Hi!
Does anyone know who this guy is? He claims he had PFS, and was a member on this forum.
He wrote in a blog post about his whole story from the beginning where he took his first propecia pill till his recovery 5 - 6 years later after he stopped the drug.
Has anyone seen this blog before? What do you think about his story?
The best investment a person can make with their money is in the PFS Foundation. This is the way to gain answers about the problem and, in turn, potential treatment options.
You sound like an automated message. Whats this has anything to do with the question raised by the op?
Unfortunately, this is likely somebody from Merck or hired by Merck indirectly (PR-firm, law firm etc.) to mislead the uninformed public into believe PFS is not the fault of Merck and based on emotional problems. I would expect the appearance of these types of things to accelerate in the next 1 to 2 years and then stop as soon as the legal risk is is irrelevant to them. Does anybody know how to investigate this issue further because it could be quite helpful if we could objectively prove they’re up to shenanigans?
or a KGB agent…
You can joke if you want, but they are definitely masters of deception and in the past they have engaged in things such as creating pseudo medical journals to publish positive research about their drugs and attacking the reputation of doctors who spoke out against their drugs.
I didn’t read this page closely enough before submitting my last post, however if you look at the comments on one of the tabs a woman accuses the author of having suffered from psychosomatic illness which is the exact reaction Merck would like to evoke. Irrespective of who published this website, they have done things like this in the past and we should be vigilant of such things in the future.
Man merck doesnt even care about pfs victims. They do not pose a threat for them. Doctors do not recognise pfs and litigation has not put forward yet. Get rid of these psychedelic thoughts that you and so many here believe.
You are entitled to your opinion but PFS victims can cause serious problems for Merck. Just this week a Japanese pharmaceutical company lost a $6bn case because it destroyed documents and concealing health risks related to its diabetes drugs. The plaintiff’s lawyer has previously litigated against Merck for Vioxx and his law firm will be representing PFS patients. The more unethical acts we are able to expose the more their reputation will be publicly tarnished.
There is another thread where some “PFS patient” claimed to have recovered from our illness by taking dutasteride and his phone number was supposedly traced to the same street as Merck’s legal representation. I suggest you take a look at this and have another thought.
It has been a long, slow process but doctors in the US are beginning to recognize Propecia use may cause persistent (maybe permanent) side-effects.
These companies have a lot of money to throw around. It’s perfectly conceivable that they would spend some of it on trying to suppress news they don’t agree with. There is a wealth of small, medium and large PR firms out there who make a living from this activity. It would be naive of us not to recognise that they will be targeting the news and “problems” which are generated by this site.
Another suspect poster is “Oscar”, his story is suspect and the majority of his posts are argumentative and oppositional to what other guys are discussing here. He has nearly 800 posts. I called him out to identify why he was here and suspect he’s working for Merck, he didn’t respond back.
Merck stand to lose a LOT in my opinion. I large stack of evidence against them as well as dozens of studies, articles and professionals showing how dangerous finasteride is.
And since we all seem to experience ‘the crash’ after stopping Propecia, it is only after you stop that the full brunt of persistent side effects hit. Just imaging what would happen if EVERYONE currently taking Propecia suddenly stopped once they got wind of PFS in the news. So yes, I think Merck is actively engaged in tactical misdirection pointing to ANY other potential cause other than Propecia.
Anytime I see a poster arguing against what is known and published information, they become suspect to me.
Oscar does often take a contrary perspective to many on the forum, but in my experiences with him I do believe he is an actual PFS patient. Many guys on the forum will understandably get emotional about this topic and make statements with a higher conviction than is warranted. He tends to push back a little bit too far in the opposite direction at times.
At the end of the day, I don’t know much about Oscar and don’t yet have proof that these sketchy websites/people can be traced back to Merck but they certainly seem questionable and I really hope somebody is eventually able to fully connect the dots.
Imagine if the FDA or whoever banned Propecia. That would be complete carnage. The site would need a lot of extra bandwidth to cope with the rise in demand.
I did respond. And I await your apology.
Problem is your making ignorant posts and then just expecting everyone to indulge in and/or excuse your baseless comments.
Check the facts, try reading the research, look at the evidence- you’ll find it supports my point of view, not yours. I couldn’t care less “what other guys are discussing here” when they have less than zero evidence for their assertions. I refuse to play that silly game.
Well, I have never ever argued in opposition to published information. So I’m guessing you don’t even know what published information there is?
More proof of the crazies that turn up here. Thanks moonman1 ! glad you’re here to help viewtopic.php?f=29&t=8395#p75270
While I’m on the subject…
User towm8er claims full sexual recovery from using Andractim. viewtopic.php?f=5&t=8562#p78559
User towm8er claims reversal of all neurological symptoms after using a multivitamin. viewtopic.php?f=6&t=8775#p78882
User towm8er claims amazing sexual potency from using progesterone cream (some months after claiming full sexual recovery). viewtopic.php?f=25&t=8593&start=40#p81288
Plus many similar posts, please check for yourself. Someone with this post history does not get to ‘call me out’.
Survivingpropecia.com seems to be an attempt to discredit PFS. Look at the way it is written. You can tell it is by a professional blogger who has tried to “ham up” the writing style. It couldn’t be more fake.
Read a sentence like this: ‘There are, however, numerous cases where the patient’s hormonal tests are completely normal (with the exception of androstenediol glucuronide), a classic sign of PFS.’
Or this: ‘For me, it was never the question whether Propecia had given me those strong effects. It was clear to me, since I felt the effects for the first time in my life in the same moment I took the first pill.’
Or this: ‘Blaming others, such as Merck. By blaming others, you hurt nobody but yourself! You give away your true power!!’
I definitely think there may be more to this blog than what meets the eye. While I am guilty of this myself, I think its important to not act so certain these blogs/posts are fraudulent because it undermines our credibility. Despite how vile this whole situation is, we have to remain calm if we want to credibly persuade society how Merck threw thousands of its own patients under the bus for money. The alternative is we will be seen as crazy, inconsistent, and illogical which undermines the awareness movement.
Guys, wtf does this thread have anything to do with anything.
Oscar has suffered for years, not sure where your are getting this idea that he hasn’t
I absolutely believe this guy on the blog. He said it’s been a 5 year battle! He says he was in a bad spot. If you don’t believe him, do you beleive Chi? Do you beleive others saying they have recovered such as John Coleman?
I’m not sure what has happened, but years ago (5-6 years ago) this forum was full of more people attacking the problem, studying different angles and approaches, better theories. Now it’s become a place of people hating Merck and crying about their problems. Do any of you know how incredulous this makes all of us look who are suffering? maybe it’s the new “me” generation that thinks everything revolves around them
You only quit the drug and joined the forum two years ago but you claim to know how the forum was 5 years ago??
Personally, I have run through all of the treatments I am willing to try for now and I’m now more concerned about public awareness. I’m skeptical of recoveries based on my own experiences suffering from the condition for 4 years and not experiencing any relief.
Take a look at this blog of a ‘recovery story’. The poster was previously suggesting to patients they take dutasteride to recover from the syndrome, but it seems he has deleted the post. Somebody claiming to be the original poster reached out to a member on the forum by phone and the number was traced back to the same block on which one of Merck’s law firm’s for the case is located in Tennessee.