Recent victim here. I now know how real PFS is and how hard it is to do anything at all. But guys, we are not doing enough. I’m glad that PFS has gotten media attention in the last few years and that the PFS Foundation is funding studies. But we need much more attention.
We have the power to force Merck into a very uncomfortable position. We need to gather as many of us as we possibly can and conduct an ORGANIZED hunger strike near the Merck headquarters until they fund PFS research, with the purpose of finding a treatment as sure as possible. Concurrently, we need doctors from various fields to talk to the media and tell them that we are not crazy and that PFS is real. We need intelligent, articulate people to talk to the media when they arrive. And lastly, we need to carry through with it.
Many of us are chronically miserable during the course of our day to day lives – honestly, what in the world is there to lose by starving ourselves as long as possible outside of Merck? So we have to step out of our routines for a month or two. So what? We are miserable anyway.
If we get 300 people doing a hunger strike, and not quitting, Merck will be forced to at least respond if we get the media on our side. And this is key. We cannot allow ourselves to be smeared as crazy, unscientific loons. We need doctors and good public speakers on our side. Even if we fail, we’ll have brought attention to PFS and will at least prevent a handful of people from starting on finasteride.
We can’t sit around in misery. We have to give our lives purpose and this is a way to do it.
Please, let us organize this.