Dr. Jacobs' latest blog post: report on 300 PFS patients

[Len]

in my opinion, that is a good idea davey, i think if awor sends his questionnare/ poll out in an email blast it may be a lot more eye catching … it is certainly very, very important

[boston332]

@Cap

While I appreciate the effort, I doubt the PFS foundation is ever going to produce a cure. Probably every few years they’ll be like “our research shows this thing might be involved,” wait a few more years, repeat.

I find this viewpoint extremely unfortunate considering how much work these people have put into this and the extremely impressive caliber of the multiple institutions that have been brought onboard in the last 6-8 months. I won’t argue it will be a long road with many ups and downs but at this early stage of basic research I don’t think anyone has enough information to say never.

Also consider research into many areas likely playing a role in PFS (epigenetics for one) is being performed at nearly every major research institution.

[Len]

@boston332

@Cap

While I appreciate the effort, I doubt the PFS foundation is ever going to produce a cure. Probably every few years they’ll be like “our research shows this thing might be involved,” wait a few more years, repeat.

I find this viewpoint extremely unfortunate considering how much work these people have put into this and the extremely impressive caliber of the multiple institutions that have been brought onboard in the last 6-8 months. I won’t argue it will be a long road with many ups and downs but at this early stage of basic research I don’t think anyone has enough information to say never.

Also consider research into many areas likely playing a role in PFS (epigenetics for one) is being performed at nearly every major research institution.

i agree … guys, THIS IS IT !!! we need to wake up … our time is now, and we cant screw this up! the foundation is IT !!!

[Cap]

@boston332

I find this viewpoint extremely unfortunate considering how much work these people have put into this and the extremely impressive caliber of the multiple institutions that have been brought onboard in the last 6-8 months. I won’t argue it will be a long road with many ups and downs but at this early stage of basic research I don’t think anyone has enough information to say never.

Also consider research into many areas likely playing a role in PFS (epigenetics for one) is being performed at nearly every major research institution.

As I’ve said elsewhere, I sincerely hope I’m wrong. Not just for my own sake, but for those who have been suffering longer than I with worse sides. I’m just being realistic. Most research initiatives like this one either spin their wheels perpetually researching forever, or produce results but many many years down the line, which while awesome for those in the future, does nothing for us. Again, I hope that’s not the case and a cure is found in the relatively near future for everyone’s sake.

[Len]

@Cap

@boston332

I find this viewpoint extremely unfortunate considering how much work these people have put into this and the extremely impressive caliber of the multiple institutions that have been brought onboard in the last 6-8 months. I won’t argue it will be a long road with many ups and downs but at this early stage of basic research I don’t think anyone has enough information to say never.

Also consider research into many areas likely playing a role in PFS (epigenetics for one) is being performed at nearly every major research institution.

As I’ve said elsewhere, I sincerely hope I’m wrong. Not just for my own sake, but for those who have been suffering longer than I with worse sides. I’m just being realistic. Most research initiatives like this one either spin their wheels perpetually researching forever, or produce results but many many years down the line, which while awesome for those in the future, does nothing for us. Again, I hope that’s not the case and a cure is found in the relatively near future for everyone’s sake.

Who knows … maybe you will be proved correct? Either way, your comments serve no purpose. Without research and our donating to the foundation, we will never know. Our opinions (which in reality are next to meaningless) do not matter in this situation. The pfs foundation is a gift to us, and we need to maximize it in every way possible. Anything else would be completely foolish at this point.