Hello everyone, happy 2020 rare disease day!
Our condition is listed by NORD, the US office for rare diseases as “adverse events of 5-alpha-reductase inhibitors.”
I attended rare disease day a while back in Washington DC area and it was good to be around others. A lot of the attendees were health and support professionals, but there was a decent number of people (adults and kids) affected by a rare disease.
Onward with research and knowledge and treatment! Best to all.