How to speak to your doctor about PFS, and why it's important: Latest blog post

General Discussion Media & Awareness
#1

Hello all,

Our newest blog post is out today. In it, we outline how to have a conversation with your doctor about Post-Finasteride Syndrome, and why it’s important that you do.

The article provides a clear framework to help guide clinical appointments and helpful resources such as our cover letter and study abstract pack. This pack contains an overview of PFS and a summary of key scientific literature which can be printed and provided to healthcare professionals.

If you haven’t reported your case to a doctor yet, or have had an unsatisfactory clinical experience, please have a read.

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#2

Great work Mitch.
Everyone should report their symptoms.
There is no reason not too.
If your Dr / consultant refuses you can do it yourself.
Despite reporting the sides myself I continued to ask Drs to this over the last 4 years and one finally submitted a report a few weeks ago. Continue to ask.
Laz

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#3

Waste of time, he said I had to walk…

#4

I will never understand why they react like that. Even my cousin prof.dr neurologist dismissed me. She told me this is depression.

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#5

What I think is the biggest problem is that the source of our condition is so controversial. Many companies and groups of people are heavily invested in the accepted safety profile of these drugs that we are vocal opponents of. To make matters worse, our condition does not occur in everyone who takes these drugs, putting our plea for help further on thin ice.

Any doctor that acknowledges our condition and its cause is essentially going against their rulebook by openly considering that the established safety profile of these drugs is indeed incomplete or outright false, which has very big (legal) implications. There are very few doctors willing to dive into the reality of how big this can of worms is.

On top of that, they would need to be able to emotionally accept the fact that they prescribed these drugs to their patients and endangered their patients with their actions, which I think many doctors are reluctant to admit, or they fear legal action against them by patients.

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#6

Great work as always!

#7

Anyone can get PFS. I used 3 times and got side effects from all. 1mg gave me side effects after 2 weeks ı stopped it side effects went away. The second time ı used half a miligram ı got sides after 2 months when ı stopped they went away again. Third time ı tried topical version ı used about 6 months they never went away…

#8

This is what I sent to my dealer back in January:

To: ‘adverse@KwikMed.com’
Subject: propecia problems

I developed post-finasteride syndrome after my last order… a metabolic, hormonal, and neurological disorder that halts androgen activity and disrupts homeostasis causing massive physical and mental degradation. People who survive this long term become permanently disabled and unable to work. Symptoms mimic thyroid and hypothalamic dysfunction but don’t respond to treatment.

You should stop selling this drug. People taking it don’t know what they’re risking…it is far beyond sexual side effects.

More info here PFSNetwork.org

I’m pretty sure this outfit tries to stay inbounds of liability so I’d guess they forwarded this on to wherever they forward all adverse reaction reports. But they still sell the poison of course.

#9

“My dealer” - I definitely found the humour in that.

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#10

Speaking to some Doctors about PFS is like talking to the wall.

It may be better to find a PFS Doctor if there is one near you.

My former GP made my problems worse and wouldn’t even entertain the idea of PFS.

#11

Not sure if anyone disagreeing with the premise of the article actually read it. This is from the sixth paragraph:

“We recommend you find an appointment with a specialist likely to be more aware of PFS. Such specialists include urologists, endocrinologists and andrologists.”

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