If you got screened out you tried, I ask nothing more. I didnt know that.
Its more about the general idea. If everyone would participate (and the homebrew guys often dont and distract from the studies with their ineffective and endless home brewing), we already would have the Baylor study completed.
Anyway, I think we discussed this to death. I think JQD is either a charlatan or insane (I think its the latter), and I thinnk he did us a disservice.
I know my posts are perceived as egotistical, but my name is private, what glory will I gain? Most of my āego centristā posting is just cynicism, or jokes that done translate in text well. I have other things to do besides post here, I have a business to run, a social life to get back into, and dates. I continue to come because I have grown attached to many of the people here. MCI is on the gel and just needs to get his test injections. Once he improves, that will be good enough I think for me to move on for a while. Everyone here tried CDnuts protocol, if everyone tried they, a great many would improve. The gel isnāt new, itās the theories on whatās going on and how to manage this condition. Understanding whatās wrong makes it easier to manage. There was another post of a recovery story here from a guy who recovered from Pfs with letrozole, im sure you guys saw it.
Hey everyone,
Iām kinda new here and to pfs, (crashed on christmas day) but there are a few things id like to say:
I called baylor today and gave them my info so that I could do the study. I live in Atlanta so it wont be too hard to get there, although $1800 is quite a bit of money for a 21y/o college student. I have heard that pfs foundation will cover it if necessary which is very cool.
I donāt think testosterone therapy could theoretically do much of anything. The reason I say this is because Iām transgender and have had low testosterone for 10 months and not experienced anything. It wasnāt until i started Finasteride at the beginning of this month until i started to feel like this. I quit after 10 days or so but apparently that wasnāt soon enough. Also iām not sure if Baylor will even want me for the study since Iām trans and not going to have the same hormonal levels as most of the other participants, though I do hope I can help in some way. Theyāre going to email me some sort of questionnaire I guess and weāll see where it goes from there.
Ok thats all, thanks!
Skipped 0.50 mg Arimidex today. Dick was harder. Like >90%. Gave her a good beating. Enjoyable as well. Some lust there. I think 0.5 mg EOD, or less, is my sweet spot.
Are you blind? There have been at least 10 posts about guys improving based on my theories since this thread started. Many of them have not come back, that usually means things are going well. I keep telling you that you are naive, the studies will further confirm this condition, but treating it wonāt change. What makes you think they will even try to treat it? If they do, why would they treat it differently than the doctors already treating it?
Putting all your hopes in these studies is a bad idea, while I agree we must support them, we all must work together to experiment. I have reversed Pfs, now itās 90% and stable, we are answering a lot of questions with our experiments. No one has ever tried to unite people based on one very consistent theory and try getting people to work as a group to solve this. Itās always been throwing shit at a wall and hoping it would stick. Now you all know what is going on, you say I havenāt posted scientific support, but thatās not true.
I have posted articles in support of my theories, the Pfs study on neurosteroids backups my theories. Also I have posted a study on neuroestrogen dominance in animals inhibiting socio sexual behavior. I think itās not my ego, but the ego of some few people who donāt want to accept that their perception of whatās going on May be far simpler than they thought. There have been Pfs studies done, none conflict with my theories, one significantly substantiates my theories.
If in fact there are non responders. there are synthetic 5ar enzymes that were created for research and they could be used as replacement. There is a drug for Parkinsonās disease that increases 5ar enzymes in the brain (itās super expensive), it could be an option. If my protocol fails, I can expand upon it, itās the only thing that has kept me stable and reversed for this long. I also made a point that it takes billions to do research into treating medical conditions, and decades. You could be participating in OUR research by trying some protocols based on these theories. This data one day could be used by researchers if for some reason we fail, or not everyone responds. I have a theory that only intelligent guys make it to this forum. It takes intellect to connect your experiences to propecia and find this place.
Donāt underestimate the guys here, we have accomplished a lot here (and on solvepfs). PVDL, how about this, can you tell us your hormone levels in us measurements? What if just lowering your estrogen could change your situation a lot, it has several guys already. You have no interest in even trying? What if a simple AI is all you need? You donāt believe me, but what about all the other posts?
He just came up a pretty good thought out theory. It was all the arguing about it that caused problems.
