I might have kidney disease

[holyhead]

My Strange PFS symptoms also all symptoms of Kidney Disease

I have just been reading due to the massive swelling and fluid rention I have and also found that in addition to that, almost all other symptoms of pfs also relate to improper kidney function…Metallic taste in mouth which I listed here earlier, chronic fatigue, fluid gain, frequnet urination, poor brain memory function etc…I was surprised by a lot of these as it hit my symptoms right on the head…Even the breathing problems and tiring easily from the kidneys is said to be from build up of toxins …

I posted about this years back now Melcangi latest paper references kidney damage from finasteride…

[Mark2012]

Is there anything we can do to fix Kidney disease ?

[holyhead]

Baking soda helped me more than anything…But you know that some people it doesn’t help at all…I would be willing to try anything at this point including dyalysis I wished we could talk to Melcangi or someone about this.

[LazarusRy]

Baking soda blew me apart! Like everything else!

[Akiyah]

Even pre PFS I had kidney/urinary tract issues. I add a ounce or 2 sugar free cranberry juice cocktail to my water 3-4 times a day. Zero issues now. Try it. Works for lots of folks.

[LazarusRy]

Cranberry effects me too. I’ve developed an intolerance to almost everything unfortunately. Thanks anyway mate

[Crossroads]

Best to get blood tests like CBC and Comprehensive Metabolic Panel, which should include kidney function tests and liver function tests

[LazarusRy]

Cheers will ask going to A and E this afternoon

[holyhead]

How does Melcangi know this?? What to test for? Does the mods here and at the foundation have no contact or exchange of information with him??

[Dubya_B]

@orthogs

Have you had a recent blood test with ACR and GFR ratios?

@LazarusRy, Kidney function can easily be tested. The above are routine and inexpensive tests. There should be no reason for a doctor to fob you off about something so serious.

[pete]

If the doc is blocking you, get tests done privately. Find out the answer. Avoid jeopardising your health even more.

[Mark2012]

I’ve had loads of tests done on my kidneys but they found no evidence of kidney disease even though I suffer from frequent urination since coming down with PFS.

[AaronF]

Did you get an MRI as well?

[Mark2012]

Yes but they didn’t find anything.

[Mark2012]

If I do have kidney disease it mustn’t be detectable by standard tests.

[holyhead]

Well how is Melcangi detecting this then??

[LazarusRy]

We’ll, after 3 hours in A and E i was finally seen by a doctor I told her about the sever back pain and a whole host of other symptoms linked to kidney disease. After a brief examination where I displayed discomfort she told me to go and see my GP as this wasn’t an emergency. What an absolute sack of shit.

[Lostinaustin]

I mean it makes sense, if you’re not in life threatening danger you have to go to a doctor and get tests done. I assume A and E is like an emergency room in the United States. You wouldn’t go to the ER unless you need immediate attention

[holyhead]

You would have to see a urologist I have not been back to mine in about 3 years…They will just blow you off but a lot has come out since then…That’s I am asking what has Melcangi got to prove the kidney changes? I could take these papers and get a gfr tests i suppose…

Hell if you tried dialysis what’s the worst that could happen…It might make you feel better… who knows? Not everyone has these kidney damage symptoms and my pfs symptoms are more like those women who have been severely affected by Lupron than most finasteride cases.

[LazarusRy]

I went out of desperation as most Doc’s etc have just rolled there eyes and told me to jog on. I was hoping A and E (ER) might have given me a scan when I hit them with the list and pain severity. No one barring fellow sufferers has an idea of the destruction.