Even if you did get something that Dr Shippen personally wrote and signed, the Dr you are seeing will just tell you to see Shippen direct. No Dr will take the information of another Dr and treat his/her patient. Any Dr who would is a fool. Why would someone want the risk of malpractice or any other type of lawsuit from treating a patient based on what another Dr out of his/her practice (and stranger for most part) is suggesting.
How many ppl actually refered to Crisler or Shippen in their Dr appt? What was the reaction/response from the Dr? Probably “Who is Shippen/Criser? Never heard of him”.
You may just need to bite the bullet and schedule appts with Shippen and/or Crisler. I’m sure if they got enough of you guys they will be able to do something and find out what the hell is going on with everyone. If anything, they’ll make some noise within the Medical community and maybe Merck will hear of it and start doing their research to dig deeper and find out what the hell is going on.
well i got an appointment with doctor shippen so wish me luck. Its pretty expensive. If anyone is looking to visit be prepared to spend a grand with plane tickets and such. To he is letting me do the blood work in the state i live in so as i dont have to go down there for a month.
wow…someone correct me if im wrong but this guy may be the 1st regular on this forum to visit Shippen.
when if ur appt? how much is the appt along gonna cost? u said he’ll let u get ur labs done prior to ur appt…what labs is he requesting you to bring? did he mention what the initial appt may entail?
my appointment is on jan. 9th. When i called the secretary she said she wasnt sure if the Dr. was taking new patients. When i said it was for propecia she accepted me immediately her exact words were that is a nasty drug and very difficult to treat. She then told me to write Dr. Shippen a letter about my situation then they are going to send me a Doctors note to get tested at the clinic of my choice. Then i fly down and see him for the treatment. The secretary also told me that she just scheduled an appointment for a guy from irreland that has the same problem with propecia. So they are deffinately taking people from all over and the number of patients is growing. Which means there will be a law suit soon.
To im at the same time trying this nutritionalist in oklahoma his name is Dr. Robbins and hes not your run of the mill nutritionalist that you would find at a gym our spa he has you send your urine in the mail and then he does a urine anlaysis test and tries to help you with your problem through diet exercise and sublements. I had a relative that hand scurvey and he healed her. So will let you know if he can do anything for propecia patients.
I’ve been thinking about our post-finasteride syndrome issue and for some reason, Propecia directly affecting our genes seems to fit the reason why we have not recovered. We may attempt to recover via certain treatments, but the diagnosis of what has been damaged (and how), thus preventing recovery, is essential if there will be a cure.
Obviously, Propecia’s lingering side-effects are not common with every consumer, so its safe to say the long-lasting damage incurred is only evidenced because sufferers are “more sensitive” to the drug’s effects. This can explain the discrepancy between the unaffected and affected that doctors stumble with… well, that and clutching to Merck’s ignorant literature.
We know finasteride is a drug which reduces the conversion of testosterone to dihydrotestosterone by “inhibiting” Type II 5AR… but how does it go about suppressing that enzyme? I was never informed of that… in fact, I was told it would return to normal if the dosage were stopped. We are men and eligible for this medication so our very serious side-effects are on Merck’s irresponsible hands. Someone on that side is either lying or committing malpractice, no?
More-so, I am astonished as I learn that finasteride has additional effects besides inhibiting DHT production, as it also imbalances allopregnanolone/progesterone just as equally! For those who do not suffer as we do, does this not occur? I sure don’t recall being explained that finasteride would also imbalance hormones in my body besides DHT (temporarily).
Basically my point is that it needs to be determined what is preventing recovery to understand what separates us from those who recover from finasteride. Could it really be that finasteride damaged us genetically?
I agree this sort of thing has scared the shit out of me, however and I do stress this I don’t feel that the drug or any drug for the most part is able to permanently change our genetic cellular structure and signalling i.e. DNA etc. I just think it’s more of a long term hormonal and neruo-endocrine issue and for whatever reason it doesn’t go back to normal anytime due to certain circumstances. that’s just my opinion of it all. After all hormones play a role in our overall cellular signalling and structure so it’s a main thing. And also remember we have no way of measuring neuroendocrine hormones so we can only theorize.
I also agree with your point, especialy due to the fact that I still have this DHT feeling, but it feels like having less of it… It is like DHT or neurohormons does not feed my brain as they were before.
This is partly offtopic, but have any of you noticed something strange with your senses on or after fin? I think I have some sort of neurological problem now too - I get numbness in my limbs, tingly fingers, cold feeling skin etc. I remember when my junk went 100% numb last august, also this was at its worst.
Yes. The most interesting thing for me is why despite some androgen sensitivity left (I still have some hairloss right now and I can feel some DHT sensation) I does not appear to be able to return to its normal output. This DHT feeling remains at about 30% and whenever I try to force myself to get some more sensation from this side it leads me directly to those horrible sides that I was going through before.
ithappens and majkellos, I can see your points for sure. Thanks for your responses.
It’s just that I’m caught up with the fact that these problems don’t go away, and that I feel the main damage has to be identified to understand why we can’t recover on our own. I feel like Fin caused damage we haven’t exactly detected to impede our ability to restore our normal homeostasis, and that rather than fighting the symptoms, the cause for them needs to be clear. Admittedly I’m new to researching this though, so thanks for your tolerance.
I don’t understand why we should have long term hormonal issues we were healthy beforehand and doctors expect us to heal.
Well, I’m sure the fact that finasteride crosses the blood/brain barrier didn’t help that any.
I’m still trying to grasp how Fin inhibits the Type II 5AR. Since we know from a study that it causes cell death in the prostate I’m wondering if it shuts off a cell’s ability to produce 5AR or something. This is the kind of effect I would expect to be the cause of our side-effects.
What happened to the gent “voice” as his last post was about visiting Dr. Shippen himself. If he had been there, why didn’t he share his experiences of that meeting as he last posted on Oct 28, 2007
I agree. For a doctor in his prime, age and cash flow; I cannot understand why he charges so much and does not accept insurance!
He should a least publish something on the topic.
Yes, I have had these same probs man. They were scary as fuck. No longer. However, I have accepted that fin. messes with the heart and bloodflow by raising estrogen and other mysteries that we can’t understand. I believe that our bodies think we are aging because of the “exteme disruption” this drug has caused. Just exercise man as much as you can. God bless.
It’s probably more trouble than it’s worth for him to publish something. Clearly he was going to and one point and for whatever reason didn’t go ahead with it. Perhaps Merck became aware as one of his patients at the time spread the info on ‘alt.baldspot’. It’s naive to expect one doctor to fight our battles, examine how Merck went after docs who criticised Vioxx (see coverage of recent Australian lawsuits).
