I am Daniels sister I have seen a lot of posts about my brother. If anyone has any questions about my brother feel free to ask.
I just wanted to say that I am so sorry for your loss. Dr Stewart was clearly a very much loved brother to you, a great guy who was also in the prime of his career, with a loving family around him. You must be going through a lot, and I hope you know that people here are on your side, on Daniel’s side. We all want to see this medication removed from the market, or radical changes in which conditions it can be prescribed for, to stop any other people having to go through this.
Thank you.
I am also very sorry for your loss. Thank you for posting to this website and trying to answer our questions.
I know that your brother participated in the studies.
Do you know if your brother was ever told by the researchers that there was no possibility for a cure or treatment for his condition?
Hi,
I am also very sorry for your loss.
Id say its safe to say that every man on this forum can understand what your brother was going through and most have contemplated taking the same action he took.
As I’m sure you are aware this is a terrible affliction that comes close to basically wiping out your identity and sense of self worth.
There is a huge amount of guilt and regret that comes with it and I’m sure this added the state of mind your brother was in.
I’d like to know whether you and your family knew what he was going through?
I haven’t told my family as I think it isn’t healthy for them to know as this is presently untreatable.
Yes, we all knew about Dannys condition…My parents went out to Texas to be with him…The first time in June, he was having severe anxiety. He was scheduled to go on a trip to Israel for his job. He didnt think he was going to be able make it. He did manage to do that. We were getting positive about his situation and then we got a call from our older brother saying Danny didnt sound good in Sept. My parents rushed to Texas once again. Our mother stayed with him until the beginning of December. We were all worried about his condition… Danny was a very private person…I was devastated for him the first time i talked with him…I cried and cried after I got off the phone with him. He said his life was over…He didnt want to spend the rest of his life like a 80 year old man…He suffered greatly with the mental and physical side effects from this EVIL drug!..He kept telling us he was fine…my mother wanted to go back out to Texas but her 96 year old mother was not doing well. She passed 2 weeks after Danny…Our family is truly devasted by the loss of our Danny…We all feel we should have done more…I know he blamed himself for taking that medicine…No one should blame themselves or be ashamed…It is no different then anyone wanting to whiten their teeth…People need to know what this drug is doing to young men and their lives and their families lives…Young men need to tell their families what they are going through and not keep it a secret…you need all the love and support you can get…I dont know how we are going to deal with getting the word out about my brother but we will… We are all still grieving greatly for Danny and our grandmother…My prayers our with everyone who is suffering from this.
God Bless
What’s most tragic is that Daniel is probably just the tip of the suicide iceberg. How many men so we know of who have taken their own lives?
I would like to add to those who’ve expressed condolences for your loss; be assured that if anyone can understand what your brother went through, it is us. And in return for the questions we ask of you, please feel free to ask questions of us. Maybe it will provide some closure for you to understand exactly what it feels like to have post finasteride syndrome.
Here are some questions that spring to mind:
- Is your family considering legal action against Merck?
- Did Dr Daniel leave a note? (I apologise if that’s a personal question, I’m just curious if he directly blamed Propecia in his own words, unequivocally)
- Are your family/friends involved in any awareness projects and can we help in any way?
Yes, we are looking into a wrongful death suit…We have two years to file… We have alot to do right now with his personal estate…Yes, he did blame finasteride…he said it destroyed his mind and body. …We want to get the word out but we dont know exactly what the best avenue to take at this time…We have been contacted to talk with someone on their blog…when my parents are able to do that we will…I do feel that men and their families who are suffering from this do need to get invovled with the studies that are going on out there…my brother was involved with the one at Baylor and we need to scream from the roof tops until someone hears are cries!!!
It’s a true tragedy especially with the passing of your grandmother.I feel so much for you and your family because I have pictured what state my family would be in if I did it so many times. From what you said your family were extremely supportive of Daniel so you should take solace in that.
The state that this syndrome leaves you in makes it pretty impossible not to contemplate suicide. It’s a mixture of all the effects.If someone had told me id end up in this state I would have said no way could I handle that.
All you can do is cling to bits of hope but because there is no concrete answer yet to any questions in regard to curing this, that makes it really really hard. Overwhelming.
As you say,the drug is EVIL and should never be prescribed for hairloss purposes. One doctor who is vocal about the dangers of it, Dr. Rynne, described it as being toxic and that it is reckless to prescribe it for hairloss purposes. He was featured on the Podcast on Blogtalkradio.com/pfsglobal.
Thanks for answering,much appreciated. I wish your family all the best.
“We need to scream from the roof tops until someone hears our cries!!!”
I agreed 100%.
Except for one thing.
Don’t do it from a rooftop. Stand in front of Merck & Co.'s global headquarters:
One Merck Drive
Whitehouse Station, NJ 08889-0100
And be sure to look straight in to the eyes of every employee who enters the premises and ask how they can be party to mass murder and still sleep each night.
I am so very sorry about the loss of your brother. What you wrote was wonderful and we are happy to have you here. Your family responded wonderfully. I have received nothing but scepticism and insensitivity from my family and it has really broken my heart. You should feel very proud of your response and knowing that you were there for him (and even cried for him) means so much to any sufferer. This syndrome is so very difficult and for the first two years, I was certain I would end my life. Luckily I made it through that time and things got a little bit better, but it is still difficult. My heart bleeds for you and your family, but I am heartened by everything you have said. Your brother was so lucky to have you. Sending love and condolences.
I know how Daniel must have felt. I have to travel to a conference that I usually love. This year, mentally and physically, don’t think I can. To the point that my mind is looking for a way out. I have a hard time seeing a way through this. I feel sick 24/7. I don’t want to die but I don’t want to feel like this anymore. If you can no longer even enjoy simple things in life you start to loose your will to move on.
If you know… What did Daniel try to get better or manage symptoms.
Why he gave up after baylor partipication, is there any specific reason?
Did he leave a note?