Finally got some progress via clomid/daily cialis/PRP/shockwave therapy

Therapeutic Efforts
#39

I’m pretty sure it was the rush of dopamine or other neurotransmitters that gave me the initial benefit from trt. EIther that or: The extra test I was putting into my body was bringing my androgen levels up to over the max limit, so I was getting the added benefits that come with high androgen levels.

After 2 weeks your body starts to shut down so my levels may have fallen back down at that point, and that may have caused the downfall also. The problem is it’s very hard to keep high levels on trt without getting side affects. So trt is not a solution for me. I ran clomid afterwards and recovered my natural levels. I have tested them and they’re fine. My testicles are very full also so I know I have zero issues with testosterone.

Converting to DHT could stil be a problem though. At the end of the day, who really knows. What I do know is, having to manipulate hormones for the rest of your life isn’t a cure and I don’t Wanna go down that road anymore.

#40

My DHT level is in the middle range according to result.

There were one BodyBuilder who proved that DHT is not necessary for sex-drive.
Indeed, this guy bring his DHT to 0, and keep a high testo level, and keep having sex-drive and so on.
He talk about it in podcast: https://podcasts.google.com/?feed=aHR0cHM6Ly9tb3JlcGxhdGVzbW9yZWRhdGVzLmNvbS9mZWVkL3BvZGNhc3Q&episode=aHR0cHM6Ly9tb3JlcGxhdGVzbW9yZWRhdGVzLmNvbS8_cD04MDgy&hl=en&ved=2ahUKEwirpraJwbXlAhUBW60KHWnCCrQQjrkEegQIABAE&ep=6&at=1571941149809

Recently I also come to knew a PFS guy who is pretty much back to normal according to him, following kind of mix of all protocols I have seen so far: low carb diet, water and fruit feast, a lot of sports, lot of supplements, cold shower/swimming in cold sea. He said his DHT level is 3 times the upper level now. According to him he is pretty back to normal after 7 months. (sex drive included).

#41

The reason I don’t agree with the guy saying DHT isn’t necessary for sex drive, is because everyone’s bodies different. One guy not needing DHT doesn’t mean anything really because we’re all programmed differently. We all have differing levels when our body is in homeostasis, and some of us need more of certain hormones/neurotransmitters than others do to function right. Just like how some guys can take finasteride for years without side affects, and some guys get life altering side affects after 2 or 3 pills.

This guy who your talking to, is he on the board? I’d be curious to read his story to find out all the details. I always thought a training regime of some kind was necessary for recovery, but it’s gotta be the right exercises. When I use to push weights at the gym, my body would crash and I would get really dark bags under my eyes, and my body would shutdown even from working out 3-4 times a week. I think this was from high cortisol levels, as I had them checked during this time and they were high. I wanna start agin doing some cardio and maybe get into something like kickboxing or mma. I would think this kind of training would have a very positive affect on androgen levels.

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#42

Here in Brazil we have shockwave therapy (which I didn’t yet) but I still can’t find any doctor who does PRP. If I did, I would surely do both, as well as pelvic physiotherapy. With Cialis every day, surely my erections would be close to 90% and that would be enough for me. While I try to recover from diet and exercise, I could at least have sex normally.

Damn thirld world country.

1 Like
#43

The PRP injections definitely helped make the tissue healthier and the size feels normal again. I don’t really gets hard flacid anymore after the treatment and If I do it’s very minimal. Without cialis, I don’t function super well still though. With cialis it’s better than before the treatment. I don’t think these treatments are the whole answer, but I do think they eliminate one piece of the puzzle. Penile tissue needs to be revitalized if you experienced any of those changes I think, and the prp seemed to do just that. At least for now. Then from there, healing the brain would be the next step.however, I’m goinf in for 2nd gainswave appt on Monday, so I will keep you guys posted about results from this. I’m going for 8 treatments total, so I’m hoping this will bring about some long term results with function.

#44

I am glad to hear that you are making some progress.

Please consider participating in our survey. We already have some data from people who took SP and could get to a decent number if more people participate.

