Help us improve propeciahelp and PFS Network

Dear friends,

We understand propeciahelp can be an environment where patients aren’t comfortable sharing their experience or feel supported by others. We also understand it’s not the most ideal platform to communicate important updates to patients with consistency as we continue to make progress towards better understanding and awareness of PFS.

So as we continue our efforts to create a better, more helpful and supportive community for all PFS patients, we’d like to ask for your feedback.

We’ve created three very short surveys to ask for your feedback on these important topics:

  • How can we improve the culture and experience of propeciahelp?
  • What is the best way to communicate with you, and what kind of content do you want to see next from PFSN?
  • What would encourage you or your personal network to contribute more to PFS research fundraising?

The surveys can be accessed below and all responses are anonymous. They take less than 15 minutes total to complete and your responses will provide valuable insights to help inform our ongoing approach to engaging with the patient community. Your help is greatly appreciated.

Improving propeciahelp survey: https://forms.gle/ogByurPDBTiDo8ws6
Improving PFSN communications & content survey: https://forms.gle/pQesxjvSWrws7n3j7
Improving fundraising strategy survey: https://forms.gle/edzVwjusJsyz81Ys9

Thanks,
Mitch

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