Dutasteride for years

Member Stories
#1

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)?
France

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)

Google

What is your current age, height, weight?

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?

Dutasteride

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?

O.5mg

What condition was being treated with the drug?
Hairloss

For how long did you take the drug (weeks/months/years)?

7 years

Date when you started the drug?

2002

Date when you quit the drug?

2009

Age when you quit?

24

How did you quit (cold turkey or taper off)?

Taper off

How long into your usage did you notice the onset of side effects?

Before stopping

What side effects did you experience that have yet to resolve since discontinuation?

Low libido

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
[X] Loss of Libido / Sex Drive
[X] Erectile Dysfunction
[X] Complete Impotence
[X] Loss of Morning Erections
[X] Loss of Spontaneous Erections
[X] Loss of Nocturnal Erections
[X] Watery Ejaculate
[ ] Reduced Ejaculate
[X] Inability or Difficulty to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[X] Emotional Blunting / Emotionally Flat
[X] Difficulty Focusing / Concentrating
[X] Confusion
[X] Memory Loss / Forgetfulness
[X] Stumbling over Words / Losing Train of Thought
[X] Slurring of Speech
[X] Lack of Motivation / Feeling Passive / Complacency
[X] Extreme Anxiety / Panic Attacks
[X] Severe Depression / Melancholy
[X] Suicidal Thoughts

Physical
[X] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[X] Testicular Pain
[X] Testicular Shrinkage / Loss of Fullness
[X] Genital numbness / sensitivity decrease
[X] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[X] Joint Pain
[X] Dry / Dark Circles under eyes

Misc
[X] Prostate pain
[X] Persistent Fatigue / Exhaustion
[X] Stomach Pains / Digestion Problems
[X] Constipation / “Poo Pellets”
[X] Vision - Acuity Decrease / Blurriness
[ ] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[X] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

Dry skin

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

Tamoxifen
HCG
Testosterone
DHT
Casodex
Cyproterone
DHEA!!!

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?

Anything not listed in the above questions you’d like to share about your experience?

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
Too Dutasteride, works wonderfully for my hair but after some years nuke my sex drive, stopped gradually and fucked my up for good.

Self-reporting template - ONLY USE FOR FUTURE POSTS TO REPORT ANY TRIALS OF TREATMENTS, NOT YOUR INITIAL MEMBER STORY

  1. Name of the therapy/substance:
    • Dosage:
    • How often you took it:
  2. Status
    • Still using [ ]
    • Stopped with no lasting change to initial symptoms [ ]
    • Stopped with persistent change to symptoms [ ]
  3. Duration of use: Days [ ] Months [ ] Years [ ]
  4. Response when you started:
    • Greatly improved [ ]
    • Slightly improved [ ]
    • Stayed the same [ ]
    • Slightly worsened [ ]
    • Greatly worsened [ ]
  5. Current response (if you’re still using the therapy/substance) OR Response in the time before you stopped the treatment
    • Greatly improved [ ]
    • Slightly improved [ ]
    • Stayed the same [ ]
    • Slightly worsened [ ]
    • Greatly worsened [ ]
  6. Lasting changes to initial symptoms after cessation (if you have stopped for more than 3 weeks)
    • Greatly improved [ ]
    • Slightly improved [ ]
    • Stayed the same [ ]
    • Slightly worsened [ ]
    • Greatly worsened [ ]
1 Like
DHEA is helping a lot
#2

Welcome Ali. I’m curious, what prompted you to make a member story now after so many years? I’d be interest to know

#3

Lurking for years
Made a post several days ago about a almost recovery on high dose of dhea. I won’t make that post again.

#4

Hi!

Your topic from several days ago has been accepted/restored:

The only action a new member needs to take to have their rejected content restored is to request it from a moderator after their member story has been accepted.

If you ask after your member story is accepted, there is no valid reason for us to refuse restoring it unless the content violates one of the community guidelines.

#5

We need more people involved in the fight.

#6

I’ve had the same experience with DHEA lol. These temporary recoveries at least provide lots of hope that we can eventually get back to normal with research and targeted treatment.

#7

I know when you went back on fin you had a full (?) recovery. How similar was it on DHEA?

Although DHEA converts to testosterone it can also bind to the AR so may be considered somewhat of an anti-androgen.

#8

Hello,

I had post finasteride (dutasteride) for 15 years, still have in a way but I tried something that works weirdly good. That’s DHEA.
I tried 10-50mg with no effect at all. Then took 1g because I was desperate and my libido came back (40-70%) and after 6 months I can say it works pretty well. 1g every 5-8 days gave me my libido back, at an acceptable level.
I bought dhea powder, before that tried testosterone, dht and a lot of things with no success during more than ten years.
Starting going bald again, getting more hair and muscles.
If I stop FPS is back.
Why? Still a mystery.
If someone can explain. Maybe it could help to understand what’s happening to us.
I’m not encouraging you to try. I truly think we all have different kinds of PFS, there is maybe a spectrum in this disease.
Good luck.

#9

What brand of DHEA were you taking ?

#10

It doesn’t matter. Search for dhea powder and that’s all.

Its still working. When I stop libido is 0, but still losing hair and have a weird itch in the scalp.
I’m trying 500mg every 3 days and it’s the same. Still not perfect but never feel better in years.

#11

Ok, going to give it a try. What about other PFS symptoms like brainfog, vision, dry skin did it help you with any other symptoms?

Thanks!

#12

Yes my vision improved a lot. But not at first.
When I started it was worse, but I gave it time and now I’m thinking about stopping dhea, just to see how my body is handling it.
My libido is not perfect but it feels so great to know what its like to be attracted to the body and stuff.
I cannot encourage you to try. Like I wrote, I truly think FPS is not just a 1 way to be sick, there is a spectrum or maybe different kinds of the same disease. It could hurt you.
It could help you. But you cannot know. It took me months to realise it was really helping. It could take you months to realise it destroying you.
Be careful.
It’s the best cure for me. Maybe not for everyone.

#13

I stopped 10 days ago and my sex drive is a yo-yo. Still better when I had PFS the old way.
But I have pain in my lower back and something that could be my prostate. And in my scalp. Still losing a lot of hair btw.
I will take dhea again in a few months or sooner if I feel its needed.
My understanding is that my androgen receptors are still hypersensitive but they don’t shut down like before. Maybe because they are less sensitive, or because the shut down is less effective, it that makes sense.