A while back I have written about my 95% recovery from PFS.
I know some of you get CPPS (chronic pelvic pain syndrome) after PFS. I had it for 10 years before. It made my life so miserable for 15 years. And on top of PFS, you can imagine.
I was always skeptical of all psychosomatic accusations by doctors. And let me clear: PFS is not psychosomatic. You don’t stop losing your hair (like I did while on PFS) or have a muscle shrinkage and so on, due to psychosomatic issues.
Nor is CPPS psychosomatic either. But I healed through the help of my new found god: John Sarno. The orthopedic industry hates him. He cured so many people with musculoskeletal problems including: howard stern, larry david, and a long list of celebrities who had the courage to tell their story.
I went from not being able to masturbate without having 3 weeks of pain. I avoided sex. Would wake up every single day with pain. Would sit on a heat pad. I really never though I can fully recovery within 2-3 weeks. And now I am upset no one mentioned him.
Once I had that experience, almost spiritual, I understood how much the brain can fuck up with you, on purpose.
You must believe in his approach to heal. It might heal other issues you are having, and MAYBE some of the sx of PFS. But again, I am not saying PFS is psychosomatic.
Before I get to his theory (which you can find on forums, there is also an extremely detailed recovery story on the cpps forum), here is what I did and what I think one should approach this:
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Watch the movie All the Rage. This will give you some confidence in that this guy is not a crook, not after your money, and you will hear some eye watering stories.
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Read the book. It might be repetitive. But a couple of times. I heard it on podcast.
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He has a private meditation (not sure it is on youtube). He has a couple but one of them walks you through 13 facts you should understand.
I got better, and everytime I felt bad, I listened to that audio, and would feel better within an hour.
A month later I am jerking off like a 15 y.o. with absolutely no pain.
Now the reason this is incredible is because there were so many pieces of evidence of structural problems with my pelvis. Muscle tightness. Overactive nerves. Whenever I had pain I could relate it to an activity I have done. So in my mind there was physical cause and physical effect. I would wake up with it every day. How can that happen, even when I am not stressed.
Well his theory is super interesting. But if I were you, if you are dealing with bad cpps that is, I would urge you to believe every word he says. Some might be wrong. But this whole Stanford protocol where they take 10K from you for a hope that you will get 25% better in 1 year is not worth thinking about before you give Dr. Sarno (now deceased) a chance.
His theory is that the unconscious brain is irrational. It can do things to hurt you. The damage and pain is real, it is due to low oxygen deprivation. But it is caused by your brain to distract you from your ANGER and FEAR. I started healing when I believed that. I would shout at my self, talk to my brain, say I know you are fucking with me to distract me from my emotions. Worked like a dream. Not a day of pain in 1 month.
It is sad to think that I spent 17 years dealing with this nightmare and could have saved myself had people given him more credit. Instead they talk about PT, drugs, meditation, etc. Nope, that is not the answer he gives. I am pretty confident that those with CPPS will heal if they follow these steps.
If you try them, get back to us, and let us know. You might be able to find a cheap used book, and audiobook free trial, or something like that.
The unconsious brain, according to his theory tacks the pain to the areas you are most concerned about. So if you had a minor knee incident, it will show up there. So it is not a coincidence that in our patient group, the pelvis is the place where it is easiest to create fear.