Just for the record info from a PFS law firm that discusses Nerosteriod changes seen in people with PFS.
schmidtlaw.com/post-finaster ā¦ e-lawsuit/
Paragraph towards the bottom talks about Nerosteriods. Iām pretty sure this law firm got that info from the latest study. Iām posting it just to show that JQD is not pulling this Nerosteriod business out of his ass.
Just In case no one feels like clicking on the link:
In some men, finasteride also makes changes to neurosteroids that normally have antidepressant effects. Deprived of these normal neurosteroids, some men taking finasteride have suffered anxiety, confusion, and depression. Depression can be very difficult to treat and has led to suicide.
I know this is not exactly what he has in mind but the point is that itās clear Nerosteriods are real and there is science to suggest DHT inhibiters can cause changes to them
Tumble, didnāt you say your prop came in? Try lower doses of arimidex 0.25mg, try not to stay on a schedule of doses, go by how you feel. Learn the symptoms of high estrogen for yourself, when you feel it going up, take one. Then if things are fine donāt take one, try to operate this way rather than a set schedule. Thatās why drugs have never worked, itās neurosteroidal fluctuations and they change. Did you say you were waiting on your needles but have your prop?
The Andractim gel is so potent that the dht can lower estrogen too much, so you have to find the right doses, higher test is what I needed 20mg a day. I may even eventually switch to once a week enanthate injections once im stable for a couple weeks. Most importantly is that dht builds up in your system over time (as it has a 5 week half life). I have never been this good, this long, and all I need is a gel and an injection, itās anazing how simple this turned out.
Here is the drug that may help non responders āHDAC - Trichostatin A (TSA),ā it treats Parkinsonās disease by increasing 5ar expression in the brain, but is super expensive.
Yea we know about neurosteroids because of the Italian study. The neurosteroids they are talking about are not E or T its allopregnanolone.
Wouldnāt it be nice if we could benefit from a treatment like thisā¦
http://www.dailymail.co.uk/health/article-2040959/Daily-pill-stop-reverse-multiple-sclerosis.html
We wont unless we keep the studies moving along. Your doctor will not recognize PFS and will not prescribe you MS meds. So its nice to work on what we can, Home Brew, but some of us may miss the opportunity to really treat this if we donāt work just as hard at getting these studies completed. I am working both angles and all you other guys that qualify should also.
Can Jacobs prescribe us this pill? If he can I would take it. Maybe he can find out whatās in it and we can get it from a compounding pharmacy.
Yes sir. Just waiting on needles. Other then erectile quality, libido, and some mood/sleep quality, I find it hard to gauge high/low estrogen. Sounds easy, but itās subtle for me. I donāt feel like shit if Iām too high or low. Just boners are weaker, sleep is more fitful, ligament strain etc.
I filled out a questionnaire to participate in the PFS study and wasnāt accepted, possibly because I took Avodart. Everyone should still contact them and try your best to participate until you get turned down as Iām not positive thatās the reason why.
I have restarted DHEA 50mg a day, DHEA upregulates 5ar, it improves mood, libido, and converts into a lot of neurosteroids and hormones we need. It was my very first prorocol, I stopped it due to the estrogen, but if this gel can handle the estrogen then Iāll stay on it, read about it
en.m.wikipedia.org/wiki/Dehydroepiandrosterone
Dr Jacobs was rather interested when I told him I had DHEA in my protocol a while back.I am 150% for the studies, I just am excluded due to taking avodart, so I focus on helping solve this for myself and others, hopefully this protocol will continue long term and get better and better.
What if we found out Dr. Jacobs was pvdlā¦
UPDATE: I have been talking to Eden and we are going to collaborate on efforts to work on solving pfs, simultaneously we will support the foundation here. Itās time a movement gets started to solve this fucking condition for everyone, a movement with answers for people, options. We will be conducting experiments on larger scales, and there are some ideas in the future which could help us all work together.
I encourage everyone to start posting at solvepfs.com, letās build up the site, letās leave propeciahelp for what it is, a place for studies and the foundation. We have to start to migrate to solvepfs.com
solvepfs.com/viewtopic.php?f=6&t=152
The above is a link to this thread continued, I will be starting to post there instead. Eden is a nice guy, yes I said some bad things about him in the past, but who havenāt I insulted here??? Lol Eden is going to get up to speed on my theories, we will take our own approach to solving this, combine our resources and keep people alive. The foundation will exist to do what it does, and we will exist parallel to help people in the meantime, while we wait, we will work to solve this.
