Pitt and Tom Cruise both have amazing hair for their age!

Finally, the reputable Daily Mail claims Bradly Cooper is on Propecia… :slight_smile:

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You gotta put yourselves in the shoes of these urologists to think about why they don’t believe in PFS. I imagine it could go something like this:

I’m a urologist that has been prescribing proscar for BPH for 20 years. Many of the patients I have prescribed it to are older, maybe they had existing sexual dysfunction because of age or the BPH, and it was an obvious choice to give them Proscar rather than surgery which can cause permanent ED itself. Some guys may develop ED after taking Proscar but they’re old so the cause is very unclear, they don’t care as much as younger guys would, and nobody really connects the dots that Proscar patients could have PFS. I’ve never prescribed Propecia because that’s what dermatologist do.

Now I see younger guys coming in with PFS, they’re super angry, and none of my tests can find a cause. They’re even more angry that I don’t an answer for them and I’m not inclined to believe them because I’ve prescribed Proscar for 20 years and never had a problem. The fact that they’re aggressive and angry makes me think they’re kind of crazy so I determine its psychogenic.

I’ve read some of the PFS studies (or maybe not even because I am very busy and don’t read every boring medical study in my field) but I don’t know what to think. Due to my lack of information, I tend to learn on Merck for answers to fill in the gaps and wouldn’t think they would lie to me because that would be illegal (obviously a naive viewpoint).

That being said, I’ve mentioned this before and some of the more ambitious and ego driven doctors might get aggressive in response to PFS patients which drives them closer to Merck. They don’t think they’re doing the wrong thing but this is how they fall into that trap. I do believe that very few of these people realize what they’re doing is ethically bad. There are a few though that are shameless sociopaths though.

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What about people who never took fin but saw palmetto :neutral_face:

I disagree. It’s very important that some of us do this. Some have already. It’s not enough. Imagine if we could band together a hundred men (and hopefully some women with sexual symptoms of PAS and PSSD) to become outspoken together? It would send a powerful message. At this point we only have around a dozen people across 3 syndromes (PFS/PAS/PSSD) and it is enough to at least make a squeak.

If anyone is interested in signing up for this brutal mission:
Are you willing to go public with your story?

It will get better. I’m going on 3+ years. I got it for enlarged prostate… wish I had never gotten the poison… I’m doing a daily regimen of 20 mg of cialis…seems to help. That and vitamin A along with something to increase blood flow

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I’m one of those older guys… I explicitly asked about sexual sides because even at 55 I had a healthy sex life. I just think doctors don’t care…pretty straightforward

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We will find a solution! We have to be patient. Science is making progress every day

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I agree… in my particular case, I try to take a cialis every day…i’ve noticed that if there is um… “blood flow” then it helps me think of erotic stuff… if there isn’t, like on the days where I forget to take it…I’m like a eunuch…no interest at all… i hope there is a cure one day while I’m young enough to take advantage of it :slight_smile:

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I don’t know if I should take via or Cialis since I lack the underlying important factor: libido.
Anything erotic to me is the same as watching a cartoon…
This shit killed my desire overnight…

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They actually help even if you lack libido, as @Procar2017 notes. Daily low-dose Cialis would be a nice treatment for me except that it gives me unbearable side effects (like low blood pressure).

I also had low or zero libido for more than 2 years. Now it is coming back slowly. It was key to sleep a lot, switch to a healty diet and start cycling Tribulus. Depression is also receeding. Nature is powerful, but we have to give it the right environment

I do remember just trying to take cialis when I wanted to have sex but libido was dead. Because I have been using Testosterone patches I needed to balance out with aromatase inhibitor. But even now, if I miss taking cialis I don’t have much desire.

However, there are days now where I have to try really hard not to be horny or think about sex. Now I’m having sex at least twice a week and with vitamin A I feel it more.

Though to Aldo’s point, it has been 3 years. So I still very much have symptoms but it is a little better. At one point I was so depressed…but now I know I may need daily cialis for years…hopefully not the rest of my life but if so, I’ll do anything that makes me feel again

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Doctors are biased to believe in drugs as helpful and other stuff as harmful. Over the course of 5 years after getting every blood test in the book plus some imaging tests, not one doctor looked at my current or recent past medications with suspicion. Not one doctor. But some of them did hint or say directly that it was all psychological. Doctors feel like they cannot succumb to anecdotes and emotionality from their patients because that heads them down the road of unscientific. But slowly we are learning more now how drug companies hide data, bad data, from everyone including government regulatory agencies. And we see how doctors are so busy trying to make some money in an unhealthy private industry dominated by insurance companies, that they do not have time to even read all the many many scientific/journal articles that come out all the time now.