What do you guys do to cope with this?
I couldn’t do anything if I wanted to…disabled now…just sitvand look at YouTube basically in a chair all day cause I can’t move around much or get hot.
Also you can read the dumb comments 
from youtubers on the pfs videos, moral medicine and pfs network channels…Has anyone read this shit?
Some of the dumbest 
stuff like…u have a full head of hair!! Why take fin??? Or eat broccoli 
for a month and stand on your head 3 hours a day will reverse epigenetic changes lol…
I think it’s obvious most people don’t get even from watching those videos of severely affected people of pfs an understanding at all…What it’s like to be this sick for years…
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