Tbh I think they are first trying to understand what PFS is. Getting PFS itself is rare, so they rather check the difference between us and a ‘normal’ person.
Once they understand the mechanism, then I believe its worth checking out people who recover.
However since people who do recover are rare, which is already among a rare disease, means very few participants.
My kit is in quality inspection since 11th January, is the study still in work or is it just my sample?
Please send me a message so I can check where your sample is. It’s probably been received fine, but I can double check.
How is this progressing?
Let me know if you still need volunteers / samples, I’m keen
Hey @LondonUK
Things are progressing well. We’ve started getting sequenced data in the lab and have close to 150 samples in processing. Things are ahead of schedule.
We usually make monthly updates over on the subreddit (as it’s more active): https://www.reddit.com/r/FinasterideSyndrome/comments/1cijogi/april_updates_from_pfs_network_sample_collection/
And we make the same update every month to our mailing list. If you haven’t signed up, I recommend it.
I will DM you about participating. We’ve now got over 150 samples for the first cohort and another 25-30 in reserve, so we’ve closed recruitment for now, but I can still take your details.
How far ahead of schedule could we be closer to data released
My status on Dante disappeared. There are no kits in my genome manager anymore. I never got any updates other than received and waiting quality inspection months ago.
Ci sono novità sullo studio??
Can u translate to English before posting
He asked about if there was news on the study in Italian