Grey Barons's Story:

  1. Where are you from (country)?
    United States

  2. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?) Google

  3. What is your current age, height, weight?
    22 years old, 5’8, 140 lbs

  4. Do you excercise regularly? If so, what type of exercise?
    Mountain Biking, Soccer

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?
    Was on Raw Food Diet

  6. Why did you take Finasteride (hair loss, BPH, other)?
    Doctor thought it might be prostate issues(having all symptoms)

  7. For how long did you take Finasteride (weeks/months/years)?
    2 weeks

  8. How old were you, and WHEN (date) did you start finasteride?
    21, July 2015

  9. How old were you when you quit, and WHEN (date) did you quit?
    21, July, 2015

  10. How did you quit (cold turkey or taper off)?
    Cold Turkey

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?
    generic

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
    1mg/day

  13. How long into your use of Finasteride did you notice the onset of side effects?
    2 weeks after I Quit

  14. What side effects did you experience while on the drug that have yet to resolve since discontinuation?
    Experienced No Sides On Drug
    Put an X beside all that apply:

Sexual
[x ] Loss of Libido / Sex Drive
[ x] Erectile Dysfunction
Complete Impotence
[ x] Loss of Morning Erections
[ x] Loss of Spontaneous Erections
[x ] Loss of Nocturnal Erections
[ x] Watery Ejaculate
Reduced Ejaculate
Inability to Ejaculate / Orgasm
Reduced Sperm Count / Motility

Mental
[ x] Emotional Blunting / Emotionally Flat
[ x] EXTREME “BRAIN FOG”
[ x] Difficulty Focusing / Concentrating
[ x] Confusion
[ x] Memory Loss / Forgetfulness
[ x] Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
[x ] Extreme Anxiety / Panic Attacks (hard to explain)
Severe Depression / Melancholy
[ x] Suicidal Thoughts

Physical
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ x] Penis curvature / rotation on axis
Testicular Pain
Testicular Shrinkage / Loss of Fullness
[ x] Genital numbness / sensitivity decrease
Weight Gain
Gynecomastia (male breasts)
[x ] Muscle Wastage
Muscle Weakness
Joint Pain
[x ] Dry / Dark Circles under eyes
HEAD PRESSURE

Misc
Prostate pain
Persistent Fatigue / Exhaustion
[ x] Stomach Pains / Digestion Problems
[ x] Constipation / “Poo Pellets”
[ x] Vision - Acuity Decrease / Blurriness
[ x] Increased hair loss
Frequent urination
Lowered body temperature

Other (please explain)

My Story:
It all started last summer, when I was prescribed finasteride for what my military doctor thought was due to enlarged prostate(given my symptoms, but again I was 21 at the time), took it for 2 weeks stopped as it didn’t help urination issues.

2 weeks later:
I was driving to work, when all of a sudden a extreme cloud just came over my brain(thought I was having a stroke), toughed it out and worked till the end of my shift. Did not go away, so I went to the ER, where I was given blood tests, MRI, everything was normal, I was confused how that was possible.

0-5 Weeks after Crash:
I went to the ER over 5 times, cause I knew something was seriously wrong, literally felt like I had a stroke that was just not going away, during this time I had 2 MRI’s, EEG, SPECT scan(probably 3 months after), countless blood tests, Spinal tap, EVERYTHING was normal.
Fast forward to 4 weeks after “Brain Fog” Crash, I noticed that I couldn’t get a erection for 5 days straight, and was quite worried, no libido, felt like my brain wasn’t connected to my penis. So I looked up what it could be, and found propeciahelp, then my heart sank.

7 months in:
It came to the point where I knew I couldn’t live like this anymore, and told my doctor that(for some reason as he’s the one that fucked me up), they sent me to a Mental Hospital for a few weeks for suicidal ideation. Once I got out my mindset changed, and knew I have to beat this disease some how, and will either die trying to fix it, or fix it.

9 months in:
Here I am trying everything to get better and hopefully one day this will all go away. I have a lot of motivation even though living in this cognitive shift of reality, and have tried so many meds and supplements it’s crazy. Below I will share what I have tried that HAS benefited me in some way.

My Symptoms:

Extreme “Brain Fog”, feel as if I’m going into amnesia,
Head Pressure
Extremely slow visual processing(almost impossible to explain) “Wasted” Vision
Diffuse Hair Loss(never had hairless before this poison and never would have)
Erectile Dysfunction
Libido Low
Watery Semen(very watery)
Facial changes

What has Helped:

RAW FOOD DIET:
100% Raw Food Diet Has probably helped me the most, start to feel better about 3 weeks into it, lost so much weight and felt tired, so quit because it didn’t help enough

Rx HGH:
Gave me almost 80% recovery in ED, Libido,
Helped Energy Levels and General Mood
Cost me $1200 a month

Methylphenidate:
Significantly helps motivation, energy, and wellbeing

Cyclosporine:
Really helps the way food affected my brain fog, vision, ED

Diazepam:
Helped vision and brain fog

Baclofen:
Helped initially with vision, then made it worse

Modafinil:
Helps me stay awake when needed

Tianpetine:
Helped brain fog, vision

Gabapentin:
Has helped with sleep and head pressure

Glutamine:
Helped a little bit with memory and coordination

Pregneolone:
Helped a little bit all around

PQQ:
Has helped energy and believe it is a MUST for us

Sorry I took so long do do a members story, I know I was supposed to do one when I joined

Hey man where are you?

How are you getting on? Curious to know more about PCQ.

Good to meet you. I wish you the best. After research begins there will be a treatment for pfs.

@iHealth did you meet @Grey_baron anywhere

No I haven’t