I am not sure what to make of it, we should be getting more feedback, either way (good or bad). Unless most of his patients are not on this forum, which I would find hard to believe…
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There arn’t many who check the forum regularly. Also, when we had to remove the recent posts add on the bottom of the homepage it made it less likely for people to notice new posts.
Or, or, Jacobs is a bullshitter.
I haven’t been on this website for several months.
I have had some telephone consultation(s) with Dr. Jacobs in 2010. He wanted to put me on TRT which I didn’t do. As far as I can say he seems to be a nice doctor who tries to help us. After some calls I went on communicating via e-mail. Although it took some time to get his replies he seemed to care for my problem.
Since I am afraid of TRT I asked him what he thinks of Tamoxifen. He told me that it won’t do nothing. Nevertheless I took Tamoxifen which was prescribed to me by my local doctor in Germany and, unfortunately, it made things much worse. To date my erection quality is much worse (worse than “only” after finasterid) and my penis got much thinner. I am really lost.
In 2011 he sent a survey to me (and other PFS sufferers) which I filled out. I guess his article is based on these results.
His article really is encouraging. Do you know which kind of medications he used to raise LH and FSH?
Anybody who visited Dr. Jacobs please share your experience.
Most of the popular Doctors are Cowboys…
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Awor I applogise for posting here as I am not able to post it on viewtopic.php?f=0&t=7695&p=68696#p68696. I want to know what Viagra has to do with silenced AR theory?
Also you never responded back to my questions at viewtopic.php?f=27&t=7532&p=66847&hilit=pakistan#p66847. I again ask if our AR (genes) are silenced/upgraded then why these Pakistani boys who were born without 5ARs responded well to DHT Application. you can see clearly on the pictures the effect of DHT application. Also why ladies who apply DHT get musculianes with out any side effects.On the other hand we respond with kind of alergy to DHT, shrinkage, further shriveling on applying DHT.
BUMP!!!
is jacobs flat out lying about his success in treating this syndrome, or can ANYONE out there back up his claims?
the lack of response to this thread is troubling … surly some of his success stories would be willing to confirm his claims, which are that he has successfully treated 300+ pfs patients???
well I dont think he is flat out lying, but he is extremely misinformed I believe. Futhermore what his extremely unscientific data suggests is that people seem to improve on TRT. However this doesnt account for people naturally improving over time without the help of testosterone injections. There is no doubt I am better than I was 1 year ago when this nightmare began. I am slowly improving on the sexual and mental front. So if I was taking TRT under jacobs i might also suggest to leave me on it and that I need it to improve when the reality is that I have just improved naturally over time.
i am happy that you have improved over time, truly, but myself and many others do not improve and are completely trapped and miserable … personally, i think the claims he has made are outrageous, and i am still waiting for any one of these 300+ people he claims to have helped to come forward and confirm this … what about the people who get worse when supplementing androgens? their situation completely contradicts what he is saying
i just wanted to bump this thread to see if anyone can confirm his bold claims
I don’t think he was outright lying either but I’m confused with some statements and his definitions of “PFS patients”. I think he’s lumping everyone who took Fin ever as a “PFS patient”. That isn’t really helpful for us as it’s somewhat confusing to those in the medical and research community who might be led to believe there are effective treatments for PFS, which unfortunately we know isn’t the case yet. As of yet I haven’t seen one confirmed case of effective treatment of PFS by any doctor.
Yeah Boston332, I really believe its entirely neurological and when/if the science points and shows this, I think Jacobs will change his treatment protocol.
Also, and this isnt scientific either. But when I asked him if he ever successfully treated anyone, he told me well most people havent returned so I assume they recovered. Obviously that is not sound, and I myself he may consider as recovered since I didnt contact him either.
Guys, I visited Dr. Jacobs twice and he seemed to me a very honest professional in his approach to PFS. He does what he is supposed to do: use the most advanced research and knowledge of the syndrome and its treatments to customize a therapy based on your condition. Hey may not have the silver bullet yet, but who does? The condition is not well understood by the scientific community, so it is not possible to cure everybody for every symptoms yet, but there are several treatments that we can try to live a normal life, and they are absolutely best to assume under the supervision of a professional endocrinologist. We already messed up badly with our body with Fin/Dut/Saw P etc, in the recovery there is no margin for self diagnosis, and that’s precisely why I rely on a professional like Dr Jacobs. Beside that, he is a person who truly understands the patient and listens to the tiniest of details. To give you an example, when we met the second time he had already reviewed my file, and he could recall every detail of it, it was like I had two consecutive sessions.
I started his protocol and I’ll visit him again after the cycle of treatments.
So far I’m happy of the choice and I highly recommend him.
Elijah, why don’t you follow his treament protocol and give us an honest opinion of what it has done for you. Do you have low T and low bio available T?
I saw him this week as well. He was pretty frank with me about his (lack of) understanding of the reason why this drug is causing such devastating side effecfs. I agree with a generally positive assessment of him. He attempts at treating the symptoms, which I’d say is better than most doctors who just don’t believe it’s possible for this to happen. He’s generally interested in figuring out what’s wrong but is more interested in ameliorating his patients symptoms. After all, he’s a clinical physician, not a scientist.
If you feel like you want to talk with a medical professional who understands the state of this syndrome or need to try some sort of treatment, I would definitely go to him. He’s smart and willing to explore possible avenues to make you feel like yourself.
As for me, I am taking some more time to see how I feel before I go down increasing testosterone. I have fairly good levels so it would be a last ditch effort. Also, my symptoms don’t really match low T anyways.
Mehhhh, he is offering you TRT When you have normal T levels. He doesn’t have a good grasp of this condition and that’s the problem. When I had high cortisol he said it was cushings, said he never ears of anyone with PFS with high cortisol. Meanwhile there are tons and tons of people with high cortisol. I don’t doubt that he is a nice guy, but administering T doesn’t seem to help, cure, or change PFS.
I have been seeing Dr. Jacobs since last fall – probably 8 visits or so at this point. I think he’s extremely sincere, intelligent, curious and eager to crack this puzzle. A very good listener with an open mind. He found low bio available T and first prescribed Clomid for me. There was no response, so we switched to T injections. They did cause a dramatic improvement – restored sexual function, felt so good. But it was very temporary. Basically, I had a wave of good/bad days in November, then it just sort of faded out. That’s where I’ve been since, although I’ve continued with the injections. So no, in my case, I don’t think his protocol is the answer, but I’ve continued working with him because he does genuinely know his shit and does really want to solve this. And I do think he’s on to something – like I said, I did initially get a response from the T. That was real. So it tells me there has to be a strong hormonal component to this.
Dr. Alan Jacobs has been experimenting on PFS patients for years and has not been able to cure a single patient. He’s tried the same thing again and again and he knows at this point that TRT and clomid don’t fix the problem. All he is doing is making money of PFS. You have to realize that a lot of these doctors (Dr. Jacobs, Dr. Goldstein) are making big bucks out of PFS. None of them has ever cured anyone. I also find it shady that they do not accept insurance.
Your money is better spent by donating to the PFS foundation so that scientists can fully understand the problem and then figure out how to fix it.
^That’s spot on correct. I also saw Jacobs and while “nice” enough people they know full good and well this is a problem well beyond any doctor in any private practice, even Jacobs. His office manager told me they help “everyone” with PFS. She is either completely misinformed about PFS or she is just out to book hourly slots.
You mean molecular biologists, not microbiologists.