Posts will start occuring there, the philosophy of solvepfs is mine, we believe we can treat and reverse this. Mew is a good guy and not happy with my posting, so in the interest of cooperation and peace, itās best to start migrating there, those of us who wish to work on solving this. We will cover a lot of ground, itās time to stop waiting, itās time to solve pfs. While the foundation itās it at one angle, we will work to find treatments and get doctors to work with them, we have waited long enough, we need to fight this before more people die, the studies must be supported, but progress can be made on both fronts!
Mew has made it clear that in January he is shutting down the theories section, we should start migrating now. Eden told me a lot of people recently signed up, so that's good news. If there is a reason some of you want me to continue posting here vs there, please let me know the reason. I know it's difficult to change form what we are used to. I'll continue to post here if you guys want, but there is a difference in philosophy at solvepfs.com vs here, propeciahelp is not about trying to solve Pfs on our own. Propecia help is a great forum with a great goal, it would be nice if Mew were to create a link to SolvePFS.com for discussions on cures and treatments. If we do this, there will be no more arguing or attadking, Eden does not allow attacking there.
It's more scientific there, this forum is more about the studies. Who knows, maybe if we work together, we can help the studies with our own findings. Or when the studies are concluded we will have already made discoveries that can help create further studies. We will be collecting data, blood work, and posting results of experiments. I think it's a great idea, and a way we can all work together. We are tired of waiting, and we are not welcome here. It's better to leave this site just for the research studies. The attacking and fighting stresses everyone out and brings us all down, if someone disagrees with our desire to solve this, they can remain here.
Let's face reality, there is a philosophical difference of opinions here, at propecia help, it is believed that this condition cannot be reversed with hormones. Solvepfs believes it can be, I have reversed 90% of it with hormones in 6 months. There are guys who are non responders, we can help them with our experiments. Let's take this serious and stop waiting, I have a lot of knowledge and experience in these matters, so does Eden, it's going to be great. In the meantime, Mew will be working on the studies and that approach, 2 sites with 2 different angles, it makes sense. We are all in this together, we should all get along, and doing this will ensure that.
Your thoughts?
The following is a post from Eden to me, Letās not forget guys, the goal here is to treat or cure Pfs, we should utilize all available avenues. While these studies are being done, we could be working to find the answers ourselves, look how far I have come in 6 months! 90% reversal. While we wait for the studies the foundarion is doing, we can work at this. We are the most experienced guys with Pfs, with my knowledge and experience, and Edenās knowledge and experience, we can get somewhere for everyone.
āUnread postby Enden Ā» Tue Dec 30, 2014 3:18 am
With enough active members, everything is possible. I too have some ideas. It remains to see whether or not those who followed you here will participate. Collective research is, and will continue to be important - but it should be done as professionally as possible, and with all the professional help we can get. Instead of paying scientists to look at the problem from the outside, my vision is that weāll do most of the work ourselves, and tell professionals exactly where to look for answers. Keep in mind that no one is more motivated than us to find the answers, as our health and lives are depending on it. For all the others, itās just a job.ā
Thats an exceptionally bad idea. Common sense dictates that paying real scientists with very expensive equipment and years of education, is a MUCH better investment of time and resources, than conducting experiences on our own. Laughably naive, this EDEN guy.
Think about it this way:
There are famous medical institutions with top class scientists, who want to look at your condition. All you need to invest is your time, as expenses are paid by the foundation.
Then there is homebrewer eden, with no formal education in medicine, no backing of any medical institution, no equipment, only equipped with google. He is also asking for your time.
Who will you invest in?
Listen Gentsā¦
Iāve read this thread extensively and JQDā¦
The endocrine system is very fragile, you simply cannot keep experimenting with hormones and steroids then a week or month later hop on AIās and try pct then keep bouncing back and forthā¦ You are creating and doing far worse damage to the system by doing so.
You need to commit to one or the other. a TRT regime or a PCT protocol to get your system back in place. When doing so, you MUST commit to a PROPER protocol until conlcusion. Not hop back off and on off different drugs experimenting. This will make you far worse off and do far more damage.
Iāve been doing this a while as a steroid user and bodybuilder and I really wish you guys would listen to what Iāve been posting.
Again, PLEASE review my thread so I can actually address the questions on these drugs and give some proper guidance.
Best to post in this thread directly. All the members of the insanity carousel are right here. Its their home base so to speak.
āSignificant backgroundā Who has decided this? What are you for real? Any real titles of something?