I have started to chokeup on food once again, its surreal. I am suffering with severe muscular dystrophy since i quit cold turkey on May, 2020, my chest muscles have shrunked to its end and have started to choke the food pipe now. My joints are cracking severely as the protecting muscles have vanished. If i don’t get any treatment soon, i will die.
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I’m very sorry to hear about your recent situation. I don’t want to say any comforting bullshit. I hope you don’t disappear from the forum like many people and take good care of yourself.
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Check out low dopamine symptoms :=
Quit all dopa foods they are accelerating the wastage. That includes eggs mate I know u eat a lot of them
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I do avoid eggs nowadays but doesn’t seem to change me a bit, overall i am not able to ingest anything unless i chew the food until it becomes liquid. Such a lonesome suffering at this age. I believe my heart muscles are not able to hold the heart as well, it’s damn serious and no sane person would believe this, i might be the first person to die of Fin without commiting suicide.
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Its brutal. This shit killed us. Outside and inside. And the doctors live their happy lifes
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No i don’t live in Europe or US
The most i can do is participate in the podcast (which i am planning to) and fill the survey (i already did)
Don’t have the muscle strength to hold a pen, doing such action scenes in real life seems inconceivable.
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Muscle pain is killing me
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I feel the aggressive muscle atrophy all over my body too. I just can stand up and can go down stairs in my living room. The daily walks I did become shorter and I missed them for three months, because I was to fatuiged.
My muscles have become devastated. It’s like my muscles are eating themselves. There’s no part of my muscle that is like pre-pfs. The fingers have become so bonier that even a pfs patient would feel it surreal. I just don’t know why am i having this severely bad in my muscles!! I have no motivation left to fight this. I have zero morning wood and zero semen in me, and all this is after 2 years of this disease, so most of these people who claim “you will be fine in a year or two” are fooling themselves and others. I think the only way to kill this disease is to kill this body itself, but i am way too coward to do that.
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I just want to die
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Hang in there. One day!!! Your strength will return. Enough lives have been lost .
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Have you tried HCG yourself?
Me too brother. If this shit killed everyone it touched fin would be off the market by now. Nobody cares that we don’t feel well.
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It’s the really fucking and worst thing, that the crash isn’t deadly. That every muscle and brain activity stopps. It would be better for the first victims that they don’t suffer and for the later, that the murder pills would be out of the market.
I’m still alive physically. But my life, all I was is totally destroyed. Nothing left and I’m afraid to be forced to live this state for many years. Only demotivation, depression, pain and torture.
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We were given a dosage that was 5x that of Propecia users. Anyone study to see if PFS is more extreme for us?
Like you, I have degraded to a point where just moving takes more energy than I have. Every day I am surprised to wake up again. Loss of sex seems so unimportant now, I’d just love more vitality and power. I wait daily to die, @Exsexgod.
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It’s very very sad to hear that about your state. Are you than something like bedbound, chair or sofa bound now. Such a fit best ager some years ago. The only lucky thing that God gifted you 63 years and hit you later than all the young Propecia victims.
You know I was fucked 4 years earlier with for Proscar very young 59 y. I’m physically able to do more things but mental I’ve no fun anymore about this perversion of a good life. I lost my pride and everything I like. So I have given up. Only the weekends, when my young child comes to visit me I feel like living again.
Yes dear Jim so we are going on to suffer this shit together, as the rare cases in a rare disease.
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I should update my story. Health is much worse since last entry.
Why does “reply to” feature not work when I hit enter?
Has the DHEA blown u apart @JimWildman how long did u benefit from it? Have u had a crash? Damn!!! I’m so sorry we all know how debilitating and soul destroying it is
@LazarusRy I took DHEA many years ago, when I was on a “Life Extension Diet” kick. That was long before I took Proscar and PFS destroyed my life.
Maybe someday research will find that we all have some common denominator, ie, we all took DHEA at some point in our lives, for example. But, I have not experimented with supplements of any kind since PFS hit. Too many conflicting stories of success vs. damages.
One exception, since covid-19 I started taking zinc, vitamins c and d3 as a preventative. I took zinc for less than a week before I stopped it due to increased headaches.
Hope this helps. Jim
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