Getting worse, dont understand this!

Symptoms Sexual
#1

I first quitted propecia, because I noticed my erection getting weaker. After, I quit, my erection was a bit weaker…but I had a libido and was still able to have decent sex. Now foward about 10 months, and my erection is horrible and I have no libido. I could actually notice my erection geting weaker and weaker as time went by. It’s as if something was being blocked in my body or my DHT was slowly dying. ( also had prostate issues ).

What’s weird is when I first saw the doctor, in the begining of all this when things were better, he took my Prolactin. It was fine. I took it again about a month ago and it was high, so they sent me to do a scan of my brain and it was fine. The doc then took another test for my prolactin, it was on the high side, but in range. I also notice that I don’t lose weight like I use to, and I seem to put it on faster. I use to have a quick metabolism, but that does not seem to be the case anymore. I also noticed that my scrotum does not seem to regulate temp correctly. Sometimes, when it’s hot outside, it’s still close and tight to my body…not hanging away like it should. I was taking lexapro the same time I was taking propecia, but quit it the same time. I wonder if the lexapro may have lowered my dopimine levels? The doctor is currenty checking my Cortisol levels and reverse t3.

I’ve also noticed my joints pop a lot, they never did this before propecia. I read that joints have nitrogen gas in them. I wonder if the popping now has something to do with lower amounts of nitric oxide in my body, due to lower DHT. But, knowbody on here seems to have a problem with popping joints.
I’ve been really depressed lately, and I feel bad putting my wife through all this. If I can’t get 100% better that’s fine, I just wish I could find something that could improve my situation, instead of it getting worse.

#2

I don’t know if you’re taking vitamins, but, I think these helped me get much better. I’ve been off propecia for about 15 months. Hard to say which helped the most, but, if I had to guess, here’s the order of importance:

Liquid Form Fish Oil at least 1 tsp. (Nutrasea lemon flav. is good!)
Vit E 800-1200iu
Vit D 6000iu (3000 morning and bedtime)
Ester C 1000mg-1500mg
B complex 100mg-250mg
1 ZMA (bedtime)
1500-3000mg of GABA (bedtime)
Multi

If you can get a prescription for yohimbine hcl… that will help bloodflow to the penis. Maybe 5mg a day to start.

Not saying the above will cure you… but, I’m positive it helped me.

#3

Im taking that exact regime and feel alot better last few days. Depression is much better, shrinkage and ED is down a bit too. Libido is basically zero but it seems with alot of us thats the last thing to come back. Not nearly my pre-fin self but def feeling a bit better (knock on wood).

#4

if your getting worse and have the resources i would suggest seeing alan jacobs or romeo mariano - who have profiles in the doctors section.

#5

Golf, I would see them but cost is a bit high for me. I have pretty good insurance, I wish they took it.

#6

Boston, how bad was your erection before you started these supplements? I currently take vitiman D, B, calcium and magnesium.
I do think I need to get a better brand for my D.

#7

Some days I would not get an erection at all, even with cialis, porn and manipulation. I’m still no place near the same as I was before the Propecia poisioning. But, Im slowly starting to improve last couple days. I’ve been tricked before by “false” recoveries so Im watching things carefully. Gonna try to get back to the gym too when I’m up to it. PFS tends to be a rollercoaster of ups and downs I think for most of us. Two steps forward then one and a half steps back alot of times. Im afraid its probably a life long commitment of taking excellent care of yourself. Stay off any stimulants. Cut back on caffine if you can. I noticed my depression/anxiety decreased some as I weened off stims. Deceased from not wanting to leave the house to being “functional” mostly.

As golf said you really want to consult with Shippen, Mariano or Jacobs and have the appropriate blood tests done. No, its not gonna be cheap but its money well spent. Borrow the cash from a family member, whatever you have to do. Being that you’ve been off Fin for 10 months might be something Fin related but that is treatable. Just conjecture of course.

#8

Search recent posts regarding joint popping and joint pain. I have this constantly. If your muscles and tendons aren’t strong enough the joints can become loose and create the popping sound.

#9

You can submit them to your insurance company if they accept out of network. Or insurance should at least pay for bloodwork if you must pay for the appointment. Also, whats more important than your health?

#10

Just for the record, I have popping joints too… it’s not that big of a deal fro me though… except walking up stairs sometimes it pops and I will ahve to walk a tad funny, and soemtimes at the gym I have to adjust to it accordingly… I also have pain in my wrist for ther last while when palying racquet sports which goes away 5 minutes into a game… but then again i paly lots of computer games so my wrist is oftenly propped up incorrect.

#11

I’ve been strong for a while, but lately I’ve been feeling very down.
I have no drive or motivation to do anything. I’m 33 but I feel like am 70, with all the muscle aches and problems.
this problem is affecting my marriage and life. I see no light at the end of the tunnel.
I can’t believe my life has been so destroyed by a drug approved by the FDA. On top of that, doctors I’ve seen won’t even help, because they don’t believe that this drug causes a problem, the there is doctors that I feel try to profit from this situation. You ask them a question about sucess with past clients and they dont give you a straight answer. Im so tired of this problem.

#12

I’m with you nolongerthesame. It’s been 7 months off for me now and I am probably the worst I have ever been, no morning or nocturnal erections at all anymore, and half the time my penis feels artificial.

This whole situation is so very confusing. How can I get worse as other aspects of my life get so much better? I guess that rules out anxiety.