Please see here: Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate

#45

I thought about buying a shockwave therapy machine, like Quest did. But I think it’s better to do this therapy first with medical advice. I think I’ll start this next Monday with a urologist (first of 8 sessions). I was wondering how bad Question got with Saw Palmetto. I have been completely impotent for 2 months and can’t take it anymore (before these two months, I was like 30%). I think he was much much better than me even before the gainswave. But three things gave me hope:

  1. The present thread;
  2. The thread created by him: Shockwave therapy
  3. That: https://www.reddit.com/r/erectiledysfunction/comments/9oxxxv/guys_with_chronic_ed_physical_i_think_i_found_the/
#46

I had my first shockwave therapy session today. I am in a very serious crash and my penis was completely narrowed and lifeless. Not three hours ago I left the doctor’s office and I feel my penis slightly heavier, a little (very little) different. My hourglass shape has decreased a little. I think I improved a little for just one session. I’m just having a very mild discomfort (not even pain), but he told me this is normal.

I will do the other 7 sessions, and see how I will respond. If I do get better, I’ll negotiate with him some extra sessions (I don’t know how much for now) or even buy my own $ 1000 machine on DHgate, although his machine cost $ 20,000. Each session is approximately $ 170, which is very expensive.

It’s still too early to say, but I think if I had used Priapus shot at the same time as shockwave therapy plus Cialis I think it’s possible to get to 70% or 80% of what I was. Since I only have practically sexual sides, I could live normally having sex with my girlfriend weekly without worrying about PFS, and over time I could heal without haste and anxiety. But, maybe it’s just my optimism…

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#47

Congrats on taking the plunge. I think it has lota of potential for us. At least to heal the tissue and promote blood flow. I think it’s one piece of the puzzle. I just had my second session of 8 today. Interesting that you noticed affects right away. For me, I noticed the affects of the P shot and gainswave together the day after, but now that I’m just trying the weekly gainswave, I find that I don’t get the benefits till 3-4 days after the treatment. It’s like the shockwaves beat the tissue and it has to heal afterwards or something.

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#48

Did you have your third session? How are you doing?

#49

I have now had 5 sessions. The weirdest thing happened to me on the 4th and 5th session. The nurse gives you numbing cream to apply and then leaves you in the room for 20 minutes while it takes affect.

On the 4th and 5th session, I would start getting a random erection while I waited for the nurse to get back. It was like a nervous reaction and I couldn’t resist it. I had to fight it to keep it down cause I didn’t want her to come in and I’m popping wood. I dunno that it would have been a 100 percent erection, but it starts rising and I feel myself getting aroused for no reason.

The weird thing is this only happens there… I don’t get random erections at home or anywhere else, and morning wood is still weak and hit or miss. One of those times, I was sporting a 3/4 chub during the first few minutes as she was zapping me with the wand too. It was super awkward, I just sat in silence.

So why am I getting these normal arousal reactions here, but everywhere else my function is same old? Doesn’t make any sense to me.

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#50

So no improvements so far?
How many sessions are left?

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#51

Well there’s most definitely are in inprovements, because only around the 4th session was I getting aroused like that. Just don’t know why it only happens there st the doctors office lol. Might mean that I need to test myself with a real woman. There has to be some sort of mental block. I still have 3 sessions left

4 Likes
#52

How we doin Lou?

#53

Do you have loss of nerve sensation (numbness), or just other ED symptoms? I have loss of sensation.

#54

Hi can you share the info on how to use a penile pump correctly. i Used a bath mate didnt work for my hard flacid

#55

Do you still have hard flacid? or is it better?

#56

It’s not tha difficult. Just put your penid through the hole and pump untill it begins a little bit to hurt. Then stay for about 20 minutes and after that time put the release button.
No need to buy an expensive one and use lube gel.

#57

@Sweetlou ; I am in a similar situation my brother; however, I believe that my misery was brought by low testosterone and benzo-withdrawal. My dick, when flaccid, has lost a significant amount of density. Before, it used to be a lot fuller. My penile tissues look like they have been deprived of nutrition. Did you do any penile doppler test to check for any fibrosis?

#58

I had a similar experience with shockwave + clomid + cialis treatment this summer.,Felt like I was cured, affect slowly wore off although I think I have a higher baseline now.

What I found interesting in this post is the natural LH / T recovery. Havent heard of any hormonal recoveries before. I hope there are more instances of such hormonal recoveries.