I’m a bit late to the party here. Thanks for posting; IMHO this absolutely needs to be focused on.
I have been struggling with PFS for over four years, but it seems the PFS symptoms are just a part of it. I’ve experienced a severly inflamed bowel these years, especially reacting to (over)exercising, sugar/fructose, gluten, light carbs and stress, last but not least). The inflammation in the bowel has lead to prostatitis and very frequent bowel movements with loose stool and it seems that the prostatitis lead to the penile and scrotum pain I have experienced. Although, some of the pain can be plain PFS symptoms too, I don’t really now. I will know more in a short time. There is a nearly 100% certainty that my bowel problems stem from fin/quitting fin since it came immediately after I crashed post-fin.
I have taken probiotics, magnesium, anti-candida supps (GSE and SF722), l-glutamine, citrulline malate, CoQ10, Saccharomyces Boulardii as well as lactoferrin and all of them have made a difference and at times been very effective, but have not cured anything. This summer I started noticing muscle wastage and weight loss and being hungry all the time. I thought this had to be some kind of malabsorption.
I decided to try Betaine HCL and it seems to have made a somewhat breakthrough for me. I have used it for some weeks and I’m a completely different person. A lot of my personality has come back and I feel emotions and I enjoy a stable bowel/gut. So it seems Finasteride severly damaged/lowered my stomach acid production. And now you can say “really, haven’t you tried HCL in 4 years?”. And my answer is sadly enough no, because I was so fogged and scared and mentally reduced that I didn’t think about it. I probably should have gone to a gastro specialist a long time ago, but as we know, that’s no guarantee for getting the right advice either. It was the malabsorption signs that led me to try it.
I’m on a rather clean diet now. Not low carb…I eat mostly quinoa, gluten free bread and potato as carb sources. Apart from that it’s clean, mostly non-processed and home made. I don’t feel much discomfort after eating anymore. It was quite extreme before, though, and it happened minutes after ingestion.
I will be back with a proper write up whenever I have felt more or less recovered for a very long time. I still have penile sensitivity and libido issues but Nitric oxide is actually able to fix a lot of this. It’s like testo/DHT just comes online again and I find it strange. However, it’s way too early to say anything about this combo since it feels I’ve just started my journey. Before HCL it was “try anything, get some good/decent reaction and then fall down again in a matter of days or weeks”. It was like PFS in my case was something auto-immune, but now it seems not. I can also mention that my sleep has become extremely good after HCL supplementation. I actually sleep less and achieve the same rest than before fin!
As a side note I can say that too much magnesium, l-glutamine or NO can make me anhedonic. I still take 200 mg magnesium a day but I’ve quit l-glutamine since I don’t need it anymore now that I take HCL. Magnesium still works as a protective barrier against over excercising. I might be able to quit that too when the absorption hopefully recovers fully.
Today I take HCL (4 x 650 mg seems to suit me, taken during dinner), Saccharomyces Boulardii, Garden of Life Primal Defense, Lactoferrin and 200mg magnesium and that’s it. For libido and erections I take CoQ10, but I’m hesitant to even mention it since I haven’t tried it for long this time. I tried it before, but then my stomach acid was way off and it gave several uncharming side effects.
In the meantime, I wish the best for you all, my fellow sufferers!