Thanks man, you too!
FYI, the benefits take a while to appear. If you are going to try it, I would go dairy free for a month and see if you feel any different. I’d imagine not everyone with PFS would benefit from cutting out dairy, but it’s definitely worth a try.
Are those symptoms back or do you keep them at bay?
Dairy is important for t4 to t3 conversion and a host of other vitamins. Especially milk is fortified with with Vitamin B12 and vitamin d3. When I decided to cut out dairy I stopped cow’s milk and yogurt, cheese sour cream butter arent major contributors to my symptoms but I also dont consume it huge amounts either. I drink Almond milk now that is fortified. Definitely noticed a difference cutting out that cows milk though. lactase is the enzyme to break down dairy which people with compromised digestion could be lacking or as we get older we produce less of.
I’m going to weigh in here even though I am mostly on my way to retiring from this forum. The conversation here is somewhat off track.
I have had Celiac my entire life and have been almost entirely gluten free for almost ten years. I didn’t discover that I had this problem until a couple years after I got PFS. Reactivity to gluten cannot cause sexual problems. However, when I stopped eating gluten, I started to feel a lot sharper mentally and more connected to my environment in addition to clearing up a lot of GI pain I had pretty frequently.
There are other reasons that people may react poorly to gluten even if they don’t have Celiac, including gluten sensitivity or wheat allergy. Maybe that’s what you have. It’s a completely fine idea to try removing gluten from your diet for a period of time to see if you feel better in ways you didn’t expect, but going gluten free is not a cure for PFS.
I am certainly glad the OP has shared their recovery story. The unfortunate pattern, though, at this forum is that once every 12 months or so everyone seizes on some one recovery story (e.g., last year it was a Tribulus), and then everyone goes crazy trying to reproduce it, and about 50 guys end up worse, another year of the community making no overall progress, down the drain.
I hope this isn’t the year where everyone again tells themselves that all they need to do to recover is try diets. It’s always diets, herbs, hormones pills or injections, random off label drugs, never with any results at all, over and over the same ones tried by another generation with no results.
Meanwhile, the one certain way of getting a cure goes completely neglected — starting the scientific research. No one ever wants to do anything to facilitate the one and only thing that will ever produce a cure for PFS. For more than a decade everyone just tries the same shit over and over thinking someone else will start the research. So it never gets started.
To be clear, I think this poster’s recovery is real and that many others could benefit from gluten free as well. But that doesn’t mean gluten is the cause of PFS. We should try going gluten-free AND pursue a cure for PFS, which are two linearly independent items.
Would you day more people become better by just waiting?
I think the reduction in gluten also lead to a reduction in carbs (like those in milk). In my experience, a very low carb, keto style diet both reduces gluten and carbs, and generally make me (and others) feel noticeably better, when we can stick to it.
where that diet will help on ed?
He is not coming back to the forum, unfortunatelly.
the man was accused of making dangerous suggestions. natural not to come
He wasn’t accused of making “dangerous” suggestions, but was asked TWICE to follow the forum rules by refraining from making assertive claims to have an explanation and cure for everyone’s PFS/PAS, rather than simply explaining his symptoms and what he believes was an effective treatment in his case.
His recovery story isn’t universal. That said, increased inflammation whether its from food intolerances (ie allergens), exposure to toxins, infections, etc. may hinders one’s recovery. Interestingly, anti-depressants also happen to be anti-inflammatories.
“Antidepressants have been shown to decrease inflammation, while higher levels of baseline inflammation predict lower treatment efficacy for most treatments. Those patients with higher initial immune activation may on the other hand be more responsive to treatments targeting immune pathways, which have been found to be effective in treating depression and fatigue in some cases.”
Below link explains the science for those interested:
When you hear, for example, Mikhaela Peterson’s story, how much food sensitivities were totally ruining her life (multiple joint replacements, constant suicidal thoughts, etc) and how complete her turnaround was eliminating them, you do have to figure there’s a lot of merit to trying an elimination diet. I don’t think PFS is caused by gluten. But it stands to reason that a diet could help a lot. When you consider how wealthy her family is and how she obviously doesn’t need money, her story seems very credible. Same for OP here. It’s not as if he would make money by sharing his story here, of course, which can’t be said for some others (e.g., CDnuts).
God shut up, nobody is going to get worse from avoiding gluten lmao
@op yeah diet is huge, I for sure have an issue with lactose, I started using lactose free milk ultra filtered milk and I could actually digest it, I was over the moon, but you are right… i think digestion issues will fix once preg levels and hormones are returned to normal levels, check out your vit d lvl and cholesterol levels, sometimes they are off on ppl with pfs, check ou lt ray peat principles, he spells out hormones and food, but kind of hard to navigate with pfs since we are limited…
I’ve begun to eat gluten free and low carb (eating mostly meat). It might take me a few weeks to become certain I’ve eliminated all hidden gluten. Anyway, will report back outcome in about 3 months if I succeed in adherence. If I can, I will actually go carnivore since that would be the only way to eliminate the possibility of autoimmune sensitivity as conceivable factor.
I believe that trying to eliminate or reduce gluten is one of the things to try to improve this condition.
I think everyone here that has digestive issues as part of their PFS should definitely treat their gut FIRST. I avoided this angle for way too long and it was a hidden gem in the fight against this disease.
I don’t think the gut is where PFS necessarily begins, but gut imbalances can be a source of a lot of our symptoms and it is much more easy to address than say neurotransmitters or androgen receptors.
Here is what I found most helpful:
Low carb, no gluten, no grains, keto-style diet (like just meats, veggies, healthy fats, oils. Basically a Paleo style diet, without going overboard with nuts/seeds (can be inflammatory). Limited dairy if you can tolerate it.
AIP Protocol (90 days), then slow introduction of foods to test responses. This was awesome for me.
Intermittent Fasting (8 hour eating window).
Digestive enzymes with every meal.
Probiotics - need to be high quality and preferably tailored to the individual based on a gut biome test.
Any updates?
I seem to have celiac disease, autoimmune antibodies against gluten proteins, and stopping gluten definitely helped me feel better in many ways but didn’t cure or seemingly treat my PFS. Worth trying because there’s no risk and reduce carbs so you lose weight as a secondary consequence.